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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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    Painting drawing art!
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    Amesville, Ohio USA

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  1. Hi strawberrymoon, If you are having a blood sugar problem, that can cause nerve damage and tingling. Nerve damage is often associated with diabetes. You can ask your doctor to check your A1C level to get an idea how it has been doing. It would probably help your glucose levels to stick with a paleo style diet, avoiding most carbs. Carbs and meats have a different affect on blood glucose. Carbs tend to spike blood glucose while meats even it out. There are a lot of negative changes that can happen with high blood glucose. It is wise to try and get it under control ASAP. My brother has lost most of his vision in one eye now from high blood glucose. And he has the tingling symptoms you described. The tingling can progress to pain in time. My brother chose to ignore his diabetes and is paying the price for it. He is doing better at it now but the damage is done. Yes, B-12 deficiency can cause those kind of nerve symptoms. But if you have high blood sugar that is the more common cause. Diabetes is not a rare condition.
  2. Hi, It seems they advertise it as a malt beverage. Malt is made from barley normally, so it would not be gluten-free. Unless they specify the malt is corn malt, it is always assumed to be barley malt per FDA labeling regs.
  3. Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body, Have you completed all celiac disease testing? Usually they do the blood antibodies test first and then do an endoscopy. You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods. But if you stick with whole foods it is not hard to avoid gluten. Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet. But there are many foods that are naturally gluten-free. Gluten is the protein found in wheat, rye and barley. Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins). That can make it hard for the body to maintain itself and heal/repair damage. So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them. There are supplements available also, but not all are good. You can check them at the labdoor website. Nature Made is a good one and not expensive. Internal damage from celiac can cause liver issues. Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take months, and can be a rocky road. The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first. But it make stop being a problem after you have healed up some. welcome to the forum!
  4. Hi yams88, The first test usually done for celiac disease is the gliaden antibodies tests. They are blood test that look for antibodies to gliaden protein, which is found in wheat. The next test would be an endoscopy to take biopsy samples for microscopic examination. They look for damage to the villi caused by the immune system attack characteristic of celiac disease. You need to keep eating gluten until all testing is completed. The tests are not designed to work for some one who has not been eating gluten on a regular basis. You may also have an ulcer, per the description of constant pain in the upper abdomen that gets worse with less food in your stomach. You want to get the complete celiac disease panel, which tests for several different antibodies types. Welcome to the forum, hopefully we can help you figure things out.
  5. Hi, you can try reporting your own post. That should alert the site admin of your request. I don't think they can delete your posts, but changing your user name may be possible.
  6. Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten until the tests are all done. The skin problems you describe ma be a condition only celiacs get. The condition is called dermatitis herpetiformis (DH for short), DH causes an itchy rash that is usually symetrical on the body. You get the rash on both arms or legs etc. It makes little blisters on the skin. They are caused by IgA antibodies in the skin. There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies. If they find DH, then you have celiac disease. The 2 conditions are never separate. there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining. But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
  7. Hi Nicky, When you first go gluten-free your symptoms often do change. Feeling better or worse is possible. The healing process is a major change in our gut and that means a big change in the gut flora is likely, which can cause symptoms by itself. Additionally the immune system doesn't stop making antibodies on a dime. the immune system keeps working to defeat the gluten invaders until it is darn good and ready to take a break. You really shouldn't start the gluten-free diet until all testing is completed. That includes a full celiac disease panel and an endoscopy with biopsy samples. It's much easier to complete testing while still a gluten eater than it is to stop gluten and go back on it for testing later.
  8. Hi Kricket, Welcome to the forum! Yes, he could be wrong. Not everyone passes the blood tests. And they are just one part of the diagnostic process anyway, although an important one. Did you have the complete celiac antibodies panel? Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA If you didn't have the full celiac disease antibodies test panel, I'd insist on getting it done. There have been numerous people on the forum who tested positive on one antibody but not on others.
