Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

GFinDC

Moderators
  • Content count

    4,349
  • Joined

  • Last visited

Community Reputation

463 Excellent

About GFinDC

  • Rank
    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

Contact Methods

  • Website URL
    http://www.paulsart.net/
  • Yahoo
    ptfemail2000-GFinDC@yahoo.com

Profile Information

  • Gender
    Male
  • Interests
    Painting drawing art!
  • Location
    Amesville, Ohio USA

Recent Profile Visitors

40,129 profile views
  1. Hi Michael, That's quite a spike in blood pressure! I haven't tested that myself and don't want to if it means I have to eat gluten. Blood pressure testing to identify food reactions is something that has come up before. It sounds like it might be possible but I don't know how much study has been done on it. Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
  2. Hi Megan, Did the doctor test you for celiac disease? You really shouldn't go gluten-free until all the testing for celiac disease is completed. It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO. Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't. Occasionally I get hit but it is rare. Simplifying your diet is a good first step. Avoiding processed foods for a while and dairy also is good. I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out. If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
  3. Hi Diane, One condition that causes excessive thyroid hormone production is called Grave's Disease. I suggest you ask for an ultrasound of your thyroid to check for nodules that might be causing problems. They may find a nodule and want to do a fine needle aspiration (FNA). That just a tiny needle they use to take a biopsy sample. Shouldn't hurt, (that's why they use a tiny needle). Sometimes they do a repeat ultrasound every 6 months to keep an eye on things.
  4. Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. Eat only food you cook yourself, think simple foods, not gourmet meals. Take probiotics. Take gluten-free vitamins. Take digestive enzymes. Avoid dairy if it causes symptoms. Avoid sugars and starchy foods. They can cause bloating. Avoid alcohol. Watch out for cross contamination.
  5. I'm not a doctor but it looks like everything is ok. No inflammation, no h-pylori, no this and no that. Nothing sounds bad. You must be doing something right!
  6. Omission makes me sick. Not that I wanted it too, I kinda liked it. But it didn't like me. I'd avoid it and all gluten reduced beers if I were you. They aren't worth the risk of damage to your body.
  7. Hi Olivia, If the package label says they have wheat in them that's good enough reason not to eat them, regardless of what other people say about it. Companies don't always use the same ingredients in every country, so the ones you are looking at could be different than ones made in the USA. They could even be different in the USA if they were made at a different plant. There is no law against using gluten ingredients in the USA. You can always call the manufacturer to verify.
  8. Hi MelissaNZ, The test should have a range of acceptable results with each test. Different labs often have varying ranges of acceptable levels, so without the ranges the test result is not easy to interpret. Symptoms can vary all over the place. I had alternating C and D before going gluten-free, and sometimes no digestive symptoms. Celiac is really had to diagnose by just symptoms. Some people have no digestive symptoms, but do have skin rashes or thyroid issues or joint paint, headaches etc. Insomnia and fatigue are common also. She probably doesn't need to eat more than a single slice of gluten bread each day to keep the immune response going for testing. It might help her sleep if she eats the gluten first thing in the morning so her immediate symptoms are somewhat past by the time she goes to sleep. Digestive upset is often accompanied by flatulence (gas) made by bacteria in the gut. The gas and pain can make it hard to sleep. Not eating foods that feed the gas making bacteria can help though. Bad foods for the gas are any carbs, sugar, and dairy. Cold foods like jello seem to help stomach pain for me. Peppermint tea can also help as it relaxes stomach muscles and that makes it easier to get gas out. In the USA we have something called Pepto Bismol that can help soothe the gut. But Pepto has aspirin in it and they don't recommend that for kids. After I had been gluten-free a while my reactions changed and I usually had symptoms within 30 minutes or so. Here is a link to the University of Chicago celiac center FAQ. It might help with some more info. http://www.cureceliacdisease.org/faqs/
  9. Hi PLB, The safe way to find out about the gluten status of medications is to contact the manufacturer and ask them. Medications don't fall under the same rules of labeling that foods do in the USA. Your pharmacist should be able to answer that question. It's possible a manufacturer could change ingredients in a medication, so static lists shouldn't be trusted. Mostly meds aren't a problem though. The only ones I've read about possibly being contaminated with gluten are some thyroid medications. They mostly use corn starch as a filler material in pills in the USA. But there is no set rule on it. Ir's just cheaper. You can try searching the forum for the drug name also, but generic drugs are something you'll need to check yourself. Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Ooops! Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. Eat only food you cook yourself, think simple foods, not gourmet meals. Take gluten-free vitamins. Take digestive enzymes. Avoid dairy if it causes symptoms. Avoid sugars and starchy foods. They can cause bloating. Avoid alcohol. Watch out for cross contamination. I tried those Omission gluten removed beers a few ties. They made me sick. Redbridge is a gluten-free beer made from sorghum, and there are a few others. I think you are on the right track by him going gluten-free. If his symptoms are improving, even slowly, that's a good indicator that gluten is a problem. Testing for celiac is probably not going to work at this point, it's been a while. It's nice to know for sure, but the treatment is the same either way, the gluten-free diet. Doctors will sometimes test people for vitamin deficiencies and celiac antibodies once a year if they are diagnosed. The gluten-free diet can be a very healthy diet if you stick to whole foods and mostly avoid the processed gluten-free foods. Breads and such. Mission corn tortillas are a low cost sub for bread and widely available.
