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Molecular Dude added a post in a topic Feeling Great: So How Do I Continue To Stay gluten-free?
Molecular Dude added a topic in Celiac Disease - Coping WithFeeling Great: So How Do I Continue To Stay gluten-free?Hello All,
I haven't posted recently because I've been essentially symptom-free for about 2 months now, which is absolutely amazing and I wish that everyone could feel as well!
The problem is that I'm starting to get this feeling of invincibility. For more than 5 years the slightest hint of gluten would make me ill. Now, I'm still very careful and haven't changed my diet in any way, and I'm finally OK. I guess that my system has healed adequately to allow me to be asymptomatic. Strangely though, this lack of symptoms in a way makes things boring and mundane, and I'm feeling temptation to stray from the diet. It's odd that having problems enables one to maintain the gluten free diet far more easily than feeling well does. (I suppose that recovering drug and alcohol abusers face similar situations, but I have no personal experience with that). From a purely intellectual perspective, I know that I have to stay gluten free, but I certainly long for those days when I didn't even know what gluten was!
Any suggestions for how to keep convincing oneself to stay gluten-free when feeling well?
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Molecular Dude added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)How Long Until You Would Believe It?Hello All,
In a recent study (Eur J Gastroenterol Hepatol. 2008 May;20(5):423-429), it was reported that some individuals with >10-yr biopsy-proven celiac disease experienced spontaneous gluten tolerance and a complete return to normalcy. It is extremely interesting that this is possible although the mechanism is entirely unknown. I'm just wondering, if I became completely asymptomatic, how long it would take me to believe that I was "cured". I'm not sure that I would ever believe it, or trust in my ability to consume gluten. How about you?
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Molecular Dude added a topic in Celiac Disease - Coping WithWhy Are There Rare, But Occasiona,l Periods Of Symptom Remission?Hi everyone,
I do the very best that I can to avoid gluten-containing foods, but I live in a gluten-filled household, and we still eat in restaurants about once every two weeks. I also seem to have a spectrum of additional food sensitivities that I have never completely nailed down. As a result, it is quite common for me to experience digestive system discomfort once or twice a week even though I NEVER deliberately consume gluten (I really don't know whether this discomfort results from gluten contamination or from other food sensitivities). Recently, however, I have been in some sort of remission during which I haven't felt that discomfort. I have also experienced this in the past, and was then actually foolish enough to try a few gluten containing foods. Having learned my lessons, I won't be trying that again, but I am left wondering what causes these periods of symptomatic remission. As far as I can tell, I haven't changed my diet in any way. Have any of you had similar experiences?
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Molecular Dude added a topic in Celiac Disease - Coping WithDoes This Ever Become "instinct"?After 4 years of being gluten free I find that I still "think" about being gluten free. I don't think about whether it's OK to drink water. I also don't think about self-preservation, or avoiding accidents, or a million other things that are just intinctual. But, even in my own house, I still think about avoiding gluten. Does this ever end, or does it go on forever because it was not learned/acquired in childhood? Does it differ for those who have "always" been gluten free?
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Molecular Dude added a topic in Celiac Disease - Coping WithThe View From The Other SideI find that whenever I attend anything involving food, my dietary requirements quickly become the center of conversation. This is the case even when I don't bring it up because someone else will mention it, and it just takes off from there. Sometimes I wish that everyone would just give it a rest, forget about it, and just let me deal with it on my own. It can make me feel as though there is essentially no other aspect to my being!
But then, I wonder, how I would react if I were the one who could eat whatever, and someone else was in my shoes. I would probably do what everyone else does: ask lots of questions and try to be helpful, while not realizing that I'm probably driving that poor soul crazy. I guess there really is no way to win. I can't keep it a secret, and they just want to help.
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Molecular Dude added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)How Long To Feel The Effects Of Gluten Exposure?For those of you that have been gluten free for some time:
How long does it usually take for you to feel the effects of gluten exposure?
For me it's generally 3-5 days
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Molecular Dude added a topic in Celiac Disease - Coping WithWould You Be Among The First To Give It A Try?This is hypothetical. What if an experimental treatment for gluten sensitivity (ex. AT-1001, the zonulin inhibitor) proved to be very effective in preliminary trials, but little or nothing was known about possible side effects or long term effects. Would you be willing to participate in the secondary trials?
I think that I would because I really hate having to be on a restricted diet. But, it often takes quite a while for such trials to be conclusive and to reveal any unpredicted/unpredictable problems. Also, if the drug is not completely effective in blocking the autoimmune problems associated with celiac, this alone could cause long term problems. I'd be willing to give it a shot? How about you?
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Molecular Dude added a topic in Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free DietNew Movie Suggestions?Hi Everyone,
My wife and I would like to catch a new movie this weekend (or soon). We like comedies, and are thinking of seeing "The Bucket List". Comments/Suggestions?
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Molecular Dude added a topic in Celiac Disease - Coping WithFrustrated About Friends And RestaurantsI'm so frustrated!! We have some very good friends with whom we often go to restaurants together. They are well aware of my dietary needs and have no problem coping with how I have to deal with restaurant menus, staff, etc. Last week we went to a tapas-style place where we ordered multiple dishes and passed them around. We were careful to avoid all of the obviously problematic dishes, and informed the waiter of my dietary needs. Needless to say, I developed my usual gluten-exposure symptoms afterward, despite our very best efforts to avoid the problem. This certainly is not the problem at all restaurants, but when it is, it just makes me want to pull my hair out!! Why don't I just order a platter of egg rolls and a pizza and just have a heck of a lot of fun, sharing with others, if I'm going to suffer the consequences anyway? At least that way our friends wouldn't be restricted in what they can eat, and I probably wouldn't feel any worse as a result afterward.
Sorry for ranting, but I just had to get that out! I really do know better -- I think.
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