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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About bmorrow

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  1. Wine

    I have worked for a winery for years, and our winemaker has assured me that all of the wine that he has come in contact with is gluten-free. Champagne is normally produced in the U.S. by adding carbonation to produce the bubbles. There is not any additive that I know of that would contain gluten. Yeast is used to help ferment wine, but it is filtered out to such an unmeasurable amount that it should not hurt those with a yeast intolerance, which I do have. Eggs and dairy products are also used as a filtering agent, but I have never had a problem with this either.
  2. I would not cancel the colonoscopy. There are other conditions that you might have that go along with Celiac. For example, I have microscopic colitis and that is diagnosed with a biopsy of your colon. The doctor could do both scopes at the same time. Good luck with your search for a good doctor and finding your diagnosis.
  3. Please Help

    Sorry to hear that you don't have the support from your husband. It is tough to go through this disease alone. The last time that I went to the doctor I insisted that my husband go in with me to discuss everything with the doctor. This seemed to help him understand. I have alot of joint pain and bone pain too, but my scans are not that bad. My doctor treats me for Fibromyalgia, and as long as I take Ultram and exercise the pain is less. I hope that things get better for you. Please keep us updated on how you are doing.
  4. Puts Things Into Perspective

    Yvonne, I am very sorry to hear about the loss of your brother. It is always difficult to lose a loved one and makes everything else not seem important. Please take care of yourself and remember that this group does care.
  5. Questions About Symptoms

    Hello, Welcome! This is a great support group. I have been on a gluten-free diet for approximately 20 months, and my symptons are much more severe now when I do ingest gluten. I start to feel nausea in 15 to 20 minutes and then the stomach pains begin. I can't vomit since I have had surgery for Gerd, so I just have dry heaves. I bloat until I look six or seven months pregnant, and I have extreme amounts of gas. The worst symptons last 4 to 6 hours, and then the diarrhea begins and can last for several days. I had the same feelings about food as you do, but now I am beginning to experiment with cooking different gluten-free items. I have never been a good cook, so this is quite a challenge. I still do not like to eat in restaurants. Be carefull of the french fries. I have been glutened several times on french fries, even McDonald's. I didn't know for a long time to ask about a dedicated fryer. I think that all of us get depressed from time to time, so hang in there and vent here when you need to!
  6. I also have mitral valve prolapse. This was not discovered until three years after the Celiac symptons started. I don't know of anyone in my family having this heart condition. I wonder if Celiac can affect the heart?
  7. Wary...

    I have to add my opinion about Dr. Fine to this discussion. If any of you have read any of my previous posts, you know that I was also very skeptical of Dr. Fine and EnteroLab, until I was referred to Baylor Medical Center for a consultation with a GI specializing in chronic diarreha. My GI in Little Rock considered Dr. Schiller at the Fordtran GI center in Baylor to be the best in world on the treatment of diarreha. By chance, without my GI in LIttle Rock knowing, this doctor had been on the same research staff with Dr. Fine. They have papers that were written together, as well as a chapter in a GI book. Check Dr. Fine's credentials on his website. I asked the doctor at Baylor what he thought of Dr. Fine, and he told me that he had no doubt that Dr. Fine's test results were accurate and that his procedures, sometime in the future, would be accepted by the mainstream medical community. He asked me if I heard him sing and told me that he was really a good singer, and that this was a passion for him. He joked about him having different views on life then most of your doctors that go by the text book. My blood tests were negative and my biopsy was considered inconclusive. At that time I had no idea that I should have requested the entire panel of blood tests and that an expert lab read the results. I had only two tests and the local lab read the results. I also only had two samples taken at the biopsy. My doctor in Little Rock is the greatest to talk to, but he had very little experience in Celiac, but at least he was willing to look for help, and now I know that I definitely have Celiac. Both doctors gave me the diagnosis based on symptons, improvement on the diet, and Dr. Fine's results. I also was diagnosied with microscopic colitis, fibromyalgia and hypogycemia. I had been anemic for at least three years, underwent two surgeries, and lost 20 lbs. in a short length of time, before going on the gluten-free diet. I guess my opinion of the "gold standard" is that it is only as good as the doctor and the lab that are reading the results. There are other genes that researches are looking into as a predisposition factor for gluten sensitivity and Celiac.
  8. The most difficult thing for me the last three years has been coping with missing work. I posted last week about some things that I was going through at work, and that I was going to resign. I have decided to keep trying, even though, I am not receiving support from my boss or some of my co-workers. You just have to do the best you can, and don't give up. Stay on the diet and keep reading posts from this forum. There is much more information on here then you will ever get from a dietician or a doctor. I have all of your symptons, except for the low thyroid. Good Luck!
  9. I was diagnosed by EnteroLab for gluten sensitivity March 2004, and then diagnosed by GI for Celiac January 2005.
  10. Thanks Jen, I didn't think about checking their website!
  11. Does anyone know if Celestial Seasonings green tea (antioxidant supplement) is gluten-free? I can't find anything on the box. It does contain natural flavors, but I don't see barley malt in the ingredients. I picked up this package by accident, I meant to get the original green tea. Thanks!
  12. Resentment At Work!

