This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
There are so many great foods that you'll be able to eat while gluten-free! Like others said, quinoa is a fantastic grain, very high in protein, and complete protein at that. Millet, amaranth and teff are also gluten-free grains that are high in protein and vitamins. Beans and legumes of course are good choices, all foods soy-based. All the great fruits and veggies of course. If you eat dairy you have that source of protein and calcium, otherwise tons of dark leafy greens like kale, spinach, collard greens. Nuts are also good if you can tolerate them well. Good luck with everything. Even though it's challenging, it's also kind of a fun time to explore some new foods.
I didn't read through all of the responses, so sorry if I'm repeating anyone, but I really think you might benefit from going to see a nutritionist. You have quite a list of foods that you cannot eat there, and I think it might be of benefit to you to see a nutritionist because they can help give you ideas for meals, and also make sure that you're eating habits are balanced, and that you're eating everything that you need. I fully agree with the idea of getting some digestive enzymes, they have made a big difference for me personally in the past, but I would make sure that you know that you're eating properly as well. Just because something worked well me does not always mean that it's what you need. Just be sure that you're exploring all the possibilities so that you find what will be best for you. GL figuring this out!
You don't necessarily need to see one before you start your diet, but I would strongly recommend seeing one at some point. I know a lot of people here won't agree with me, and I can see where they are coming from, a lot of health professionals are not really as familiar with Celiac and the gluten-free diet as they should be, but it will most definitely be of value to you. A dietician, if they are familiar with the diet, can help you with ideas for what to eat. If they're not familiar with the gluten-free diet, they can still help you to balance your diet to be sure to get the optimal nutrients from what you are eating. That knowledge will help you to eat the best you can so that you can recover as quickly as possible and also will help you to feel your best. A nutritionist can also help you to be sure that you get good vitamins/supplements, and that you get enough of the right ones. Good luck with your transition onto the diet!
How wonderful that you have found someone that you want to share your life with! That is probably your biggest reason to follow the diet. My mother died back in November of CLL, not at all related to Celiac disease, I think the Celiac comes from my dad's side, but it was absolutely excruciating to watch her get sicker and sicker and eventually die. That experience alone would give me enough motivation to follow the diet if I didn't get sick every time I eat anything that has even a speck of gluten in it. Now of course there was nothing that we know of that my mother could have done to prevent the cancer, but knowing that I can do something to reduce the risk of getting some form of cancer and putting my loved ones through that awful experience is reason enough for me. If you've ever read Stephen Covey's books, he says that in order to say no, you need to have a bigger inner yes. For me that's saying yes to being healthy and around for my hubby and sweet little baby. I hope that you find what will drive you to follow the diet, because no matter what any of us may say as far as statistics/reasons to follow it, it has to come from you if it's going to be effective. Best of luck!
DH does equal Celiac, the ONLY thing (other than pregnancy ) that helped my DH was going gluten-free. Once I was gluten-free, my rash disappeared in less than a week. I have had a few minor flare-ups since then, but nothing crazy like before.
Sounds like a thyroid deal to me. I would have it tested - make sure to ask to be tested for the autoimmune diseases that cause thyroid problems if you suspect Hashimoto's. Have them test your T3 and T4, as well as test for the thyroid antibodies. I'm going through this whole thyroid mess too right now, only with major symptoms of hyper-thyroidism. I hope you figure out what's causing it!
A good point about children, but maybe I'm missing the point of medic-alert bracelets - aren't they worn in case you become unable to communicate your medical problems to someone? I don't have one myself, and I actually don't know anyone who wears one, but in that sense, it seems like a good idea to me, even as an adult, just in case I ever got into an accident or something of the sort where I was unconscious and unable to communicate my medical needs, and no family member could be reached right away. Is there a better way to cover this base?
I'm sorry that you're struggling with this. My MIL's whole life revolves around food, so it's very challenging to be at her house. Just the other day she was complaining about how she wished I was comfortable eating at their house because food is so important. Oh please. It's just food, and I don't care about her feelings enough to make myself sick. I told her that I don't mind coming over to eat _with_ them, but I would bring my own food because it wasn't worth getting sick over.
I have no answer for you, but I just wanted to say thank you for your willingness t be a donor. My mother died last November of CLL, and was waiting at the time to get well enough to have a bone marrow transplant, had a donor and everything, but her lungs were in such bad shape that she never was considered healthy enough to go through with it.
Secondly, I would definitely tell the registry about anything health-wise that would impact your ability to donate because it is extremely stressful for the patient and the family to wait for a match, and that would be devastating for someone who thought they had a match, only to find out that you couldn't actually donate. Give the registry a call would be my advice.
I didn't read all the replies, so I apologize in advance if someone else has already made this suggestion:
I would ask to talk to the owner or manager of the supermarket and ask them to order some gluten-free stuff for you. Do some research before you talk to them about what you would like, and then explain your situation and ask them to dod the ordering for you. Many places are very happy to help customers with special needs. HTH!
The PP had some really great ideas! Another suggestion for you if you want larger portions is to bulk up your meals with foods that are low in calories and high in fiber and nutrients. Add more veggies to your meals - not necessarily as salads or sides, but that is good too. You can add tons of veggies to soups, stews, pasta dishes (assuming you like and eat gluten-free pasta), chili, etc...
Summer is a really great time to bulk up on veggies because lots of things are in season. Watermelon is a good food to add bulk without calories too because of it's high water content. (You can add up to 3 cups of cubed watermelon without adding a significant amount of calories to your diet.) Salsa, homemade or store-bought is another good food that is low in calories and adds interest to meals. I personally like it on salad. You can find a good recipe for gazpacho, another good summer food that can be low in calories depending on what you make it with.
I'm really thinking now... if you want a cold snack, you could freeze pureed fruits to make your own ice fruit pops. That way you avoid the high sugar content of the commercial brands, again cutting back on calories. Frozen yogurt is as tasty as ice cream and lower in calories.
I hope you find something in there that helps! I think the key to changing your diet is having foods that you like to eat that can replace other foods that might be helping to put the unwanted pounds on. I haven't found any good low-calorie substitutions for baked goods yet, but if I do, I'll be sure to let you know.
Interesting to hear that other women experienced this. My DH actually cleared up during my pregnancy, but hit full force after I delivered my baby. (It wasn't until after my baby was born that I was diagnosed.) Is she gluten-free? My DH cleared up within a few weeks of going gluten-free. I didn't want to take anything that would hurt Layla, especially not Dapsone.
I have DH - have for several years now, but was misdiagnosed with eczema (I had no idea about DH or Celiac). The rash you're describing sounds EXACTLY like DH. I still have my scars from the DH, but the rash itself has cleared up. I fully expect that those scars will never completely heal, although they are not quite as scary as before. Like the PP said, I guess it just is a matter of how important it is for you to get that firm diagnosis. If you really want it done, it shouldn't take much gluten to get that rash to come back and get the biopsy done. It's completely up to you, but it does sound like DH to me. GL!