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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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  1. I agree Katie, the gluten challenge isn't worthwhile for some people. Regardless of your test results, I think you know the answer is not to eat gluten anymore. I hope you recover quickly from the damage.
  2. Nothing left to eat

    Rice cakes and peanut butter. BRM Mighty Tasty Hot Cereal. Eggs fried over sardines.
  3. Hi Katie, You might want to wait a bit after the testing. Make sure the doctors got the results they ordered. Sometimes a lab will lose someones samples and they have to get re-tested. But when you do start the gluten-free diet, it's best to eat whole foods you make yourself. Meat and veggies with some nuts and fruit should be your primary diet. Try to avoid all the gluten-free baked goods for a while as they are really not that good for you nutrionally. You'll want to take a good quality multi-vitamin too. Some people take liquid B-12 also, as it is supposedly easier to absorb. Recovery from celiac involves changes in your gut biome, and that can cause some bloating and discomfort. Dairy and carbs and sugar will make that worse. So it's good to avoid those for a while also. I suggest peppermint tea for bloating. The first 6 months are sometimes kind of rough for people. That doesn't mean you aren't getting better, just that it takes time for things to improve and settle down. After you begin healing you may find yourself very hungry also. Proteins are a good way to go there. Your body needs to get nutrients to heal tissues properly. Best wishes Katie!
  4. Hi JMG, Your post was long but fun to read. For me anyway. So thanks for taking time to describe your situation! The forum used to have a signature line under each posters name. Often people would list their food intolerances in their signature. Which would be interesting to read for new people. Myself I have quite a few IMHO. I think soy is one of the most troublesome because I believe it leads to other intolerances. But many forum members have developed additional food intolerances beyond gluten. If I was you, I 'd give up soy now. Hint - hint. Have you been tested for vitamin/mineral levels? My vitamin D level is still pretty low after 9 years and taking 10,000 IU a week. Although I suspect my particular brand of vitamin D may be junk at this point. The reason I mention it is that since I have started working on building up my vitamin D levels I have felt better mentally and had some reduction of joint pain. So it might be good to get your levels checked. Believe it or not you are still early in the recovery process and may still experience quite a bit more improvement, including both health-wise and emotionally. I don't think there are very many people alive who don't have regrets over some past events in their lives. And the ones that may exist are probably insufferably irritating! I think people who go through stressful events in their lives are probably a little more rounded than people who are never sick a day in their life. Being just like other people (normal) is not all its cracked up to be IMHO. Yeah, that's the ticket, being normal is not normal! I just wonder if your doctor ever tested you for (DH) dermatitis herpetiformis? That's a skin rash associated with celiac disease. If you have DH, you have celiac disease. Now, where'd I leave that canoe...
  5. gluten free and celiac worsens

    Right, there aren't any quick fixes to celiac disease. It's really helpful theugh to eat a simple diet of home made food, and avoid eating out in restaurants for at least 6 months. Cooking all your own food is helpful because you control the ingredients. Recovery times vary a lot, but 2 weeks is not enough time by a long shot. 18 months to 24 months is probably more like it. But the recovery time depends on how well you avoid any trace of gluten in your diet. Even a crumb of gluten can slow down recovery.
  6. Protein

