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GFinDC

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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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    http://www.paulsart.net/
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    Amesville, Ohio USA

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  1. Hi Natalie, That sounds like how it often goes after beginning the gluten-free diet. We'd like to think that it would be steady progress in the up direction but it seems like our healing goes back and forth a little. The immune system reaction takes a while to settle down, weeks to months. So it is hard for the gut to heal while that reaction is going on. It's helpful to eat simple foods at first and avoid dairy. Processed foods including baked goods are best left on the shelf. Try to eat whole foods only including meats, vegetables and nuts. Carbs and sugar are not helpful. Things should get better after a month or two if your diet is clean of gluten and diary. Then you can try adding things back in slowly one item a week. Peppermint tea can help with bloating. Probiotics may help too. Welcome to the forum!
  2. I agree, it's very unlikely she doesn't have celiac disease. Can you find a local celiac group to get a doctor recommendation from? They might have the best idea of a local doctor who is familiar with celiac disease. There is also a doctors sub-section of this forum which might help find one. http://www.celiac.com/gluten-free/forum/6-celiac-disease-doctors/
  3. Hi Fidel, The original poster hasn't been on the site for several years, so you may not get a response from them. But welcome to the forum!
  4. Hi Megan, Regarding dairy, celiac disease damages the villi that make the lactase enzyme that digests milk sugar (lactose). So sometimes people can't digest dairy well when they first start the gluten-free diet. Over time that may change as you heal. The ability to digest dairy doesn't always come back, but it may. Throwing up can be caused by excess gas in the stomach. That's pretty common when starting the diet. Sugar and carbs will make it worse. Udi's bagels are made of various flours so they are full of carbs. Carbs are turned into sugar in the body and that feeds the bacteria, hence the gas. You could be reacting to various foods, so eliminating one problem food is not going to fix all the problems. I think it would be more helpful to start by following the tips in my earlier post than to try a full fledged elimination diet at this point. Elimination diets can take a while to do. If you can stick to eating meats, vegetables, nuts for now that is a good thing. No processed foods (like Udi's) or other baked goods. This is probably the fastest way to get better and learn what is safe to eat. Once you are feeling better for a few weeks then you can try adding in one new food a week and see how it goes. The gluten-free diet is a lifetime commitment so you may as well start out right and take your time. Whole foods are a good way to go at the beginning. If you cook your own food you know what is in it. That's important to know for us. Avoiding any processed food with more than 3 ingredients is also good. The fewer ingredients you are eating the simpler it is to figure out a problem. I wouldn't worry about the idea of the throwing up thing making you react to dairy. Celiac is known to cause a problem with dairy intolerance.
  5. Hi Alok, I suggest not eating any soy. Soy is one of the top 8 food allergens in the USA. Soy has other things about it that are not helpful to us. Plus it is often sprayed with pesticides that are not so great for people. Maybe you can try some other food for a while? Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
  6. Hi Calla, I think the safe answer is 12 weeks on gluten for a blood test. I am pretty sure they say 2 weeks on gluten for the gut endoscopy. But usually people/doctors don't want to do an endoscopy before a positive blood test, so catch 22 there. There's a chance you still have active antibodies in your blood after 3 weeks off gluten. But nobody can tell you for sure. If you can get you doctor to test you now and in 9 more weeks if you are negative now, that might work. If the doctor is willing to do 2 tests, that would be great. The best thing would have been to do all celiac disease testing before going gluten-free. But sometimes it doesn't work out that way. The University of Chicago celiac center has an FAQ that answers some of your questions. http://www.cureceliacdisease.org/faq/i-dont-have-the-money-to-get-tested-for-celiac-disease-but-a-gluten-free-diet-makes-me-feel-better-is-it-okay-to-start-the-diet-without-being-diagnosed/ Welcome to the forum!
