This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Well I think for me it isn't necessarily Celiac...but probably a spectrum of intolerance with dairy and wheat.
I think for me its about knowing how to eat these foods...and listening to my body. My problems in the past were from not eating them correctly...gulfing down these foods. If I ate enough of them fast, it literally could put me in a opiate haze... and also just having tons of undigested or slowly digesting food could dull me way down.. so I was using it like a drug.
But I realized from eating different ways over the years how you can do the same thing with a chicken and rice dish.
Right now I just feel pretty good.
But one thing also, is that I was looking for some magic-ticket to be happy all the time... what I really found was that eating certain ways can make you not have so much gunk inside you...so you can feel lighter, and feel things more and get highs from a spiritual level...
What has been helping me the most is to become more social... to get more friends and have good times. To care about other people. These simple things make you feel great, connected... not self-centered. And I eat less because I get nourishment from socializing.
I started eating wheat again a few months ago, and basically been eating it everyday.
I guess gluten-free showed me what wheat really can do...
I still think it oddly contributes to depression...but only if I start eating too much of it... I think its just if I eat it too much, and that includes diary too...then it starts clogging me up inside more than my body can clean itself...so I start feeling very stagnant which then can setup depressive feelings. But honestly this has only happened a few times the past few months, and if this happens I know I need to drink some wine, some water... exercise...and just eat cleaner things for the next 4 hours or so...
I am just now more aware of what I'm doing... aware of how it can affect me.
Before I used to just eat wheat almost subconsciously...and dairy... and not only that...but eat it very fast and not even chew it well... most of the time. That is the worst way to eat that stuff...since you can't digest it that way.
So now when I eat dairy or wheat... I just try to eat it very slowly and chew very well...although I've only been doing that the last week or so...it really seems to help. But before when I started eating wheat a few months ago, I would just eat it once a day... drink more wine...drink more fluids and apple cider vinegar...stuff to help clean out the system...
Right now I'm actually trying to eat more raw fruits and veggies...since they digest super well, and don't make you feel any slightest bit tired and make you feel something high in some ways. Its just good. I don't think I'd ever become a raw vegan or anything but I think its good to eat more stuff like that.
Good luck to everyone. I think I'll be okay... but maybe my villi will suddenly go out on me and i'll come crawling back. Haha...but in all honesty I'm glad I went through this journey because at least I have the power of knowledge. I don't think my villi were getting damaged, I just think I may not digest wheat or dairy SUPER well...although I still can digest it. I just have to not be unconscious about my consumption.
So, if I ended up NOT having the celiac genes, then the chances of me having damaged villi are probably small?
But then again... I could still have villi damage from say, candida?
I think I do want to test the genes. If I have any celiac genes then I'll go for blood test and maybe biopsy. I wish I could someone just look inside my intestines myself NOW HOW EASY WOULD THAT BE!!! ahhhh perchance to dream
Thats the thing. I am taking a large amount of these particular vitamins. And honestly they really -do- make a difference. I know its not placebo.
So that may mean that my villi are healing, and I just happen to have enough villi to absorb this stuff.... or, that I'm taking -enough- of it to smother the remaining villi I have?
I really don't think its placebo... the first time I took this stuff I had zero idea how it would effect me. In fact I thought it would take a week to notice a difference, but in fact I realized a difference within a half hour. I've taken many different herbs and a few medications so I feel I'm objective enough.
Yeah I think it really would be best to remain gluten free... I mean I don't think I went through all of this for nothing... it could just be that I'm actually getting close to being healed...? I don't know... I just want to be NORMAL!...
Shay- I know what you mean about eating well. I mean...there is no real reason for me to be eating gluten anyways...its just ridiculous. I could just as easily go to the store and binge on some gluten-free cereal with hemp or rice milk.
I just don't understand it logically. Why would it need to 'build up'?? I thought it was a reaction to gluten at the villi, where your body autoimmunes it...
I'm just confused... I didn't continue to test the gluten as I don't think I can afford to do that right now. Plus its like, geez.... why would I have gone through all this... and told everyone that I had issues with gluten, if its not true?
I have "tested" myself in the past... and I remember telling myself I never wanted to do that again... ugh...
What I'm wondering is...if I am just the type of person that my villi have been damaged, OR... that my villi are fine and I just have issues with gluten.
But that doesn't seem to explain why I seem to have good results with supplementing B6/zinc/magnesium/b12.... because according to my own personal theory my villi are still damaged and that is why I still need to take these supplements...