  10. Hi PLB, If he hasn't been gluten-free very long, he might still be able to get blood testing done for the gliaden (gluten) antibodies. More than a couple weeks may be too long tho. As far as recovery, it varies from person to person. The condition associated with celiac that you are thinking of is probably gluten ataxia. Gluten ataxia is an antibody attack on the brain cells that can cause problems walking and controlling muscles. Generally it seems people consider nervous system healing / recovery to be a fairly slow process. Although it sounds like your husband is experiencing some recovery already, which is great! I've read about coconut having benefits for people with alzhiemers disease, but don't know if it would help him. I doubt it would hurt though. The B-vitamins including B-12 are supposed to be very important for nervous system health. Vitamin d is also important but make sure you take a supplement that is tested and reliable. Check out https://labdoor.com/ for their review/test results. Dr. Hadjivassiliou has done some research on gluten ataxia and you might find reading his information helpful. Nuerological symptoms without gastro symptoms http://www.ncbi.nlm.nih.gov/pubmed/20170845 Dietary treatment of gluten ataxia http://jnnp.bmj.com/content/74/9/1221.full Ubo's, Epilepsy And Celiac Testing for celiac disease usually starts with a blood antibody test and then a endoscopy to check for gut damage. If a person has been off gluten for a while though, the tests are not much use. The antibodies in the bloodstream start to drop off and may not be detectable anymore. They usually say to eat gluten for around 12 weeks in that case before trying testing again. I can understand why he wouldn't want to do that though considering his symptoms. I am not sure it would be a good idea. Welcome to the forum and congrats on finding away to improve his condition! If you turn on the notify me of replies slide button near the bottom left of the reply screen you can get an email when you receive responses to your thread. There is some helpful info in this thread about celiac disease.
  11. Hi Elle, The celiac testing process usually includes a blood test for gliaden antibodies first, and then an endoscopy to take biopsy samples of the small intestine to check for damage. So while it's good to get the celiac panel done, don't go gluten-free until the whole testing process (including endoscopy) is completed. Vitamin deficits are a problem in celiac disease, so that issue does match up. Anxiety and digestion problems are common too. Celiac is tied to a few genes, so if your mom has it, you might have it also or might develop it at some point in life. Don't be too scared of it if it does turn out to be celiac disease. The gluten-free diet can be a big change but the end result of it is you'll feel better. You'll probably end up eating better more nutritious food than most people also. Celiac is a great disease in one way, because we know the trigger (gluten) and can treat ourselves with diet. Most times doctors don't know the cause of autoimmune diseases and can't do anything but medicate the patient. Our medicine is food. Yum!
  12. You are welcome Chris. The vitamin D council site linked below has info on how much vitamin D we need and how much sun is needed to get it, what foods contain it etc. Around my neck of the woods I can only get UVB rays (needed to make Vitamin D in skin) from 10 am to 2 pm. So a food source or vitamin pill is a good option, Especially in winter when you probably won't get any V-D from sun exposure. Foods sources are mackeral, salmon, tuna and a few plants like spinach and kale. You can find a review of various V-D brands on the labdoor website. Some pills are useless so it pays to verify you are taking a good one. http://www.vitamindcouncil.org/about-vitamin-d/ https://labdoor.com/rankings/vitamin-d
  13. Pretty sure that's what I had for a while, adrenal fatigue. I started getting some selenium in my diet to fix it. It made a big difference. Brazil nuts are great for selenium, just don't overdo them because selenium isn't eliminated quickly. It can build up to toxic levels if overdone.
  14. That sounds like a plan JMG. If things aren't working then make a change, hopefully a positive change. It seems to me we have more noticeable symptoms sometimes after being gluten-free a while. I made a mistake last night and ate some tuna canned in water. It definitely wasn't boring. I usually have more sense than to eat tuna canned in water but screwed up last night. They canned it in broth of some sort. Ingredients say vegetable broth and soy. Yuck, not good for me. It sure tasted good though, just ouch. I am not saying it had gluten in it, but it does have soy and some kind of unnamed veggie monsters. So it could be soy, or carrots or some other disgusting vegetable that got me. Not all celiacs have additional food intolerances beyond gluten, but some do. My gut could testify to that. Anyway, if you have bloating, cut out all carbs and sugar for starters. And try peppermint tea or Altoids. Over here we have something called Pepto Bismol that helps soothe gut pain and another neat thing called aspirin. And gluten-free beer as needed.
  15. Jean, Maybe your boss can find you a job in the office for a while? It's worth asking maybe? It's not easy being on constant travel with celiac disease but it can be done. Your effort to find safe food is going to be harder than most but it is not impossible. But if you can't manage it you should really think about getting a non-travel job. Your boss may be willing to work with you on an office position, even if it's temporary. That would give you some time to look for a local job and also eat a safer diet. It's really up to you to control your diet and make sure it is safe. If you can't figure out how to do that while traveling you owe it to yourself to figure a way out of the travel. Celiac disease isn't always fun and games. Not always. I hope you find a way to improve your circumstances.