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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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    Painting drawing art!
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    Amesville, Ohio USA

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  1. Hi Carle, Congrats on your symptoms going away. I did seem to have reactions to rice for a while after going gluten-free. But after some years on the gluten-free diet I can eat it again. So reactions can change over time. I was searching for an article on gluten in common store products, but didn't find it. There was a group that did testing on some common grocery products like beans, rice, corn etc that we would normally consider to be gluten-free naturally. But they found some level of gluten in some of them. So it's not impossible to pick up something off the shelf that ought to be naturally gluten-free and find it is contaminated. That may have happened with the rice you ate. A quick rinse of water before using the rice might help.
  2. Hi Doit, The reference ranges to the right of the test result show the values the result ought to be in for normal readings (no celiac disease). Your results appear to show no higher than normal results that I can see. However, you aren't following the recommended process for celiac disease blood testing. The blood test is supposed to preceded by 12 weeks of daily gluten eating. That is generally enough time to cause a sufficient quantity of antibodies to build up in the blood stream to be detectable by the tests. Not having antibodies in the blood stream doesn't mean you aren't being damaged. People with DH (dermatitis herpetiformis) sometimes test negative on the standard blood tests. My theory is possibly because the antibodies are concentrated in the skin instead of the blood. In gut damage, it is possible the antibodies are concentrated in the gut, instead of the blood. After some time they show up in the blood also. The thinking is the antibodies go where the work is. Anyway, theories aside, it takes very little gluten to kick off an immune response. Those antibodies are not aimless soldiers. They start doing their work and destroying gluten and gut tissue even if you don't feel symptoms. Did you know there are some people who have no GI symptoms of celiac disease but still have it? They call that silent celiac. So going by symptoms is not a good way to judge actual damage in the gut. You are wise to go in for followup testing, but the followup testing is hopefully to show compliance with the gluten-free diet, and lower antibody test results. Have your close family members been tested for celiac disease? It sounds like they should be. There is a 5% higher chance of them having celiac than the general population. Welcome to the forum!
  3. Hi carle, I wonder if you might have dermatitis herpetiformis (DH)? DH is a skin condition associated with celiac disease. the reason I thot of that is because you had a flare up from eating rice. Rice has iodine in it and iodine makes DH symptoms worse. DH is primarily a skin rash that is very itchy. Anyhow, congrats on your PSA symptoms reducing! That's great that you figured out a diet change to help it. Of course it might not be iodine that made that change for you. I just think it is interesting your symptoms flare from rice and people with DH have symptoms that flare from iodine.
  4. You are welcome David. They should take 4 to 6 biopsy samples for microscopic examination during the endoscopy. They then look at those samples for damage characteristic of celiac disease. The blood tests include DGP IgA and DGP IgG, plus ttg IgA and total IgA. You only have to be positive on one blood antibody to gliaden to have celiac disease damage. It's good to catch the condition early as it gives you a chance to avoid major damage to your body over the years. Since celiac disease is an autoimmune condition, we never outgrow it or get to cheat on the diet without consequences. The immune system is very sensitive and begins an immune attack with even miniscule amounts of gluten exposure. But the immune system also kills germs and keeps us from dying of many diseases so it's not all bad. There is a Newbie 101 thread stickied in the coping with forum with lots of information.
  5. Hi Egs, Yes, it sucks that so many doctors are ignorant of ceilac disease testing protocols. We have seen many members post on the forum the same issues, that their doctor told them to try the gluten-free diet before doing the testing. Pretty incompetent advice from them IMHO. But it explains why upwards of 80% of celiacs are walking around undiagnosed or misdiagnosed also. Medical not so-professionals at the helm. It may take some time to adjust to gluten-free eating. We learn to eat as children and spend our whole lives eating whatever we want. Being suddenly told to change a lifetime habit can be challenging. But feeling better is so worth it also.
