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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

strack2004

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  1. Hi all! Maybe Joe's doctors knew him well enough to know they couldn't really control all that he did to himself at home and other places. So they just did the best they knew how with medicines to treat all the stuff he did to himself. Someone else said many of the pills may have been vitamins and minerals in individual pills. Just another idea Cheers, Ruth S. Strack2004
  2. celiac3270, I'm happy for you, too. It must be wonderful! If that sounds a little wistful, it is, I'm headed for Mayos on April 13 to see if they can find what ails me. Cheers, Ruth - Strack 2004. I see there is another Ruth who posts.
  3. celiac3270, I'm happy for you, too. It must be wonderful! If that sounds a little wistful, it is, I'm headed for Mayos on April 13 to see if they can find what ails me. Cheers, Ruth - Strack 2004. I see there is another Ruth who posts.
  4. Hi! Yes I have been on the SCD diet for 6 almost 7 months.. I have lost weight and for a time I had a lot more energy. I still sleep fairly well except for waking for the bathroom. I drink too much water in the evening. The diet never did really help my digestive problems. Have just spent 5 days in the hospital over them. Fortunately this hospital had a plan whereby patients can pick their meals from a restaurant like menu. I was interested to see on another post some comments about possibly getting into trouble after losing weight. I have gone down from around 150 lbs. at the b eginning of last summer, to between 120 and 125. The Dr. isn't worried about it. Digestion wise, I am awakened during the night or from a nap and sometimes during waking hours with an alarming burning that seems to go up from a sore place under my right ribcage up into my throat. The burning comes to a peak and recedes to a steady burn. In the hospital I had an upper gastroscopic exam which located the sore spot under my ribs. It is not an ulcer. Biopsies were taken, Also was tested for H. Pylorus which came back negative. Am presently taking cytotec, 4 times a day with meals, lexipro, and Prilosec. Was supposed to take Protonix, but my insurance wouldn't pay for it. Anyway, had taken that for the better part of a year without significant help. Also had a colonoscopy which showed what I already knew that I have an overlarge bowel that is very floppy. One X-ray I had along time ago showed the upper right hand corner flopped over on itself. To my mind this could cause a backup of stool that would account for my constipation thing. I guess I get worried that this cytotec could back up in my system. So I called the Dr. and he said to cut the dose in half. This is getting long again. I was feeling some better, but now am worse again. Strack. p.s. was never diagnosed with celiac, just use the diet because it is also supposed to be good for other digestive problems.
  5. Shouldn't Celiac3270 Be Back On Line By Now?

    celiac3270, I didn't realize that you had been hospitalized. I am glad to hear that you are home again after your second hospital visit and pray that this surgery will be the answer for you. Cheers, Ruth S. Strack 2004
  6. Red345, I hope this signing off 5 days early doesn't mean you won''t post your paper. I am looking forward to reading it. Think I have given you my email address, so please put it on there if you don't post it here. If you don't have it, let me know. Strack2004
  7. Hi, Red. I have not yet attempted to answer your questions, since I still haven't been diagnosed with celiac. I have been gluten free for 6 months now . Feel I have more energy and sleep sounder except for bathroom breaks, go right back to sleep though which I didn't used to do. How do I go back some 76 years to find the answers to some of these things. Would you like me to try, or would it be of no help since there is no diagnosis and no real help with digestive problems? Will check back to see what you think. Ruth
  8. Hi, Red. I have not yet attempted to answer your questions, since I still haven't been diagnosed with celiac. I have been gluten free for 6 months now . Feel I have more energy and sleep sounder except for bathroom breaks, go right back to sleep though which I didn't used to do. How do I go back some 76 years to find the answers to some of these things. Would you like me to try, or would it be of no help since there is no diagnosis and no real help with digestive problems? Will check back to see what you think. Ruth
  9. Dizzy., I have been on an SCD celiac diet for about 5 and a half months now. I had blood tests via Mayos which were negative. Do not wish to have the biopsy. My understanding, too is that the blood tests are not to be trusted. I, too, have not done the stool test which I would like to have done. Just can't afford the tests . I am on Medicare and they do give a discount, but it still seems too much. So I do not know if I am a celiac person or not. So far I have had not relief from my constipation. Have had some relief from upper abdomen, under the right center ribcage sharp pain. It still comes once in a great while. More common is a kind of burning which is sometimes stronger and sometimes vague. Have had my gall bladder removed, unfortunately last winter. I may be having trouble with fats and with b ile going directly into my small intestine. I have experienced much better sleep patterns and much better energy levels. The diet I use is called The Selected Carbohydrate Diet . You can find lists of legal and illegal foods at http://www.breaking through the vicious cycle.info/ . Because I know that I am lactose intolerant, I cannot use all the foods allowed on the diet. I also don't get along with tomatoes and acid type fruits, which is very limiting. I keep a food journal . Think one of my problems is that even within the dietary limits, I tend to change too many variables at one time. This is especially true of supplements, vitamins, minerals , the O.T.C. stuff. All that I take is supposed to be gluten-free, but I sometimes wonder how the people who answer the phone when you are checking out their product, get their information. There are so many other things out there that can contribute to ibs, which I have had since early childhood, though I didn't get a diagnosis until 15-20 years ago. In other words, it wasn't called ibs. I am now 76. I sometimes wonder if my present constipation is complicated by the fact that I had 6 children in 10 years and did not do any particular exercises to keep my abdominal muscles in shape. Now I walk and do sit-ups in the tub, but don't think that is enough to toughen those muscles very much. There are other things that play in , too. This is long enough for now. Cheers, Ruth
  10. Sc Diet

