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mrskchart

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About mrskchart

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  1. I have the celiac and ulcerative proctitis which is colitis just in the lower part of the colon and rectum. I have been taking canasa suppositories 1000 mg. 2X a day. I stopped for 2 weeks and had a flare, so now I am supposed to take 4 lialda once a day and use the canasa until it clears. Then stay on the Lialda for maintenance to help with remission. What are you taking? I just started the regimen and am in the process of switching gastro doctors. They also put me on effexor to reduce stress and anxiety which can cause flare ups as well.
  2. I am new to this whole celiac deal. Maybe 3 weeks into it. What are some typical ingredients aside from wheat, rye, barley, and oats that I should look out for when grocery shopping?
  3. I am new to this whole celiac deal. Maybe 3 weeks into it. What are some typical ingredients aside from wheat, rye, barley, and oats that I should look out for when grocery shopping?
  4. I would suggest staying away from the moo goo gai pan. I think that is how you spell it. Very bland. Not much flavor at all.
  5. Anyone know of a good doctor in Baton Rouge, LA?
  6. Gluten free in BR!!! I live here and just had the tests done in december. Sick for 10 years. Intestinal. Do you know anything about the support groups here? Someone told me there was one in BR.
  7. Well, yes, I think diet alone is enough for me since I have been getting so many responses that the villi are enough proof there. I have definitely limited and cut my milk products. The extent of my milk products is a little creamer in my coffee and then the other day I had corn tortilla tacos with lightly sprinkled cheddar cheese and no problem. I don't want to chance any more than that. I am still drinking soy milk as well as eating soy ice cream, not the kind with cookies in it though because I have become a label reader and found that those have WHEAT. I think I am getting good at reading the food labels.
  8. Yes, I have thought about finding a new doctor as well. It is in an office building where everyone there is a gatroenterologist and think they are all competing amongst themselves to see who can see the most patients in one day. My naturalist doctor has spent over an hour just in one appointment. I really like her, but she does not do medical procedures, like EGD.
  9. Not for that first month, but after that, I could start having fish and chicken.
  10. Thank you. I actually have been on the celiac forum reading all the questions and gathering as much information as possible. I have been on the gluten free diet for 2 weeks now and can already tell a difference. You were right, most of the colitis symptoms have resided. I told my mom about a year ago that I could not handle wheat and milk. I had a positive allergy test for both, but we didn't know if it affected my sinus's or my stomach. Well, I did not know about celiac and with enough research on this website, I was able to talk to my doctor and of course the EGD test was done. Now here, I am.
  11. I agree. I see a naturalist doctor that has me on supplements for the vitamin deficiencies I have, and she monitors my levels. She agreed that it is celiac, but I have not met back with the gastro doctor yet. I think I see him around the end of december.
  12. Yes, I have done the rice diet for a month where you eat nothing but rice, vegetables, and fruits and from there we introduced milk products, in which, I can tolerate that only in small doses, like creamer in my coffee. So, when my doctor said gluten free, I immediately thought, woohoo, more stuff I can eat than before.
  13. My villi were flattened in patchy spots, but it could be because I was pretty much not eating gluten since august and then just had the tests done in december.
  14. I need answers. I have recently under gone a lot of medical testing and have been having intestinal/digestive problems for 10 years. I have had extensive blood work done, in which they found several vitamin deficiencies (calcium, B12, magnesium, zinc, D) and deficient levels of IgA (immunoglobulin A). I was sent to a gastroenterologist for an EGD and colonoscopy. I was diagnosed with ulcerative colitis, but he also said that my small intestine showed signs of flattened villi which is typical of celiac disease. I have read on the celiac forums that it is hard to diagnose even with a biopsy. There are several possibilities for "False Negatives." My question to you is, "Since I have so many of the MAJOR symptoms of celiac disease, do you think the appearance of the flattened villi, indicates celiac disease?"