  9. Right, fistulas or fissures are usually associated with Crohns, but not celiac. It is not impossible to have both conditions though.
  10. Hi Kasia2016, Yes, celiac disease symptoms can vary widely. Some people have no symptoms, we call that silent celiac. Other have difficulty walking (gluten ataxia), skin rashes (dermatitis herpetiformis), and thyroid disease (Hashimoto's thyroiditis). The list goes on and on. GI symptoms can vary widely too, from mild symptoms at times to severe symptoms.
  11. Hi egs1707, Welcome to the forum! Irene is right, you should not be gluten-free until all testing is completed. The celiac disease tests are checking for immune system reactions and damage, and when you go gluten-free that starts to decline. So the tests may not show the true immune reaction that is going on or the normal damage. They may not show any damage in fact and you could get a false negative diagnosis. You body starts healing and out the window go the test results. Your doctor gets an "F" grade if they told you to go gluten-free now. But you aren't alone in having a doctor who doesn't understand the celiac disease testing process. Many of them are woefully ignorant of proper testing for celiac disease. That why the current estimate is somewhere in the range of 85% of celiacs in the USA are undiagnosed. It doesn't help when doctors screw up the testing themselves. Or refuse to test people. Which is also far too common. I was vegetarian for 5 years. I am not anymore and don't recommend it. It is hard enough living gluten-free and finding safe food to eat and adequate nutrition for healing a damaged body. I used to eat a lot of soy products when I Was vegetarian, but now soy makes me physically sick. We can sometimes develop reactions to foods we eat a lot of while our guts are inflamed IMHO. Soy is not a healthy food anyway from my reading. I can't do dairy now but may people who start out lactose intolerant end up being able to eat dairy after they have recovered. The best advice I can give is to avoid as much processed food as you can, and eat mostly whole foods you cook yourself at home. When you do cook, cook big, and freeze the leftovers. That way you can quickly take a small portion of food out of the freezer and reheat it. Being celiac it is more important to learn how to cook. Unless you are wealthy all those gluten-free processed foods add up quick. Plus gluten-free processed foods often are lacking in fiber and vitamins. You'll want to watch out for vitamin deficiencies also. Since celiac disease damages the villi in the small intestine, the vitamins and minerals etc are not digested and absorbed well. So celiacs can be low on vitamin D, calcium, and one other one I forget. Vitamin B-12 may be low also ( it is important for nerve health). Then there are some vitamins that vegetarians tend to have problems getting enough of also to consider. Adjusting to living with celiac disease means adjusting to a new diet and some lifestyle changes. There's lots of us that make that change every year though, it's not impossible. You will most likely end up eating better, more nutritious food than many of your peers. And you will avoid a pletora of additional health concerns that can come along with untreated celiac disease. Learning to cook can be an adventure and you may enjoy it once you start. you may find your taste in foods changes once you have been gluten-free for a while too. Recovery from celiac disease can take some months. The immune system is very serious about protecting us and doesn't give up quickly. Also it always remembers so it will react to even small amounts of gluten. I live with gluten eaters at home and I do fine. I just am careful about rinsing dishes off and so forth before using them. There is a Newbie 101 thread at the top of the coping with forum subsection. It may provide some helpful info.
  12. That's great to hear you are feeling better Nightsky. I really think when our GI systems are in distress already that it doesn't take much to set off symptoms. Once I eliminated the other foods that cause me symptoms that helped a lot too. And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides gluten and need to avoid them to keep symptoms at bay. For me nightshades, carrots, soy, dairy, and celery all cause symptoms. It took me awhile to figure out all those food culprits, but it made a big difference getting them out of my diet. But we are all individuals, and our bodies react individually. So you may or may not have additional food intolerances develop. Celiac is one of those life journey things and we learn as we go. Just keep the bottle of aspirin handy!
