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GFinDC last won the day on December 6

GFinDC had the most liked content!

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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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    Painting drawing art!
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    Amesville, Ohio USA

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  1. Hi DC Thanks for updating us. It looks like they only did the initial screening test for celiac disease, the ttg IgA test. There are other tests including DGP IgA and DGP IgG that would be worth asking for also. Not everyone tests well on every test. They may call that set of tests a celiac panel. Another gotcha is that people with DH sometimes don't test well. In DH the antibodies are concentrated in the skin instead of the blood. So they test for DH by taking a small skin sample from next to a lesion. Having DH means you have celiac disease. Did they explain the cause of your hypothyroidism? Hashimoto;s Thyroiditis is a condition that slowly destroys the thyroid gland. Hashimoto's is more likely with celiac disease, They can test for Hashimoto's by blood tests for antibodies. Celiac testing isn't perfect right now. None of the tests are 100% guaranteed to catch every person with celiac. There is a small percentage of people who don't fit the mold and the test don't catch them,
  2. Hi Htxkid, I don't know of any medical tests for NCGS. But there is one test you can do yourself that always works. Go gluten-free for 6 months and see how your body responds. NCGS is a condition that isn't well understood yet. So nobody can say for sure what the results are if you continue to eat gluten while having NCGS. You are in charted waters there. Some might call it the bleeding edge of medical science.
  3. Hi rumberg, I often rinse things before I use them, just to be sure. It only takes a few seconds to rinse something off. But I live with gluten eaters so I know there is flour floating around sometimes. If I lived by myself I'd never intentionally bring gluten items into the house so I wouldn't worry about rinsing things. Unless I was buying something gluteney as a gift of course. I think the far more likely source of gluten would be food products you might eat that have some gluten in them. Many foods are now labeled gluten-free. Meats, veggies, eggs, and fruits are naturally gluten-free. Nuts you have to be careful of because they sometimes add flavoring to them and it could contain gluten. So always read labels. The best labels have only one ingredient listed, but up to 3 ingredients is usually a good item. After you've been gluten-free for a few months things will be a little easier. You get used to checking labels and avoiding certain things and change your eating habits. A simple whole foods diet is good for beginners as it avoids most hazards with processed foods and saves a lot of time and worry when purchasing foods. You may end up cooking more but you know what you are eating too. You can always branch out to more processed foods after you get a handle on the basics.
  4. Hi Axiom, Yep, nueropathy can be a an issue. Malabsorption of nutrients can be the cause. B12 is important for nerve health and is sometimes low in celiacs. *********************************************************** What common nutrient deficiencies might an adult experience prior to diagnosis? Iron, calcium, and Vitamin D are the most common deficiencies, but some present with deficiencies in B12, copper, folate, magnesium, niacin, riboflavin, and/or zinc. Nutrient deficiencies associated with celiac disease are due to intestinal damage caused by protein in wheat, rye, and barley. In most cases, nutrient deficiencies that were caused by damage from celiac disease will naturally resolve as your intestine heals. Many gluten-free dieters choose foods that aren’t fortified with vitamins and minerals like their gluten-containing counterparts. Thus, we suggest a general multivitamin to prevent against nutritional deficiencies. August, 2015
  5. Hi ware96, I like Pepto Bismol for gut pain. Also I drink peppermint tea when glutened and take aspirin. Peppermint tea can help relax stomach muscles and get gas out. I seldom drink it except when having digestion problems. Lots of water can be helpful too. Perhaps some Milk of Magnesia if needed. Symptoms can vary a lot. They may drag on for weeks to months after a glutening, but may not too. It's literally a crap shoot!
  6. I've eaten Vlasic pickles and Yoder's sauerkraut, no problems so far.
  7. Hi zenjess, Gluten (as the term is used by celiacs) is a protein in wheat, rye and barley that our immune system reacts to by making IgA or IgG antibodies. What we call allergies (like hayfever etc) are caused by an IgE antibody reaction. The different types of antibodies (IgA, IgG, and IgE) are different in how they affect the body and how they attack allergens. So you could have an IgE reaction to the wheat, rye and barley proteins but I think it is an unusual thing for that to happen. Some people claim that celiacs react to all gluten proteins but that is usually a come on to selling some kind of treatment that is questionable. Every grain plant has a protein molecule termed generically as a gluten. Watch out for the gluten allergy people as they are sometimes hucksters. This question comes every so often. The snake oil salesmen are hard at work!
