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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

Donna F

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  1. Will do! Thanks! I ran this by my mom today and said it sounded good, so - something different this year! Thanks4giving it to me
  2. How many pounds of turkey do you cook for that long? Does it matter? I'd like to try this, This is my first turkey and 1st Thanksgiving I've ever done.
  3. Gluten Paranoia

    I am all about convenience right now, so no bowl-licking for me.... I forget there are overweight issues for some people with Celiac. I've always been so thin and attributed it to the Sprue, but even after more than 4 years on this diet I am still thin, so I guess the issue isn't gluten. Wish we could do an online transfer - I'd love to put on a few more pounds!
  4. Gluten Paranoia

    So you haven't yet been blood-tested for Celiac? My symptoms were mainly neurological for many many years. Headache and fogginess were big symptoms for me. Years ago a doctor swore I had MS b/c of the symptoms I was experiencing: numbness, lack of coordination, weakness, pain, twitching, etc.. Then it started affecting my blood sugar. I was crashing severely almost daily, so I was sent to an Endocronologist. He was the one that discovered the anitbodies for Sprue, but insisted I didn't have it b/c he assumed the main symptom was "d". I went on the diet anyway and IMMEDIATELY felt fantastic. Symptoms started to diminish right away and were completely gone after a few weeks (it took me a few weeks to fine-tune the diet. I messed up a few times). So it may make some people feel worse at first, but I felt improvement immediately. I hope that is encouraging to you. Btw, I eventually went off the diet and gradually the symptoms came back. A different doctor confirmed I had Celiac and I went right back on the diet. It's hard to believe something like a crumb can make you so sick. It took my mom years to accept that. I totally sympathize with Beth's post. It's like having OCD at first - you constantly have to be on guard, but you really will get used to it and it won't drive you insane anymore! And just ignore the ignorant folk (like my mom) who insist you don't have to be so careful! It'll be easier to treat gluten like poison (which is essentially how your body reacts to it) and avoid cheating and get past the silly comments from the ignorant once you've been faithful to the diet a while and are feeling your best again! Don't give up! Get on your way to feeling good again and get that gluten grub out of your life! Btw, Beth, if you are craving cookies, try Pamela's. Feeling good is worth a splurge. Dark chocolate chocolate chunk, or peanut butter chocolate chip, or chocolate chip.... Mmmmmm...... You really don't have to deprive yourself on this diet. I am 7 months pregnant and doing very well. No hunger or craving here! You'll find great substitutes for all your favorites here. Just ask away! The gluten-free products section was my daily reference when I first started the diet. Oh! And I just discovered that Amazon sells several hundred gluten-free products at the lowest prices I've ever seen - and free shipping with orders over $25 (which is really easy to do b/c everything is sold by the case). Stock up! I don't usually buy that many gluten-free specialty foods, but being pregnant has made me eat tons more than I used to: gluten-free gravy, bread, prezels, crackers, pasta, cereal, cookies. After the pregnancy I'll have to put my budget on a restricted diet Take Care~
  5. If you or a loved one live with a gluten-ivore (or eat in restaurants), wipe off the bottoms of the salt/pepper shakers before you shake them over your food! We keep the shakers on the table and just wipe around them. Inevitably some crumbs linger around them in the middle of the table. I supposed I just shouldn't do that, but I know many people who do, and restaurants often do this too. So please LOOK OUT NEXT TIME! And I thought I was being so careful......
  6. Awesome, thanks! I go to Walmart almost every week, so that'll work nicely too.
  7. Ok, I think I can find these at my grocery store. Thanks!
  8. Ah, and I imagine the 365 ones are probably a little less expensive (?) I'll have to stock up once a month. WF is quite a ways from here.
  9. Ok, well I'll have to make my way to Whole Foods at some point. I was hoping something mainstream was out there, but after looking at labels I was fairly certain there wasn't anything. Thanks~
  10. Hmm... I've never heard of that. Is it frozen, refrigerated or on the shelf (like the microwave bacon)? Thanks~
  11. Does anyone know of a gluten-free breakfast sausage? Thanks~
  12. The longer you are on the diet, typically the more sensitive you become. I personally try to avoid foods produced on shared equipment b/c damage can be done whether or not we experience symptoms. There actually are quite a few companies out there with dedicated facilities. I also scour these boards and if I see a number of people reacting to a particular brand I also avoid it. One example is Amy's frozen meals. I was eating them for a while and after a few months started to see a small return of symptoms. Come to find out Amy's (at that time) wasn't producing in a dedicated facility and there were cc (cross contamination) issues in some of their products. Btw - Amy's now makes some of their products in a dedicated facility as indicated on the packaging. All in all its your choice. Some people avoid those foods and others buy them anyway b/c they don't feel affects. I prefer to play it safe. Sometimes it takes months of ingesting gluten for me to notice any affects - and by then who knows how much damage is done. Btw, welcome There is so much to learn on here!
  13. As far as anyone can tell, I am the only one in my family who has ever had it. Although autoimmune disorders are prevalent on both sides of my family.
  14. Disneyworld Florida And Disney Cruises