  13. Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training. Since that probably won't happen, I suggest you find a new doctor. He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing. The testing for celiac disease depends on the immune reaction being active. Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically. The University of Chicago celiac disease center recommends: ******************************************** Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy. That may cause worse symptoms than before when you were eating gluten. So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area? They exist in many parts of the USA and world. They can be a good place to get a knowledgeable doctor recommendation. There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
  14. Hi Kbear, I don't consider myself overweight, I just have one of those pleasing gluten-free beer bellies the girls like so much! I was always pretty slim but did put on some weight after going gluten-free. And getting somewhat old-manish. When I first went gluten-free I had one heck of an appetites and ate like crazy for a while. I figure my body was trying to repair itself and needed lots of nutrients to do the job. I agree with the idea of a low carb, high protein diet. Carbs have a tendency to burn off fast and make us hungry quicker. Proteins are slower to raise blood sugar and keep it at a more even keel for longer than carbs. So a low carb is a great way to go IMHO. Sugar makes you hungry faster is the gist of it. Welcome to the forum!
  15. Hi Besse, I don't think you posted any IgE test results, right? IgE is the immune reaction for allergies. If she does have an IgE reaction, that is very different from celiac disease which is IgA and IgG related. IgE reactions (allergies) are also more dangerous in the short term. If she is having an IgE reaction to wheat she should definitely not be eating any of it at all. Allergy reactions can become more severe suddenly and cause death. Consider the peanut kid stories, those are IgE allergic reactions. I am not sure what your doctor means by a gluten allergy. Gluten is (around here) considered the protein in wheat, rye and barley that causes a celiac reaction. The celiac reaction is not an allergy because it does not involve the IgE antibody. A gluten allergy in theory would mean an IgE reaction to wheat, rye and barley protein. This may seem like quibbling over details abut it is important to understand the IgE reactions are different. Everybody is right about he doctor screwing up. They should not have changed her diet before testing for celiac disease was completed. Including the endoscopy which most doctors require for a full diagnosis of celiac disease. I agree, there is no reason to take someone off gluten to treat lyme disease. That makes no sense. But a people do try alternative treatments for lyme disease because it is hard to cure. So I am not surprised if people are promoting gluten-free as a lyme disease treatment. The gluten-free diet has become popular treating all kinds of conditions in the alternative medicine field. Your daughters' symptoms may vary like the wind. That doesn't change the need for a gluten-free diet if she really is celiac. The human body is a complex thing and has many compensation systems to deal with problems. One of those systems is the immune system. It produces antibodies to fight infections and it;s really good at that job. And once it learns an enemies (germ) identity it never forgets it. Even a tiny amount of gluten can kick of an immune response. When was the last time you saw a measles germ? But your immune system detects them and kills them if you have the immunity. In celiac disease the immune system learns to react to gluten and attack it when it gets in the intestinal lining. The intestinal lining (villi) are in the way to they get destroyed along with the nasty gluten. An immune reaction continues until all the offending invaders are dead and gone. Then it may start tapering off very quickly ( a couple weeks ) or over months. Maybe longer. The villi damage impairs the ability of the small intestine to absorb nutrients. So a child with celiac disease sometimes has short stature because they are basically starving even while eating plenty of food. Vitamin levels may be low and minerals. Fatigue may occur also. Pale or mottled facial complexion and many other symptoms. Celiac disease can affect the entire body. You are correct about symptoms varying. Before I went gluten-free I had days that I was just fine. I also had not so fun days. It was quite variable. I did have problems with projectile vomiting at times. My symptoms often started about 30 minutes after eating gluten. Dairy also caused me plenty of GI symptoms. The intestinal villi also produce enzymes and one of them is lactaze, the enzyme that digests milk sugar. After being on the gluten-free diet a while, some people regain the ability to digest dairy, but not all do. It should affect her test results to stop dairy for a while though. Lactose intolerance can cause plenty of gas and discomfort. Anyhow, welcome to the forum! I am not always so long winded. I hope something in there helps a little.