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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Eric_C

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  1. We called Bagger Dave's in Novi Mi tonight to see if they offered a gluten-free menu. It is a burger and fry place. Not only do they have a gluten-free menu but an extensive one. Most of the time you find places with BBQ sauce based items, or sprinkle on seasonings are not gluten-free. Here nearly everything is. Dedicated fryers and their seasonings were mostly gluten-free. The gluten-free menu has about 15 items, basically all variations of burgers but also all three variety of fries. Food was good and about 15-20 percent cheaper than Red Robin. Besides the buns the waitress told us they have no flour based products in the restaurant. Their gluten-free menu seemed to be done with some good research, it wasn't scribble on a sheet of paper like some but a copy of their regular menu with some gluten-free tag lines throughout. $21 for 2 burgers, fries and 2 drinks compared to $28 at RR. If you like seasoned fries it was a great place to go for a quick safe bite.
  2. I've been seeing a new chiropractor that everyone has been raving about. My sister has been going there for years. We talked about my Celiac's/Gluten problem and over some episodes I've had. I also told him my feelings on yeast being the root cause of my gluten problem. He was very familiar with leaky gut and put me on some reasonably priced supplements. I'm always wary when they start pushing pills at you, especially the overpriced organic ones. However the prices were reasonable. Considering I pay $52 a month for Candex the rest of the regimen came to about $50 in total. I take Candex 4 per day(was taking before seeing him) 3 Okra Epsim E(7am, 3pm and 7am) 6 Zymex(2 with every meal) 6 Cholocol(2 with every meal) It has been 2 months since I started. I had some crappy feeling die off issues for 2-3 days but compared to how I felt taking Caprillic acid this was a breeze. The difference has been amazing. First thing I noticed is hydration. I was having to drink tons of water to stay hydrated and when dehydration hit it was bad. Now I drink like I used to, water/iced tea and when I get thirsty I get thirsty, before it was just before I came crashing down with hydration issues. I never had severe reactions but about a year ago I started to run into problems with vinegar, sugar, and other yeast/parasite trigger foods. I now tolerate all of them like its nothing. I got the flu for the first time in 8 years so that was new too but I drank Gatorade and greatly increased my sugar load during that time with no ill effects where as before if I went overboard on sugar I had problems within a few days with nerve problems. I'm not doing myself any favors most likely not cutting back on the vinegar/carbs but I've been very happy with the results. No more of the up and downs either, every day I have more energy and am level all day long and all week long. The real question is if the leaky gut issue is fixed will the gluten problem go away. If I do accidentally get gluten its like before, some moderate stomach pain, maybe some D but nothing like it has been. I have no CC reactions. If I gave up carbs/vinegar I'd accelerate the healing but I'm happy with a slow steady pace. I'm also drinking the following each morning for breakfast: 3 apples 1 banana 1/2 cup fresh orange juice 1/2 cup strawberries 3tbl spoons Flax seed handful almonds Blended in a blender. All of it to slow clean things out and restore some balance to the intestine. Seems to be working so far.
  3. I had heard Wendy's used dedicated fryers and would prepare your food gluten-free. We went in and talked to the manager. She said yes everything is prepared separate, they change gloves, no buns on the grill, etc... Been three times and zero issues, the manager always suggested coming into the store, do not use the drive through and in most stores you can watch as the cook changes gloves when a food allergy ticket comes through and only handles your food until it is bagged. Good for if your in a hurry. Everytime we've been in we tell the casher and watch the person who is getting our fries and the preparing the burger change gloves and not touch anything else until they bag our food.
  4. Well since posting this I've been back a few times...yes a few times, when we meet with customers for lunch it is one of the few places I can go so we do go often. Since I've made the manager aware every single time I've been in there have been zero issues. Speaking with the manager seems to make a difference and being a familiar face seems to make a difference. This is at 3 different RR's and good results at all. These are the same ones I had issue with, the difference is in speaking with the manager every time we go in.
  5. We've been going to three different RR's in the area since we heard about the dedicated fryers. First few times I felt great. Then so-so...sometimes got mildly sick, other times very sick. Either the bacon or the seasoning they put on the burgers is not gluten-free. If its the way they slice the bacon(the slicer itself) or something I don't know. I've started to tell them no season/salt on the burger either and although they claim it is gluten-free saying that has completely cleared up my issues there. We got a bad bottle of ketchup a few weeks ago after I had already put it on my burger. Manager stopped by and made me a new burger. When he delivered it he said it was free of everything and that was the first time I felt great leaving there. Since then I've made sure to speak to the manager when we came in, said no salt on anything...and I say salt because that seems to be a generic term for seasoning there, and have been great every time since then and that is at three different locations. Next time I am going to inquire about the bacon.
  6. Outback Steakhouse - Roswell, Georgia