    I have decided to wait before I submit my resignation. I was lucky today that I had time to think at work. My boss is going to be out of town for a few days and the nephew that made the comments was being very nice today. He didn't even mention our conversation from last Friday. I do have a very stressful job, but I like my work. I wear alot of different hats too, since there are several different businesses owned by this company. They also own a restaurant, which has been difficult for me to manage. I have a Chef and dining room manager, but neither one of them understand Celiac. My boss wants low-carb items on the menu, but won't even discuss a gluten-free item. Last Thursday he was upset over a procedure we used at a special event, and instead of discussing it, he demands that it will be his way, screaming and pounding his fists on my desks. It is sad to see a 70 year old act like a two year old having a temper tantrum. I will be going on a two week vacation in November, so if I can last until then, I will have time to rest and think without so much stress. Thanks again! I was very depressed before posting my original comments, but after I starting reading your comments, I was encouraged and now have the strength to try to do the best for myself!
  13. Yes, I also have the same symptons when I eat any dairy as I do with gluten. I didn't realize that you could have an intolerance to casein, until I tested with EnteroLab. I always thought that it was lactose. I have also noticed that I have started having a problem with soy. I have been gluten-free since March 2004, and like so many others, I am extremely sensitive to gluten now.
  14. Resentment At Work!

    Thank you all for your responses. You don't how much the support means to me. I am sitting here at work trying to make a decision. I have the letter ready, but I just don't know what to do. My position is CFO and I only report to the CEO who is also the majority shareholder, so there is no one else for me to go to. I make decisions everyday, but this one has got me. I don't want to quit and run, but at the same time I am afraid that my health hasn't improved as much as it could have, because of the stress.
  15. I guess this is one of those venting sessions. I have a verbally abusive CEO that still doesn't understand Celiac disease and why I have been off of work. This is a long story, but it comes down to the fact that they just don't understand and don't care. I work for a family corporation and I report directly to the CEO and have 50 to 60 employees under me. He has two nephews that are also suppose to report to me, even though, they pretty much have their own agenda most of the time. I have been associated with this company for years, before I got sick and found out about the Celiac disease. After a violent outburst from the CEO, I asked one of the nephews why they won't support me, and this was his reply: "All three of us resent you because you have missed so much over the last two years, and we just don't think that you want to be here." He thinks that I should just clean all of the gluten out of my system and then I will be fine. I still have problems with microscopic colitis and recurring diarrhea, so I have to stay close to the bathroom. There are days that it has been so bad that I can't get out of the house. I am improving, but it has been a very slow process. I think that I will turn in my resignation tomorrow, because I am so tired of fighting this verbally abusive boss and now this resentment from the others, I just can't take it any longer. I am 56 years old, so finding another job will be difficult. I also live in an area where there are only small towns. I also have the fear of being without insurance. My office staff has been great through all of this. Thanks for being here!