    Peanut butter on rice cakes is a good snack in the mornings. Bob's Red Mill Mighty Tasty gluten-free cereal is good with a few add-ins like peanut butter, banana, Enjoy Life Choc chips etc. There are several gluten-free wraps available, like Rudi's and Food For Life tortillas. Mission brand corn tortillas are gluten-free also. You can make salmon patties with corn meal instead of bread crumbs, and keep them for a protein snack. Canned salmon has vitamin D and calcium in it, so it's good to eat for those nutrients. Bacon and eggs, or canned sardines are good for you also.
  7. Hi Katie, I have bleeding and pain if I eat dairy. Some people react to dairy protein. I think they call it casein sensitive enteropathy. I also have celiac disease and that could explain your vitamin levels being low. I still have low vitamin D levels after years on the gluten-free diet. Another condition you might want to research is Crohn's Disease. Sometimes people have both Crohn's Disease and celiac disease. Ulcerative colitis is another digestive disease that can cause problems. For celiac disease you need to keep eating gluten as stated above, until all testing ids completed. The usual testing is a blood draw to check for anti-gliaden antibodies and then a follow-up endoscopy to take biopsy samples. http://www.cureceliacdisease.org/page/2/?s=vitamin+d The cureceliac disease site is a good reference for celiac questions.
  8. Right, if you have DH, you have celiac disease. An Endoscopy may not show anything conclusive because the immune attack is focused on the skin, not the gut. That can change over time though. https://celiac.org/celiac-disease/dermatitis-herpetiformis/ ... Blood tests for other antibodies commonly found in people with celiac disease—antiendomysial and anti-tissue transglutaminase antibodies—supplement the diagnostic process. If the antibody tests are positive and the skin biopsy has the typical findings of DH, patients do not need an intestinal biopsy to confirm the diagnosis of celiac disease. Read more at https://celiac.org/celiac-disease/dermatitis-herpetiformis/#6g7ZUmU481jtwaGO.99 ...
  9. Vitamin D supplement?

    There is some good info on the Vitamin D Council website. They say you can't get enough vitamin D from foods (usually), so sunshine or supplements are helpful. http://www.vitamindcouncil.org/about-vitamin-d/how-do-i-get-the-vitamin-d-my-body-needs/
  10. I do Pepto Bismol and aspirin after being glutened. Peppermint tea helps with gas. It really takes very little gluten to cause us to get sick. Flour in the air can linger for hours and settle on dishes etc. But there are some restaurants that seem to work out ok for gluten-free eating. It there is any doubt, I tend to trust side dishes like veggies more than main courses. But it's best to wait awhile on eating out. Cook your own food and learn the in and outs of the diet first hand before you trust someone else's cooking. Eating the food you cook yourself from whole ingredients is a good way to go. Simple foods prepared at home with limited ingredients are best IMHO. The fewer ingredients there are the easier it is to check them.
  11. Hi Sonni, it could be celiac disease. You should get your test results from the doctor and see what they have tested for already. Celiac disease testing is best done before going gluten-free, as the tests depend on active antibodies circulating in the bloodstream. There are antibodie tests and also usually as followup endoscopy. In the meantime you could go dairy free. Many people with celiac have problems digesting diary. It might relieve some of your symptoms Also avoiding sugar and carbs may help. Celiac disease antibodie tests Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA
  12. Mayo clinic has some info for you: http://www.mayoclinic.org/stool-color/expert-answers/FAQ-20058080 Not sure the chart below is really super useful. It's not from Mayo.
  13. Hi Pat, I think if you were consistently eating gluten it would create a higher number. But maybe you got hit by a little cross contamination somehow. Low amounts of gluten in gluten-free foods can add up to enough to cause a reaction sometimes. Some people re4act to less than 10 PPM.
  14. What symptoms after cheating?

    Right, the gluten-free diet is a medical diet, not a weightloss/fad diet. If you want to know about glutening symptoms though, you can search the forum for "glutened" or "cheating". There are a lto of threads on the subject already. There are also threads about doing a gluten challenge where people eat gluten in order to be ready for celiac medical testing. They might have the info you are looking for.
  15. Right, glutening symptoms can go on for weeks or months. The autoimmune reaction is not dependent on the food still being in your body. Your immune system really doesn't want you to get sick from disease or bugs so it keeps attacking for a while after the threat is gone. That's why it is so important to avoid even trace amounts of gluten in your diet at all times. The after effects can last for months. The suggestion to avoid sugar and starches is good. Carbohydrates are bad when first going gluten-free. I think it's best to avoid both sugar and carbohydrates for a few months at least. Carbohydrates turn into sugar in the body and sugar feeds bacteria that can cause symptoms. When your gut is already having digestive upset it's not good to make things worse. Many people have to avoid dairy for a while also, as the gut damage takes time to heal. The body can't properly digest milk sugar without the enzymes made in the gut.