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GFinDC

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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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    http://www.paulsart.net/
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    ptfemail2000-GFinDC@yahoo.com

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    Painting drawing art!
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    Amesville, Ohio USA

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  1. Hi Fidel, The original poster hasn't been on the site for several years, so you may not get a response from them. But welcome to the forum!
  2. Hi Megan, Regarding dairy, celiac disease damages the villi that make the lactase enzyme that digests milk sugar (lactose). So sometimes people can't digest dairy well when they first start the gluten-free diet. Over time that may change as you heal. The ability to digest dairy doesn't always come back, but it may. Throwing up can be caused by excess gas in the stomach. That's pretty common when starting the diet. Sugar and carbs will make it worse. Udi's bagels are made of various flours so they are full of carbs. Carbs are turned into sugar in the body and that feeds the bacteria, hence the gas. You could be reacting to various foods, so eliminating one problem food is not going to fix all the problems. I think it would be more helpful to start by following the tips in my earlier post than to try a full fledged elimination diet at this point. Elimination diets can take a while to do. If you can stick to eating meats, vegetables, nuts for now that is a good thing. No processed foods (like Udi's) or other baked goods. This is probably the fastest way to get better and learn what is safe to eat. Once you are feeling better for a few weeks then you can try adding in one new food a week and see how it goes. The gluten-free diet is a lifetime commitment so you may as well start out right and take your time. Whole foods are a good way to go at the beginning. If you cook your own food you know what is in it. That's important to know for us. Avoiding any processed food with more than 3 ingredients is also good. The fewer ingredients you are eating the simpler it is to figure out a problem. I wouldn't worry about the idea of the throwing up thing making you react to dairy. Celiac is known to cause a problem with dairy intolerance.
  3. Hi Alok, I suggest not eating any soy. Soy is one of the top 8 food allergens in the USA. Soy has other things about it that are not helpful to us. Plus it is often sprayed with pesticides that are not so great for people. Maybe you can try some other food for a while? Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
  4. Hi Calla, I think the safe answer is 12 weeks on gluten for a blood test. I am pretty sure they say 2 weeks on gluten for the gut endoscopy. But usually people/doctors don't want to do an endoscopy before a positive blood test, so catch 22 there. There's a chance you still have active antibodies in your blood after 3 weeks off gluten. But nobody can tell you for sure. If you can get you doctor to test you now and in 9 more weeks if you are negative now, that might work. If the doctor is willing to do 2 tests, that would be great. The best thing would have been to do all celiac disease testing before going gluten-free. But sometimes it doesn't work out that way. The University of Chicago celiac center has an FAQ that answers some of your questions. http://www.cureceliacdisease.org/faq/i-dont-have-the-money-to-get-tested-for-celiac-disease-but-a-gluten-free-diet-makes-me-feel-better-is-it-okay-to-start-the-diet-without-being-diagnosed/ Welcome to the forum!
  5. That's good Megan, that you were tested. Many people have the genes, but only some develop the disease. Your doctor is right about celiac often appearing after some kind of physical stress or illness. The tricky thing about eliminating one food is that you body may be reacting to multiple foods. So not getting better could mean you just eliminated one problem instead of 3. It's not unusual to have digestion issues for quite a while after going gluten-free. Our guts are damaged and that damage has to heal. But it can't heal until the immune system stops it's attack. The immune system attack/reaction can keep going for weeks to months. So it can be a slow recovery. Often people report getting better and then getting worse and going back and forth on symptoms. What doesn't help is that our bacteria in our guts can get really screwed up by the disease process. We can't properly digest things so there is more undigested food for bacteria to thrive on. Avoiding sugars and carbs can help with that issue. Here are some starting the gluten-free diet tips for the first 6 months. Some of these you have already taken care of: Get tested before starting the gluten-free diet. Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. Eat only food you cook yourself, think simple foods, not gourmet meals. Take probiotics. Take gluten-free vitamins. Take digestive enzymes. Avoid dairy if it causes symptoms. Avoid sugars and starchy foods. They can cause bloating. Avoid alcohol. Watch out for cross contamination. Helpful threads: FAQ Celiac com http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/ Newbie Info 101 http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/
  6. Hi Michael, That's quite a spike in blood pressure! I haven't tested that myself and don't want to if it means I have to eat gluten. Blood pressure testing to identify food reactions is something that has come up before. It sounds like it might be possible but I don't know how much study has been done on it. Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
  7. Hi Megan, Did the doctor test you for celiac disease? You really shouldn't go gluten-free until all the testing for celiac disease is completed. It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO. Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't. Occasionally I get hit but it is rare. Simplifying your diet is a good first step. Avoiding processed foods for a while and dairy also is good. I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out. If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
  8. Hi Diane, One condition that causes excessive thyroid hormone production is called Grave's Disease. I suggest you ask for an ultrasound of your thyroid to check for nodules that might be causing problems. They may find a nodule and want to do a fine needle aspiration (FNA). That just a tiny needle they use to take a biopsy sample. Shouldn't hurt, (that's why they use a tiny needle). Sometimes they do a repeat ultrasound every 6 months to keep an eye on things.