  6. Hi Ken, How about trying some sweet potatoes? They are a great replacement for regular white potatoes and they are not nightshades. Sweet potatoes have more nutrition than white potatoes also. I sometimes eat Jif brand natural peanut butter on rice cakes for breakfast. Quaker brand rice cakes are usually gluten-free, and are marked gluten-free in some cases. Mission brand corn tortillas make a passable replacement for bread. There are several kinds of gluten-free wraps/tortillas available, but the corn tortillas are generally much cheaper. I like Polar brand canned sardines, as they are boneless and skinless and have lots of vitamin D. You could try duck eggs and see if they are better for your digestion than chicken eggs. Avocados are $$$ but they have good protein and nutrition in them. Sauerkraut is supposed to be good for replacing good bacteria in the gut. Actually, many fermented foods are supposed to be helpful for gut issues. Some of your food reactions may go away after awhile on the gluten-free diet. Some may stick around though. I am surprised to hear you lost so much weight after going gluten-free. Usually people gain weight after going gluten-free. It that weight loss continues, maybe you should check with your doctor for other issues. I have food intolerances to nightshades (tomato, potato, peppers and eggplants), dairy, soy, carrots, celery, caffeine, sand gluten. I avoid most sugar also. Maybe you could try cutting out dairy completely for a week and see if it helps? There are dairy free alternatives for many products these days. Like DF milk, cheese, ice cream etc. A lot of those products have soy in them though, which I avoid. Except soy lecithin, which doesn't seem to be a problem for me. Please check you spices and drinks like tea etc for gluten also. It's unusual but sometimes they do have gluten ingredients. An elimination diet is a good way to identify other food intolerances. But at the beginning of the gluten-free diet it can be confusing to do an elimination diet because our gi system may be going through so many changes it is hard to tell for sure what food is causing symptoms. That's where a simple, whole foods diet comes in very helpful.
  7. Sorry for the slow response Ken. I don't think losing weight that fast is normal after going gluten-free. But it is not an easy diet transition for many people, so there are no hard rules. Generally I believe people tend to gain some weight after going gluten-free.
  8. Hi David, Yes, your reactions do sound like possible celiac disease symptoms. Some people have GI system symptoms very quickly, but others have symptoms after hours. The usual process for getting diagnosed with celiac disease is to get a blood test for antibodies to gluten (actually gliaden). Then if the blood tests are positive an endoscopy is generally done to take biopsy samples from the small intestine. You should not stop eating gluten until all celiac testing is completed as that could invalidate the test results. After only 2 weeks off gluten you probably still have antibodies at detectable levels though, so just keep eating gluten and try to get a blood test scheduled right away. You don't need to eat a lot of gluten, but a little every day is needed. One or 2 slices of wheat bread is enough. Welcome to the celiac disease forum!
  9. Hi, If you are near a large city, you could look up a celiac support group now. Contact them and ask if they know any good celiac aware doctors. Many doctors don't seem to be aware of proper tasting processes. If you do find a local celiac support group they may be able to help in other ways too. Otherwise, it sounds like you are doing the right things so far.
  10. Hi Ironic, Maybe you should write down all the ingredients in the stew, and avoid them for a while. Just in case you are reacting to one of them. After a week or 2 try adding one of those foods back into your diet, and see if you get symptoms. If not, then add another one of those foods back in. I don't remember if you had food allergy testing? Maybe that would identify some additional food problems? But CL is right, recovering from celiac can take quite a while. That doesn't mean you can't test other ideas out at the same time though. Many of us have developed additional food intolerances over time. Nightshades, corn, eggs, dairy, soy, nuts, and other foods can cause reactions in some people. Doctors don't have many tests for food intolerances, so an elimination diet is the best bet.
  11. There is still a possibility that you have NCGS (non-celiac gluten sensitivity). People with NCGS can have similar GI symptoms as people with celiac disease, but without the damage to the gut. There's also the possibility of lactose intolerance, or a reaction to any number of other foods. There is a test the doctor can do for lactose intolerance. I assume you are going to have the polyps removed? My sister had polyps removed, she said it was no big deal. It's great that you are getting some answers!