But I feel I've been doing a lot "better" recently... but the past few days I've started not using my supplements as much and I don't know...I feel like I'm sorta returning back to how I was...which... I guess I'm not as happy with that person?
I don't know what is wrong with me. I really just want God to come down from a shining cloud in the sky and say
THOU SHALL NOT EAT GLUTEN
because then I could be like, YEA GOD.... THANKS
But now its like...its this huge mystery what is going on with me... in some ways.
And I also feel like there is so much we don't know. Like... some people say if you eat gluten once then all of your villi just die again. I mean come on... we don't even know!!
The thing that irks me is that I read that candida can also cause the body to attack its own villi... so many thats part of the issue?? Is it? What if candida is just the result of eating too much wheat and dairy stuff on a daily basis...because that stuff could just be harder to digest...
So you end up getting other stuff eating away at all the putrifying waste inside of you... which gives off its own symptoms... and maybe even eats your villi.
I guess I would really just love to have a camera inside of me so I could see what is truly going on. I feel like I have to approach this whole thing blindly. So yes...genetic testing would be good... But even so, is that the end all/be all?? I feel like there is just simply more to this whole story...
Like what about all the gluten intolerant people who get symptoms but don't get villi damage. How do you know your not getting villi damage????
Sorry I'm just confused right now...a head full of questions...questioning.
You probably still need more months to heal your villi if thats the cause of your issues.
Since I've started taking large doses of B6/zinc (plus some magnesium and sublingual B12)... I feel way better mentally... kinda like taking an SSRI is how it feels to me in some ways.
I find personally dairy "seems" to make a difference...although its kinda subtle. It doesn't make me depressed in the way that gluten does... but it makes me feel very like... apathetic/numb/etc...
You may have a leaky gut because of the gluten, combined with not enough food enzymes to digest the dairy proteins (because of the lack of villi-where the enzymes come out (if i'm right about that)) .. so what is happening is you are intaking through your leaky gut undigested morphine-like dairy proteins...
That is just from what I have read on the net and here.
So try eliminating dairy. It may be easier to get on a high dose of B vitamins. Read my sig its what works for me. It was really hard to get off dairy before getting my serotonin in line (from the B vitamins"... because i was addicted to the opiate effect of dairy... it helped me stay more calm but at the expense of my mental functioning it seemed.
Ahhh its all such a big mess...but I do feel better now.
Maybe there definitely is something either eating your food before you get it, or that you don't have much villi to absorb your own food... I think the key is how does it look when the food comes out the other side you know what I mean? I'm not an expert though maybe some other people can chime in.
I just started this thing where I only eat if I'm hungry. I find that alot of the time I was eating before was just because I was bored/tired/looking for pleasure/etc etc.
But now when I finally -do- eat, I enjoy my food so much more. And I just feel better now this way. I think its good too, because it gives your body time to really clean up after itself after it digests a meal...instead of shoving more food inside of you... you would think after awhile the body wouldn't have enough time to clean itself back up if you are always eating.
you don't think you have a big worm inside of you stealing your food? well... , maybe that wouldn't make sense since your symptoms started when going gluten free... hmm... sorry if that grossed you out..!
Well if our small intestines are damaged we will not be absorbing some of these vitamins.
I was just reading about a condition today called Pyroluria. The basic idea is that because of a genetic malfunction, people of this nature lose lots of B6 and zinc...causes many issues notably anxiety.
But I wonder how much anxiety in general is just caused by not being able to absorb it in the first place.
Did anyone else get withdrawal symptoms coming off dairy?
I don't feel too bad, but I'm wondering if I'm getting some anxiety...
In other words, I'm not sure if the situation I am in, should be giving me so much anxiety... like if its real, or if its because I'm withdrawing from dairy.
I wish I could tell because...well... I'm trying to make decisions on something and the anxiety is telling me one thing...
Well strange... you know I never did have GI symptoms with gluten (or so I can remember)...
But it wasn't until I really tried cutting it out, that I started having GI symptoms..
Today is my first day pretty much away from dairy, and I have to say... it seems like everything seems more real to me. Like, I was watching a movie and it was so rich...the emotions/feelings... watching Across the Universe. I felt like I could relate to everything... fear, sadness, happiness, anticipation...
I also noticed more energy today...like physical.
So now I'm wondering if its just true that for some reason I have become addicted to the casomorphines or something...
I'll keep reporting more. In some ways, I feel like a fog is sorta clearing...but I'm not sure if thats the yerba mate or not...although I haven't had much of the yerba, and I had it before when eating dairy so... Anyways this new experience of life is interesting...