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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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  1. Dang it, left some comments on the draft and the server hosed up and wouldn't take them. They were really great comments too. Rats!
  2. http://www.uspreventiveservicestaskforce.org/Page/Document/UpdateSummaryDraft/celiac-disease-screening?ds=1&s=celiac This is a link to the USPSTF page on celiac screening. It says the recommendation is still in draft until 30- May-16. ---------------------------------------------------------------------------------------------------------------------------- " Draft Recommendation Statement Importance Celiac disease is a multisystem autoimmune disorder in genetically predisposed adults and children that is triggered by dietary gluten. Ingestion of gluten by persons with celiac disease can cause immune-mediated inflammatory damage to the small intestine, which can cause gastrointestinal and nongastrointestinal illness. The clinical presentation, severity of symptoms, and natural history of the disease varies, and includes asymptomatic (or “silent”) celiac disease. In studies of U.S. populations, the estimated prevalence of celiac disease among adults ranges from 0.40% to 0.95%.1 Prevalence is higher than average among non-Hispanic whites, persons with a family history of celiac disease, and those with other autoimmune conditions. Detection The USPSTF found inadequate evidence regarding the accuracy of screening tests for celiac disease in asymptomatic populations. Benefits of Early Detection and Intervention or Treatment The USPSTF found inadequate evidence on the effectiveness of screening for celiac disease in asymptomatic adults, adolescents, and children with regard to morbidity, mortality, or quality of life. The USPSTF also found inadequate evidence on the effectiveness of targeted screening in persons who are at increased risk for celiac disease (e.g., persons with family history or other risk factors). The USPSTF found inadequate evidence on the effectiveness of treatment of screen-detected, asymptomatic celiac disease to improve morbidity, mortality, or quality of life compared to no treatment or treatment initiated after clinical diagnosis. Harms of Early Detection and Intervention or Treatment The USPSTF found inadequate evidence on the harms of screening for or treatment of celiac disease. USPSTF Assessment The USPSTF concludes that the current evidence is insufficient to assess the balance of benefits and harms of screening for celiac disease in asymptomatic persons. Evidence is lacking, and the balance of benefits and harms cannot be determined. .... Potential Harms of Screening or Treatment The USPSTF found no trials or controlled observational studies on the harms of screening for celiac disease in asymptomatic populations. Potential harms of screening in asymptomatic populations include false-positive, inconclusive, or unnecessary serologic tests and biopsies, with possible anxiety or complications from testing. However, the USPSTF found no studies on these harms. *** Some persons with biopsy-confirmed celiac disease may never develop symptoms; therefore, overdiagnosis is also a potential concern. *** One small fair-quality trial of treatment with a gluten-free diet16 reported no withdrawals due to major symptoms or complications. The USPSTF found no other studies on the harms of treatment with a gluten-free versus nongluten-free diet in persons with screen-detected celiac disease. " Send Us Your Comments In an effort to maintain a high level of transparency in our methods, we open our draft Recommendation Statements to a public comment period before we publish the final version. Leave a Comment >> ... article continues... this is a link to the comment form: http://www.uspreventiveservicestaskforce.org/Comment/Collect/Index/draft-recommendation-statement150/celiac-disease-screening ------------------------------------------------------------------------------------------------------------------------- I don't agree with the italicized quote myself. It seems they think if you have silent celiac with no symptoms it's ok to keep damaging your body by eating gluten. that just doesn't make sense to me. The comment period seems to be open still, and they have a comment option on that page a the bottom. Since it seems the people doing the research aren't totally aware of the issues related to celiac disease and it's effects, maybe we should leave them some comments. Right now they are saying they are not making any recommendation regarding celiac disease screening due to not having enough evidence of a benefit. That's not an issue I don't think, except in the case of first degree relatives. First degree relatives should be screened as they have a much higher chance of having celiac or developing it. The current draft leaves testing relatives up to the individual doctor. I know my doctor won't test my 2 brothers even though I have celiac disease. That isn't right IMHO. It seems like they should seek input from experts in the field, like Dr Fassano and the U of Chicago celiac center etc. It's a draft recommendation right now though, so they are seeking public comments.
  3. Yep, get tested for celiac. You have plenty of digestive symptoms to indicate it.
  4. Weird Reaction