  9. Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. Eat only food you cook yourself, think simple foods, not gourmet meals. Take probiotics. Take gluten-free vitamins. Take digestive enzymes. Avoid dairy if it causes symptoms. Avoid sugars and starchy foods. They can cause bloating. Avoid alcohol. Watch out for cross contamination.
  10. I'm not a doctor but it looks like everything is ok. No inflammation, no h-pylori, no this and no that. Nothing sounds bad. You must be doing something right!
  11. Omission makes me sick. Not that I wanted it too, I kinda liked it. But it didn't like me. I'd avoid it and all gluten reduced beers if I were you. They aren't worth the risk of damage to your body.
  12. Hi Olivia, If the package label says they have wheat in them that's good enough reason not to eat them, regardless of what other people say about it. Companies don't always use the same ingredients in every country, so the ones you are looking at could be different than ones made in the USA. They could even be different in the USA if they were made at a different plant. There is no law against using gluten ingredients in the USA. You can always call the manufacturer to verify.
  13. Hi MelissaNZ, The test should have a range of acceptable results with each test. Different labs often have varying ranges of acceptable levels, so without the ranges the test result is not easy to interpret. Symptoms can vary all over the place. I had alternating C and D before going gluten-free, and sometimes no digestive symptoms. Celiac is really had to diagnose by just symptoms. Some people have no digestive symptoms, but do have skin rashes or thyroid issues or joint paint, headaches etc. Insomnia and fatigue are common also. She probably doesn't need to eat more than a single slice of gluten bread each day to keep the immune response going for testing. It might help her sleep if she eats the gluten first thing in the morning so her immediate symptoms are somewhat past by the time she goes to sleep. Digestive upset is often accompanied by flatulence (gas) made by bacteria in the gut. The gas and pain can make it hard to sleep. Not eating foods that feed the gas making bacteria can help though. Bad foods for the gas are any carbs, sugar, and dairy. Cold foods like jello seem to help stomach pain for me. Peppermint tea can also help as it relaxes stomach muscles and that makes it easier to get gas out. In the USA we have something called Pepto Bismol that can help soothe the gut. But Pepto has aspirin in it and they don't recommend that for kids. After I had been gluten-free a while my reactions changed and I usually had symptoms within 30 minutes or so. Here is a link to the University of Chicago celiac center FAQ. It might help with some more info. http://www.cureceliacdisease.org/faqs/
  14. Hi PLB, The safe way to find out about the gluten status of medications is to contact the manufacturer and ask them. Medications don't fall under the same rules of labeling that foods do in the USA. Your pharmacist should be able to answer that question. It's possible a manufacturer could change ingredients in a medication, so static lists shouldn't be trusted. Mostly meds aren't a problem though. The only ones I've read about possibly being contaminated with gluten are some thyroid medications. They mostly use corn starch as a filler material in pills in the USA. But there is no set rule on it. Ir's just cheaper. You can try searching the forum for the drug name also, but generic drugs are something you'll need to check yourself. Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Ooops! Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. Eat only food you cook yourself, think simple foods, not gourmet meals. Take gluten-free vitamins. Take digestive enzymes. Avoid dairy if it causes symptoms. Avoid sugars and starchy foods. They can cause bloating. Avoid alcohol. Watch out for cross contamination. I tried those Omission gluten removed beers a few ties. They made me sick. Redbridge is a gluten-free beer made from sorghum, and there are a few others. I think you are on the right track by him going gluten-free. If his symptoms are improving, even slowly, that's a good indicator that gluten is a problem. Testing for celiac is probably not going to work at this point, it's been a while. It's nice to know for sure, but the treatment is the same either way, the gluten-free diet. Doctors will sometimes test people for vitamin deficiencies and celiac antibodies once a year if they are diagnosed. The gluten-free diet can be a very healthy diet if you stick to whole foods and mostly avoid the processed gluten-free foods. Breads and such. Mission corn tortillas are a low cost sub for bread and widely available.
  15. Hi PLB, If he hasn't been gluten-free very long, he might still be able to get blood testing done for the gliaden (gluten) antibodies. More than a couple weeks may be too long tho. As far as recovery, it varies from person to person. The condition associated with celiac that you are thinking of is probably gluten ataxia. Gluten ataxia is an antibody attack on the brain cells that can cause problems walking and controlling muscles. Generally it seems people consider nervous system healing / recovery to be a fairly slow process. Although it sounds like your husband is experiencing some recovery already, which is great! I've read about coconut having benefits for people with alzhiemers disease, but don't know if it would help him. I doubt it would hurt though. The B-vitamins including B-12 are supposed to be very important for nervous system health. Vitamin d is also important but make sure you take a supplement that is tested and reliable. Check out https://labdoor.com/ for their review/test results. Dr. Hadjivassiliou has done some research on gluten ataxia and you might find reading his information helpful. Nuerological symptoms without gastro symptoms http://www.ncbi.nlm.nih.gov/pubmed/20170845 Dietary treatment of gluten ataxia http://jnnp.bmj.com/content/74/9/1221.full Ubo's, Epilepsy And Celiac Testing for celiac disease usually starts with a blood antibody test and then a endoscopy to check for gut damage. If a person has been off gluten for a while though, the tests are not much use. The antibodies in the bloodstream start to drop off and may not be detectable anymore. They usually say to eat gluten for around 12 weeks in that case before trying testing again. I can understand why he wouldn't want to do that though considering his symptoms. I am not sure it would be a good idea. Welcome to the forum and congrats on finding away to improve his condition! If you turn on the notify me of replies slide button near the bottom left of the reply screen you can get an email when you receive responses to your thread. There is some helpful info in this thread about celiac disease.