This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
She should read the newbie 101 thread at the top of the forums. It has some advice that can help beginners. The biggest thing is to avoid eating even tiny amounts of gluten. The celiac reaction is auto-immune and it only takes a very small amount of gluten to kick off the reaction. The gut can't heal while the immune reaction is ongoing. So she can't fully absorb nutrients until the reaction stops and she has some time to heal. The immune reaction may take months to stop completely.
A good diet to follow is whole foods cooked at home, and avoiding most processed foods. Some people can't eat dairy without issues for about 6 months or so.
Hi, My younger brother had both Crohn's and celiac disease. So it's possible to have both conditions. If you read some of the Crohn's forums people sometimes follow the gluten-free diet for Crohn's. Some find it helpful, others don't. I wouldn't rule out taking drugs for Crohn's myself. From what I understand, sometimes people take a drug until they go into "remission" and then they stop or take a lower, maintenance dose. There's an awful lot not known about Crohn's still. But if drugs can prevent having to get a surgery, it seems worthwhile to take them, IMHO.
I don't remember if you had done an elimination diet? Even if you have, it might be a good idea to try another one. Gluten isn't the only food that can make us sick. We can develop reactions to many different foods. Another thing to try might be eating Brazil nuts. Someone suggested that to me a while back and it helped my energy levels a lot. They have a lot of selenium in them. A couple a week is plenty if you are deficient. Too many is not good though.
If he has pain and rectal bleeding from eating gluten now, it won't change that if he is diagnosed with celiac. The only treatment for celiac disease is total gluten avoidance, which you are already doing for him. Maybe it would be better to wait until he has grown some and is a little older before trying a gluten challenge and diagnosis for celiac.
Her symptoms may not disappear in just a few days. It depends on what the situation in her gut is to begin with, and also what kind of reaction she is having. If her gut is inflamed and irritated by something other than dairy, the symptoms may not change at all. Or if the problem is dairy and some other food also, eliminating just one of the irritants may not resolve the symptoms. If your whole house is on fire and you put out the fire in one room, that doesn't mean the house is ok.
Usually lactose intolerance causes symptoms including bloating and flatulance, possibly constipation and diahhrea, possibly pain and discomfort. If I did eat dairy I'd get all those fun symptoms. In addition I'd get abdominal pain, and some bleeding with bowel movements. I most likely have a casein intolerance as well as lactose intolerance. The symptoms for me would take a week or 2 to resolve mostly. Removing foods to test for food intolerances is best done for a sufficient time to remove any doubt. Two weeks is a pretty good test IMHO. But that's only if you know there are no other foods causing problems. If you don't know that, then removing foods one at a time can be pretty unreliable.
I react to grapes also, but not like i react to gluten. I get more of an allergic type reaction. One idea about other food intolerances we develop is that the prolonged gut irritation can somehow cause the body to develop reactions to other foods besides gluten. That could be why some people on the forum have many additional food intolerances listed in their signatures. It's possible for a totally random food intolerance to develop after your gut is irritated for a long time. Perhaps more likely with foods that you eat often. Some people follow and rotation diet in part to avoid intolerances from developing.
You could ask your doctor to suggest something to soothe your GI system. Over here in the states I'd say try some Pepto Bismol but I don't know if they have Pepto or something like it in your neck of the woods.
Fistulas can happen sometimes in Crohns patients. The fact that you had symptom reduction on a gluten-free diet is good to know. Some people with Crohns go gluten-free and have improvements. It is possible to have both celiac disease and Crohns at the same time.
There are some tests for food intolerances, but not many. Sometimes the best test is what your body tells you by it's reactions. A food elimination diet can help pinpoint foods that cause reactions.
It's pretty neat that you are willing to try and learn about our situation.
Here's some background info for you and threads that might be interesting. You "DO NOT" have to read all this stuff!
I made a list of tips for gluten-free beginners a while back. Here they are:
Some starting the gluten-free diet tips for the first 6 months for interest:
Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy if it causes symptoms.
Avoid sugars and starchy foods. They can cause bloating.
Watch out for cross contamination.
Falling off the gluten-free wagon Post #37 http://www.celiac.com/gluten-free/topic/67218-falling-off-the-gluten-free-wagon/?hl=%2Bfalling+%2Boff+%2Bthe+%2Bgluten-free+%2Bwagon
How bad is cheating? http://www.celiac.com/gluten-free/topic/94443-how-bad-is-cheating-on-the-gluten-free-dietperiodically/
An elimination diet is pretty simple really. You don't need to read a lot of theories about it or prescribed foods to eat etc. Just pick out 5 foods that you don't think will bother you and eat only those foods. After 2 weeks if you feel better then you are most likely ok with those foods. So pick out one additional food to add to your diet, again something that you don't think you will react too. It your same diet with plenty of that new food for 3 days. If you get sick then that new food is probably the reason. So eliminate it and try again.
Everything counts though, coffee, tea, sodas, spices, vitamin pills, meds, etc. Anything you consume is a potential problem, not just food.
A brain in the head, a brain in the gut NY Times (serotonin, gut depression link) http://www.nytimes.com/2005/08/24/health/24iht-snbrain.html?pagewanted=all&_r=0
Zero gluten for some celiac patients can help. Fassano article http://www.biomedcentral.com/1471-230X/13/40
Ubo's, Epilepsy And Celiac http://www.celiac.com/gluten-free/topic/20198-ubos-epilepsy-and-celiac/?hl=%2Bunidentified+%2Bbright+%2Bobject
I agree with everything said before. Some real good advice there. One thing that helped me a lot with fatigue was taking selenium. I had been taking vitamin pills but they didn't have any selenium in them. Some people suggested eating Brazil nuts (high selenium) once in a while and that helped a lot. Another thing that helped was making sure there was enough iodine in my vitamins and using iodized salt instead of sea salt. And stopping coffee.
When you have celiac disease your intestine can become damaged and not absorb vitamins efficiently. So it can be important to take vitamins even if you are eating a healthy diet. We just need more vitamins incoming to absorb the same amount as everyone else. That should change as we heal tho and return to a more normal absorption rate. All this is IMHO. It's good to go by the vitamin level testing as you have been doing. Getting a copy of your test results and checking them yourself is important tho. You don't want to be a the very lowest edge of the ranges, or at the high end.
We don't all have the same food issues. Some people find stopping dairy for a while helps them feel better and digest better. Other find additional food intolerances beyond dairy over time. It's a learn as you go process.