    I have no experience with the cruises, but I've been to Disney World parks twice now since being gluten-free. I suppose the experiences amongst people here will vary. In my own experience I would say Disney has gotten better at accomodating celiacs - you probably won't go hungry (unless you're a pick eater - like me ) And that is an improvement from the last time I went - 3 years ago - where I literally did go hungry - to the point of low blood sugar attacks every day. Some restaurants couldn't provide any carbs at all for their gluten-free customers - no potatos, rice, nothing... Anyway, they are better now, although some restaurants are much better than others - and that is probably true for their "normal" meals too. Best places I ate were Prime Time in MGM (awesome fried chicken!!!), Cape May at the Beach Club resort (they've got an incredible buffet, but the chef made mine to order and just about everything there is gluten-free), Enland at Epcot (can't remember the name of the restaurant, but it's really the only main sit-down restaurant there, and the sit down restaurant (the candle-lit one) in Mexico at Epcot. This time around, the turkey legs (which are sold abundantly in the parks) were undercooked (I think they were last time we went too), Japan at Epcot undercooked my chicken, and Tony's at Magic Kingdom gave me cold meatballs and moldy EnerG brand bread. Oh, we had an incredible breakfast buffet at Crystal Palace at Magic Kingdom and again, the chef made mine to order. You can read plenty more reviews like this, with specific restaurant recommendations and warnings. I consulted a site called and found many gluten-free recommends as well as other info about special needs etc.. Many of these restaurants require reservations, and many of them fill up months ahead, so do call to make reservations well ahead of time if possible. While reserving, tell them you have gluten-intolerance so they will have a heads-up about it. When you get there, remind them of your need and ask to speak to the chef to get recommendations on what to order. I don't think any of my orders were ever taken from a waiter or waitress - they were all taken by the chef who actually logs the order into a special record with your name so they can keep track for liability purposes probably. And everywhere I went (this time, anyway) everyone I spoke to was knowlegeable about gluten and knew what to do. I didn't encounter any glutening problems. One other recommendation: try to get a room with a kitchen. Aside from one character breakfast, we ate all our breakfasts in the room. I also had a doctor note and packed an entire suitcase with gluten-free dry-goods like crackers, bread, pb, jelly, cereal, etc.. Some of the resorts have a convenience store, but it is very pricey and you won't find many gluten-free items there, but they do have eggs, milk, oj, oscar meyer lunchmeat, mayo, chips and many other staples you can use - except that everything costs twice as much as a normal grocer. The only other option there for perishables is to pay a cab or limo to take you to a grocer, but the only ones w/in a reasonable distance are also very overpriced. But even if you buy a few things from the resort, you will still save compared to eating all your meals at a restaurant. I also made pb&j sandwiches and oscar meyer meat sandwiches for many of my lunches (in a cooler - the parks allow those) and brought in yogurt cheese, v8 and crackers for my snacks. And again, check out for more ideas. There are many, many places to eat and there are meal plans too which you might find economical. Anyway, that's my 2cents on it! I'm sure you'll enjoy it and don't need to worry about having a problem.
  15. I have "SmartWater" by Glaceau. It is electrolyte enhanced water. Maybe you could try that? I buy it at just about any grocery store here in Massachusetts.