    Hi, Cynical Tomorrow!, I am Strack2004. Have been on the Scdiet 5 months today. In general I note that I am sleeping ever so much better than before I went on this diet. Also, generally I have more get-up-and-go. Also my sharp pain under my right center ribcage comes less frequently. There is still some discomfort there from time to time. Today I am more than a little uncomfortable, but yesterday I yielded to temptation and ate a little sample of buttered bread at Cashwise. Within half an hour I had a burning in my upper ab. This afternoon, 24 hrs. later, my ab is generally uncomfortable. This could also be because I have been experimenting with using store-bought kefir, a cultured milk product. I have taken 3 swallows of it with 3 lactase tabs several times a day. Am starting to learn how to make water-based kefir at home. The first batch didn't work because I used too much water for the amount of kefir grains. My principle digestive problem is constipation rather than the diarrhea most celiacs seem to have. That is still unresolved. I agree with celiac3270 about being careful with milk products. I am lactose intolerant. Have not been diagnosed with celiac, but felt this diet is a good basis for sorting out what foods and medications may be giving me trouble. celiac3270 is right, the diet is very limiting. I have learned to enjoy the flavors of the foods I do eat in different combinations. I don't get along with the tomato, potato family so that lets out tomatoes. Am not sure if it's the tomatoes themselves (acid) or the seeds that give me trouble. Eventually I will try juice, but need to get this kefir thing going right now. I can post some urls for kefir if you are interested. One more benefit from the diet is that I have lost quite a little weight. Have leveled off now at about 125 lbs. Last winter I weighed in at around 160. I lost some of that before the actual diet, though. I use the lists that celiac3270 suggested. Cheers,. Ruth S.
  11. Milk Contains Gluten!

    yes, but isn't it the lactic acid in milk that makes it give trouble to lactose intolerant people. Is the lactic acid in sugar beets andy different from the lactic acid in sugar beets, or is lactic acid altogether different from lactose? Ruth S.
  12. Getting Up All The Time?

    Hi! I have been gluten-free for 5 months now. My principal benefits have been better sleep and more energy. I still get up once a night, once in awhile twice if I drank water during the evening, eating fish will also do it sometimes. I have no trouble getting back to sleep or getting to sleep in the first place which I used to have. I am still working on other foods that may bother me. I am on the SCD diet, so am not eating rice, potatoes, yams, etc. Have been experimenting with kefir the past week, using lactase with it since I am also lactose intolerant. I suspect it is giving me trouble, though. I did enjoy the flavor!, but it's not worth it to mess up the holidays. I think the body has to get used to something like that, but this is not the time. The increased energy is a plus. I don't take even naps any more. Once in while I still get drowsy when reading or watching tv. but not as often as I used to. I find when watching reruns, that I recognize that I have seen the beginning, but the ending is brand new to me! Cheers, Ruth
  13. Nancy: Sorry about the URL! I guess I used to get this site with that one, but now I get a message that the site is discontinued. It's true that version of the site has been discontinued. Here is a URL I just tried out. http:www.scdiet.org/. Put that in at the top of your screen where it says Address. When it comes up, clickon "about" go to the left side of the page in the dark blue section. Click on visit Elaine's official website: Breaking The Vicious Cycle.info. If you click on the other items youll find still more information about celiac. Hope this works. Cheers, Ruth (Strack)
  14. Corihere I have not been diagnosed with celiac disease, but have had digestive problems most of my 76+ years. Just decided to go on it. My Doctor gave me his blessing and continues to be encouraging. I have been celiac disease on the SCD version of the diet for 4 months now. Improvements have been increased energy and better sleep patterns. My digestive problems are still there. I also have pain under my right center rib cage. I can poke (gently) the exact spot. Have recently had an ultrasound which came back normal. I guess the next step is an MRI. I have had 3 colonoscopies. During the first one a small polyp of a kind that can turn cancerous was removed. The other two were clear so I don't have to have another one for 10 years, which surprises me. I was one of those who go to sleep from the anesthetic. I felt nothing and had no memory of the procedures. I do notice that my ribcage pain gets worse when I eat acidic foods. Have been drinking lemon in my tea since I have had a cold. My pain has been worse. I have lost weight on the Selected Carbohydrates Diet, but I had it to lose. Now I could probably get into my wedding dress, except that my shape is a bit different from having had 6 children and not really getting into shape between or since then. My abdominal muscles definitely need toning! Cheers, Ruth STR.
  15. Nancy, Another celiac site is http://www.breakingthroughtheviciouscycle.info. This site is designed for celiac, ibs and other digestive problems. It contains an extensive list of legal and illegal foods. Some pharmaceuticals are given in the main list. Not a whole lot. Possibly another area of the site would contain that kind of information. Strack