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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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    Painting drawing art!
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    Amesville, Ohio USA

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  1. Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease. When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks. I had gut spasms for that time. And other changes, all for the better. Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing. Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis. Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first. Avoid dairy and processed foods. I hope it works out for you. I know some people with Crohns disease eat gluten-free and find it helps them. Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.
  2. Hi Nobody, Welcome to the forum! I noticed you said you have been avoiding wheat products. That's good, but are you avoiding rye and barley also? Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients. About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now. The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer. That doesn't happen often. It is possible some of the other grains you might be eating are contaminated. A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten. Things like corn meal for example.
  3. Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints. Pepto Bismol has a soothing effect on the gut. Pepto Bismol also has aspirin in it. Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy. Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting. You could try avoiding dairy for a few weeks to see if that helps. Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction. So it is important to avoid even traces of gluten if possible. The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.
  4. Hi Laurabella, Yes, you could have celiac disease! It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it. The doctors usually do want the endoscopy. The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease. Gall bladder problems can happen with celiac disease. Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach. Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain. Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  5. Hi Beachgrl, We have had members with microscopic colitis before, usually in addition to celiac disease. Have you been tested for celiac disease? The reason I ask is, it is much better to be tested for celiac before starting the gluten-free diet. The primary tests for celiac are to detect antibodies to gliaden in the bloodstream. Those antibodies start to decline when a person stops eating gluten, so the tests become useless. There is no reason a person can't have more than one digestive system disease. So it is smart to be tested for celiac disease if you can get the testing arranged. Any change in symptoms after stopping gluten is an indicator that gluten is causing a reaction of some kind. It could be celiac, or it could be non-celiac gluten intolerance, (NCGI). There aren't any reliable tests for NCGI yet. Welcome to the forum!
  6. Hi, Nope, not me anyway. Some people with celiac get dermatitis herpetiformis (DH), which is a skin rash. I am not sure DH looks like that picture though. DH is itchy, and is affected by iodine in the diet also. I would say it's a little itchy, but some other forum members might lynch me if I said its "a little itchy". There is a sub-section of the forum specifically for DH. If your rash is DH you might find some help there.
  7. Sweet potatoes are an option. Some people use a ricer to make cauliflower "rice". Quinoa might work, but make sure you rinse it well.
  8. Hi Brandi, Welcome to the forum! You can try eliminating dairy for now. Dairy is often a problem for celiacs. I don't know where you are but if you can get peppermint tea that may help with getting gas out of the stomach. Pepto Bismol and aspirin can help with pain. If you are having trouble sleeping you can try adjusting your diet to only eat foods without gluten in the afternoon. Keep eating the gluten in the morning and maybe the food symptoms will mostly be lessened by bedtime. You do need to keep eating gluten until the testing is complete and should wait until the test results are received before going gluten-free. A nice box of wine might help with sleep also. Many forum members have had symptoms like yours and some worse than that. The symptoms should start to decrease after going gluten-free. But they often don't go away completely for quite a while.
  9. Hi Romeo, That's good your vitamins and such are ok. The answer to your question about other intolerances is yes, celiacs can develop other food intolerances beyond gluten. The forum used to show a signature line for each member and often it listed their other food intolerances beyond gluten. That signature line went away an a forum upgrade some time ago. This forum subsection is specifically for other food intolerances. I have intolerances to nightshades, soy, carrots, celery, dairy, and some other things I don't remember at the moment. Corn is another common intolerance, and eggs. Your thyroid medication could definitely make you have tremors.If you have too much thyroid hormone in our system you could get any of the symptoms of hyperthyroid disease.
  10. Hi Romeo, Have you had your vitamin and mineral levels checked? Celiac can cause mal-absorption and that can cause vitamin deficiencies. Vitamin deficiencies can cause a lot of symptoms. B-vitamins are needed for nerve health. You should have the vitamin levels checked before starting any supplements, as it is possible to have too much of a vitamin also. And too much of some can cause symptoms as well.
  11. Hello SIC, Welcome to the forum! You are right, healing and recovery can take quite a while. The gluten (gliaden) antibodies will decline over time if you aren't eating gluten. That takes a variable amount of time for each person. In some it could happen quickly, but in others it may take months. The gluten itself doesn't stay in your body long. It's the antibodies to gluten that cause the symptoms. Many people can't digest dairy at the beginning, so you might want to stop eating that for a while.
  12. Your doctor flubbed up big time if he told you to go gluten-free before doing testing. Diagnosis involves both blood tests for gliaden antibodies and an endoscopy to take biopsy samples for gut damage analysis. If you want to get tested now after a month off gluten, you'll need to start eating gluten again for 12 weeks. It's often easier and less painful to do the celiac testing before starting the gluten-free diet. Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013
  13. It may take a higher level mod to make a change in the text for you JMG. But it might be simpler to just post a modified version when you are ready. I imagine you'd want to make a new thread for the final version anyway instead of pining a thread with multiple comments and corrections? As far as pinning the final thread version, we'd need Scott or Peter to do that I believe. It seems like a pretty good thread / info post to me. But Scott has ultimate authority. When you want, you can report the post using the "report post" option near the top left of the post. That will send a report to the MODs and they can review your post and maybe Scott will see it then. As you can imagine Scott doesn't read every post/thread for some reason. I could report it for you but I don't want to do that until you have a final version.
  14. That would be great however I don't know anywhere that automatic testing of relatives happens.
  15. Hello Andy, It sounds like you have already started the gluten-free diet. If you are waiting for the endoscopy (not colonoscopy), then you should still be eating gluten. Starting the gluten-free diet should wait until all testing is completed and test results known. Other wise the tests won't give accurate results. Your doctor should have told you this but many of them don't know much about celiac disease. The endoscopy should include 4 to 6 biopsy samples for analysis. Cross-contamination is a serious problem. The immune system is activated by very tiny amounts of gluten. And the immune reaction doesn't stop just because the food has left your digestive system. So the damage can be going on for quite a while. Some people have no GI symp0toms with celiac disease. That is called silent celiac. Other people have no_GI related symptoms, like joint pain, skin irritation,hair loss etc. Other tests you should be getting are vitamin and mineral levels. Celiac impairs the ability to absorb nutrients so you may be low on vitamins your body needs to heal it's tissues. Welcome to the forum!