  12. Hi gfpuddin, Celiac disease is an immune system disorder. It is a serious condition and can cause death if not treated. That is a long term thing though, but It does result in a shortened lifespan and miserable quality of life if untreated. It's not a disease you should treat lightly. People who are celiac and eat gluten for a prolonged period of time before diagnosis may develop additional autoimmune disease also. Or so it seems from the many members of this forum who have reported that happening to them. There is a long list of associated diseases that occur more frequently with celiac disease. More testing may be a poor choice in your case IMHO. You are losing weight and having some serious symptoms. Getting a full diagnosis won't help your situation if you don't take the gluten-free diet seriously. It is a medical diet, not a weight loss diet or fa diet. Your family needs to take it seriously also, as you will need their help to avoid gluten and cross contamination. The immune system is very powerful and sensitive. The current guidelines in the USA are no more than 20 PPM in in a food to be labeled gluten-free. That doesn't mean some people don't react to smaller amounts of gluten though. Some do. It's best to stick with whole foods and avoid dairy when starting the gluten-free diet IMHO. I suggest you cook your own food so you know what is in it. No eating out at restaraunts. Basically don't trust other peoples cooking. You won't heal and recover if you don't stay off gluten. Some researchers found about 18 months for recovery from most symptoms. You may be surprised how many things can improve in your health if you stay consistently gluten-free. Sometimes people have symptoms they don't think are related to gluten but they go away after starting the diet. The celiac disease genes are passed on from either parent or both sometimes, So it is possible your parent (s) or siblings could have or could develop celiac disease also. First degree relatives have a 15% higher chance of developing celiac disease than the general population. So they should be tested also. Welcome to the forum, there is lots to learn here!
  13. Hi Susiron, Here is a link to the U of Chicago celiac center. It has a lists of antibody screening tests for celiac disease. ******************************************* Antibody testing: only a first step To help diagnose celiac disease, physicians first test blood to measure levels of certain antibodies. These antibodies are: Anti-tissue transglutaminase (tTG) Anti-endomysium (EMA) Anti-deamidated gliadin peptides (DGP) A positive antibody test suggests that a person might have celiac disease, but it is not a conclusive test; a biopsy will be needed to confirm the diagnosis. Your doctor may order one or more of the antibody tests indicated above (a “panel”) to aid in diagnosis. ******************************************* Your symptoms could very well be caused by celiac disease IMHO. You probably had the ttg IgA test. There are several other antibody tests they can do, which might show up a positive even if the ttg IgA is negative. If you want more testing for celiac disease, I'd ask the the celiac panel to be done. But don't go off eating gluten before the tests , or your test results may not be accurate. There are members on the forum who had only one positive antibody test out off the all the available tests. But it only takes one kind of antibody attacking your gut to do damage. Welcome to the forum! I hope you find relief of your symptoms soon.
  14. Hi Meg-c, This thread on temprament issues might be interesting to you. Celiac disease can affect the brain though a couple of avenues. One is a direct attack on brain cells causing gluten ataxia, another is nutrient deficiencies from mal-absorption. Neither is all that fun. Just being sick and in pain for a long time can cause anxiety/depression in some wimpizoids. (No, I wasn't talking about me, stop looking at me like that!) Losing 50 lbs is no small event. Some people go through extensive diet and exercise programs to try and lose that much weight. If you were on a tv program you could probably win a prize! Celiac disease can cause damage to the villi lining the small intestine. That damage can make it hard for your gut/body to absorb nutrients (vitamins, minerals, fats). Those turn out to be pretty darn important to keeping a human body operating well. Weight loss or failure to thrive is a classic celiac symptom. D and C are often present but can be unpredictable. Sometimes people have no GI symptoms at all, but may have a skin rash or joint pain, or many other possible symptoms. Or no symptoms at all. Weird world much? Thanks for being understanding about the bumping warning. The mods have been fighting a recent rising tide of bumping without grinding on the forum. It's one of those rules most people don't even notice when signing up. Thanks for posting the link to the test info cyclinglady!
  15. I'm glad you already checked in Hashimoto's Thyroiditis. Getting an endocrinologist to check your thyroid is a great idea. TSH is produced by the pituitary gland, not the thyroid. So it doesn't tell you if you have too much thyroxine in your blood. Just if your pituitary gland is calling for my thyroxine. You could still have hyperthyroid symptoms from too much thyroxine being produced by the thyroid. Signed, definitely not an expert. There are a lot of forum threads discussing Hashimoto's. It might help to search for them and read a few. Something might sound familiar.