    Hi Richie, It definitely sounds like you got glutened. Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period. So your barley drink would not be labeled gluten-free here. A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden. So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition. So the immune system starts reacting when it detects gluten and damages the gut lining. An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends. An immune reaction can continue for weeks to months. The immune system is really quite serious about protecting our bodies. And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs. But some celiacs also react to oat gluten.
  5. Hi Nelly, Do you know why you are hypothyroid? Some people with celiac disease also have Hashimoto's thyroiditis, which is an auto-immune attack on the thyroid. They can test you for Hashimoto's thyroid antibodies. Celiac disease irritates/damages the lining of the small intestine. Food protein particles may get in the blood stream and that leads to a reaction by the immune system. Over time an intolerance may develop. It also may be that your food reactions are temporary and will fade away after a while. They probably aren't really food allergies, but are most likely food intolerances instead. Intolerances are a different immune reaction from allergies. Allergies can be managed with anti-histamines, food intolerances can't. Allergies can also be life-threatening in some cases due to the IgE reaction closing the airway. Just some more info, hopefully it will help.
  6. Hi Nelly, I agree with the previous posters. Something else you can try is an elimination diet. Nightshades may by a cause of joint pain. You could stop eating them for a couple months to see if there is an improvement.
  7. Confused

    I think the usual thing is to be on a gluten diet for 12 weeks prior to testing. But you might find an answer here: http://www.cureceliacdisease.org/screening/ Celiac can impact any area of the body, including the brain. There is a thread on the forum somewhere about anger, quick temper, depression talking about effects on people. There is also gluten ataxia, which is gluten related and affects the brain. I think your doctor screwed up by testing you after only 4 days on gluten.
  8. coffee replacement

    Yerba Mate has some caffeine in it. It doesn't taste the same as coffee though.
  9. Nightshades can cause joint pain in some people. You could go ahead and eliminate them now. They don't affect the celiac testing.
  10. Diabetic Diet Choices & Gluten Free

    Hi Jessica, I am not sure what you mean by other good options. Other good options for what?
  11. I'm overweight. You too?

    I think there's a pretty broad lack of understanding of celiac disease among doctors. The high rate of undiagnosed people is evidence of that IMHO.
  12. New to celiac!

    I agree, it is best to get tested before going gluten-free. It's a lifetime condition and that may end up being quite a while after all. Sometimes we talk about gluten withdrawal on the forum. You could look up some threads on that. I expect many people do go through an adjustment period after going gluten-free. Breaking the habit of eating some foods may take a little time. But as you get more used to eating whole foods and simpler foods I think they are more filling and satisfying. It's not just gluten that we give up when we switch to whole foods. We are also avoiding lots of sugar, salt and carbs. Many people stop eating dairy also, at least for a while. I suggest not eating the gluten-free baked goods at first. They are generally not as nutritious as their gluten counterparts. More fat and sugar etc. You should mainly eat meats, veggies, nuts and fruits. There are some non-gluten grains that are ok too. It's just a matter of time and adjusting, but your body may stop craving the gluten after a while.
  13. Some people react to oats also,. Last I checked they say it is small percentage of celiacs who react to them but react they do. Have you checked all medications and pills for gluten? Drinks like tea etc?
  14. Welcome tmarshl, You might want to try carob powder as a replacement for chocolate. It is not exactly the same taste but somewhat similar. Most mass produced chocolate has soy and milk in it anyway. Both are top 8 allergens.
  15. Hi Dominka, You might be having symptoms of gluten ataxia. It would be a good idea to read up on it. Lack of B-vitamins are another possibility as previously mentioned. It's definitely a good idea to see a doctor. I suggest you write down your symptoms before going to the doctor.