  8. Hi Axiom, Your symptoms sound like a normal day! Before I went gluten-free anyway. Yes, I had bloating and gas problems, along with side orders of gut pain, insomnia, dry skin, muscles twitching, pale mottled skin, joint pain, fatigue, brain fog, etc, etc. And those were the fun days! Thankfully, most of that has gone bye bye now. I suggest you get tested for celiac disease by a complete celiac blood panel and possibly an endoscopy later. You need to continue eating gluten until all the testing is done. I suggest you don't stop eating gluten even if your (doctor) tells you to until the endoscopy is done. If you stop eating gluten the antibody levels will begin to drop and your test results will be inaccurate. then you would need to do a gluten challenge of 12 weeks for accurate results, which can be very unpleasant if you do have celiac disease. Multiple posters have been told to "try" the gluten-free diet by their doctors before the testing was complete. That is really bad advice IMHO. Perhaps you could go to your sisters doctor for testing? Many doctors are still not familiar with celiac disease testing so it is worthwhile finding someone with experience. If your sisters doc can't help, try searching for a local celiac support group that may have doctor recommendations. Welcome to the forum Axiom!
  9. Hi olesoulle, Interesting question. There's no way for me to know how safe that would be as far as cross contamination goes. It seems like you could sort through the grains looking for and removing any wheat, rye or barley that had snuck in. And then wash the grain and let it dry. I think that's what Quaker does with their gluten-free rice products. But they have machines that do it on a large scale quickly. Maybe you could look up their procedures and see how it works for them? Welcome to the forum!
  10. Hi zenjess, I don't fit that description myself (IMHO) or do weight watchers. But people with weight issues have posted before. Some people seem to gain weight with celiac disease, which seems all crazy-like but it does happen at times. That may be a temporary condition that would change with time though after further gut damage. Thyroid problems can also cause weight gain because of reduced / slowed metabolism. Has your thyroid hormone level been stabilized? Just seems like that might be something to verify. I think it is best to stick with whole foods, like meats, veggies, nuts, eggs, and some fruit myself. gluten-free processed foods are usually high in calories and low in nutrients. So they don't do much for us except introduce poor nutrition and possible weight gain. Of course they sometimes taste good too, rats!
  11. Hi Taraz, You probably won't test positive for celiac disease if you are already eating gluten-free. Celiac testing requires a gluten challenge of eating, gluten for a time before the testing. Two weeks eating gluten for the endoscopy and 12 weeks for the blood antibody testing. About a 1/2 slice of regular gluteny bread is adequate per the University of Chicago ceilac center. You could ask the doctor to test you for nutrient deficiencies also. Celiac damage can cause malabsorption of nutrients and its good to know if you have that problem. Welcome to the forum Taraz!
  12. Hi Ironic, Some celiacs do react to oats like they do to wheat, rye and barley. The thing to do is stop eating oats for 2 months and see if there is an improvement. Saying you think you are gluten-free makes me wonder what your confusion is? Maybe you can simplify your diet so you don't have any doubt about your gluten-free status anymore. I assume you verified your meds were gluten-free before taking them. I don't think there are many meds in the USA that contain gluten, but it makes sense to verify since there are no rules preventing it or requiring labeling like there are for foods in the US. If your gut is already irritated fast transit is not surprising. Our bodies do try to get well so if they want to get rid of something irritating they have ways of doing it (with foods). Did the doctors verify you don't have diverticulitis yet? You need to keep them on their toes! Recovery from celiac damage is not an overnight thing. But it helps if you eliminate any foods that are irritating or hard to digest. Perhaps if you write down everything you are eating, drinking, etc and put things in a "suspicious" list or an "ok for sure" list. Then drop all the suspicious list items for a few weeks. Nobody can troubleshoot your diet like you can. You are the expert on what you are eating that is making you sick. If you approach it as a simple straightforward problem of eliminating possible problem foods items then you should have some success. If it is a food problem that is.
  13. I read somewhere in the past that some of the testing they use for gluten does not accurately test levels of barley gluten. So the beers made with barley can test low in gluten because the testing doesn't really work for barley. Elisa test is the one they said is bad I think. It works for wheat protein, but not barley protein. So without proper testing, the PPM levels don't mean anything.
  14. Hi Scott, The counters are somewhat random it seems to me. One login and they will say 10, next login they will say 8. Just as an example. That seems like a problem, but maybe it's not. Last night I tried to edit a post and the edit box came up but it was blank. That's not supposed to happen IMHO. So maybe the edit function has a bug? I suppose if that's the problem area, it could also affect posting. The fun never stops right? **************************************** Hmm, so just now I clicked edit on this post and it did work, and brought up the post for editing. So I added this nifty comment. In case you are wondering the stars above and below the comment are what makes it nifty. ***************************************
  15. Now I can't edit posts. The edit window come up but there i no text in it to edit. Makes it hard to be fumble fingers typist in secret.