  7. That's good Megan, that you were tested. Many people have the genes, but only some develop the disease. Your doctor is right about celiac often appearing after some kind of physical stress or illness. The tricky thing about eliminating one food is that you body may be reacting to multiple foods. So not getting better could mean you just eliminated one problem instead of 3. It's not unusual to have digestion issues for quite a while after going gluten-free. Our guts are damaged and that damage has to heal. But it can't heal until the immune system stops it's attack. The immune system attack/reaction can keep going for weeks to months. So it can be a slow recovery. Often people report getting better and then getting worse and going back and forth on symptoms. What doesn't help is that our bacteria in our guts can get really screwed up by the disease process. We can't properly digest things so there is more undigested food for bacteria to thrive on. Avoiding sugars and carbs can help with that issue. Here are some starting the gluten-free diet tips for the first 6 months. Some of these you have already taken care of: Get tested before starting the gluten-free diet. Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. Eat only food you cook yourself, think simple foods, not gourmet meals. Take probiotics. Take gluten-free vitamins. Take digestive enzymes. Avoid dairy if it causes symptoms. Avoid sugars and starchy foods. They can cause bloating. Avoid alcohol. Watch out for cross contamination. Helpful threads: FAQ Celiac com http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/ Newbie Info 101 http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/
  8. Hi Michael, That's quite a spike in blood pressure! I haven't tested that myself and don't want to if it means I have to eat gluten. Blood pressure testing to identify food reactions is something that has come up before. It sounds like it might be possible but I don't know how much study has been done on it. Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
  9. Hi Megan, Did the doctor test you for celiac disease? You really shouldn't go gluten-free until all the testing for celiac disease is completed. It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO. Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't. Occasionally I get hit but it is rare. Simplifying your diet is a good first step. Avoiding processed foods for a while and dairy also is good. I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out. If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
  10. Hi Diane, One condition that causes excessive thyroid hormone production is called Grave's Disease. I suggest you ask for an ultrasound of your thyroid to check for nodules that might be causing problems. They may find a nodule and want to do a fine needle aspiration (FNA). That just a tiny needle they use to take a biopsy sample. Shouldn't hurt, (that's why they use a tiny needle). Sometimes they do a repeat ultrasound every 6 months to keep an eye on things.
  11. Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. Eat only food you cook yourself, think simple foods, not gourmet meals. Take probiotics. Take gluten-free vitamins. Take digestive enzymes. Avoid dairy if it causes symptoms. Avoid sugars and starchy foods. They can cause bloating. Avoid alcohol. Watch out for cross contamination.
  12. I'm not a doctor but it looks like everything is ok. No inflammation, no h-pylori, no this and no that. Nothing sounds bad. You must be doing something right!
  13. Omission makes me sick. Not that I wanted it too, I kinda liked it. But it didn't like me. I'd avoid it and all gluten reduced beers if I were you. They aren't worth the risk of damage to your body.
  14. Hi Olivia, If the package label says they have wheat in them that's good enough reason not to eat them, regardless of what other people say about it. Companies don't always use the same ingredients in every country, so the ones you are looking at could be different than ones made in the USA. They could even be different in the USA if they were made at a different plant. There is no law against using gluten ingredients in the USA. You can always call the manufacturer to verify.
  15. Hi MelissaNZ, The test should have a range of acceptable results with each test. Different labs often have varying ranges of acceptable levels, so without the ranges the test result is not easy to interpret. Symptoms can vary all over the place. I had alternating C and D before going gluten-free, and sometimes no digestive symptoms. Celiac is really had to diagnose by just symptoms. Some people have no digestive symptoms, but do have skin rashes or thyroid issues or joint paint, headaches etc. Insomnia and fatigue are common also. She probably doesn't need to eat more than a single slice of gluten bread each day to keep the immune response going for testing. It might help her sleep if she eats the gluten first thing in the morning so her immediate symptoms are somewhat past by the time she goes to sleep. Digestive upset is often accompanied by flatulence (gas) made by bacteria in the gut. The gas and pain can make it hard to sleep. Not eating foods that feed the gas making bacteria can help though. Bad foods for the gas are any carbs, sugar, and dairy. Cold foods like jello seem to help stomach pain for me. Peppermint tea can also help as it relaxes stomach muscles and that makes it easier to get gas out. In the USA we have something called Pepto Bismol that can help soothe the gut. But Pepto has aspirin in it and they don't recommend that for kids. After I had been gluten-free a while my reactions changed and I usually had symptoms within 30 minutes or so. Here is a link to the University of Chicago celiac center FAQ. It might help with some more info. http://www.cureceliacdisease.org/faqs/