    I wonder if they will adopt this elsewhere? FYI we got the Bloomin' onion recipe off the web and substituted Besan Flour for Wheat flour, tastes exactly the same if you want to make it at home.
  7. No test results back....never ended up doing the test after speaking with the doctor again. I was just getting better and they wanted me to to stop all the stuff I was taking to make myself better for 10 days. I wouldn't do it, I was just getting back on my feet. I am on a new regimen and feel different. There is now a disconnect between my physical and mental well being which is a huge improvement. It has been weeks now where it has been like this. Usually the physical issues came with some brain fog, or something else. Now I am clear heading and thinking well 24/7. I've been taking Cholocol which is supposed to get my gall bladder back in check, along with the drink above I've been having each day which really does work well. I just started on Zymex and Okra w/ Pepsin E. One is suppose to sooth the intestinal tract to treat leaky gut, the other is a anti-fungal mixture. After taking them the pain in the muscles and hands came back so I'm assuming that is die off again. I think I am on the right track and now believe that if I can fix this leaky gut thing then the other problems may subside.
  8. Well for better or worse I've been talking to a new doc who feels that nearly everything is due to toxicity issues. So right now I'm going through and doing these supporting foods. It's all a little on the voodoo side but it seems to be working I've been through this enough to see that certain things cause reactions. I now know vinegar causes a rise in blood pressure. So right now we're working on the intestines and the gall bladder. I drink this for breakfast: 3 apples 2 banana's 1/2 cup fresh squeezed orange juice hand full of almonds 1/2 tablespoon flax seeds soaked in water overnight(so they germinate) few strawberries for flavor Throw that into a blender and drink about 12oz, the above makes about 30. Well let me tell you regularity has returned Then I'm taking Cholocol for 2 weeks with each meal which is supposed to take stress off the gall bladder. Then we'll work on actual flushes. Do I feel better, yes...do I feel well...I have days of amazing clarity but my big problem is sticking with a diet. My new found tolerance has me cheating way too much. Not with gluten but things I should not have, Indian food(white rice), burgers and fries... He also thinks I have leaky gut issues which now that I've put all this together it makes much more sense. I don't really care of the gluten/celiac's goes away....if my tolerance increases so vacationing and going out isn't a trouble I'll be happy. I'll figure it'll come in stages over the next 6 months but everything seems to be moving in the right direction. I'm not too crazy about doing some of these flushes but going to start somewhere. I think there is a lot of value to the approach and I think about going on vacation 2 years ago. I was on this no sugar/no flour diet for 3 months, felt great, and I ate out for 10 days on vacation, randomly picking places and never once got sick or even an inkling of being sick. There has to be a connection just a matter of finding it but I seem to have found a doctor who is at least interested in finding the root of the problem.
  9. See my post about yeast....I had problems with Udi's and other gluten-free breads but I eat all those ingredients regularly in other products, the only common factor was yeast.
  10. I didn't do a program. I just stopped eating the things I was supposed to stop eat, fruit, carbs, etc...I only did it for about 4 weeks but I was taking Candex, Capryllic Acid, etc... I know this topic got moved to a different section but I don't know if it gets much exposure here and I really do think there is something more to this. The high number of people who now have gluten problems has to be tied to something. I now have a very odd thing to track down. My original thought was that pickles, vinegar, etc was causing me a severe re-occurrence of Candida. I've been having ketchup daily now, with carbs, to see how it effected me. It's been 8 days straight now and so long as I keep up with the meds there is no real issue with it at all. I've even had 1000 Island which I thought was another trigger, no problems until I had it at Outback. Something Outback puts in their 1000 Island causes me problems and it is gluten-free free. I've had it at 3 other restaurants with no problem but last night we went there and within hours the lower back pain started, nerve pain started...took capryllic acid and its helped but this is the 3rd time I've been there with a problem. Still, being on the pills I've eaten out quite a bit to see how it does and no CC at all. That is a huge change from where I was 6 months ago. The strangest thing is my heart rate and blood pressure, whatever is in their 1000 Island causes my blood pressure to spike and I get this pounding heart for a day or so.
  11. Imitation Crab In Sushi

    Krab, with a K, has wheat in it. Goto the local grocery store and pick up a package of artificial crab, it lists wheat. When we go for Sushi we always order real King Crab meat, the fake stuff will cause problems, real crab will not. Get some Tamari, its wheat free and our Sushi place actually keeps it for us on the shelf so we don't have to haul it back and forth.
  12. I have been posting on here for a while. I know I have severe gluten issues and no I have never been tested for Celiac's because a gluten intolerance test is nothing I wish to go through and I hear blood tests are iffy. Here is the very short condensed version: 1. Looking back 10 years for the first 5 I would get an upset stomach, or urgency after eating certain foods. Heavy breads caused it but it was never painful, life threatening, etc, it was 'rut roh time to go'. Then starting about 5 years ago I would wake up in the middle of the night with extreme pain followed by D....it happened once a year, then twice a year, then 4 times a year. Eventually it didn't take till the middle of the night, it was within 5 minutes of eating gluten. 2. I am pretty unflappable, or have been. Nothing bothers me, I didn't get stressed, etc. Going back about 9 years I took a antibiotic shot and had a bad reaction. Anxiety, racing mind, muscle stiffness...went away after a few days. Then a year later I had a panic attack for no reason...went through boughts of anxiety that would get better/worse. 3. 4 years ago I took Cipro, same thing as the other antibiotic but it lasted a year, not a few days and was 10 times worse. 4. Then I found the gluten connection....stopped eating gluten and things improved, drastically. 5. My intolerance to CC and eating out went through the roof. I couldn't touch much outside of the house except a few certain places. 6. We go on a cruise...about 2 months before the cruise we started this no sugar/no flour diet...went on the cruise, plus 3 days at Busch Gardens in Florida, at out breakfast/lunch/dinner, zero issues...I was also on an anti-biotic at this time. 7. Get off the diet and my sensativity went back up. I also had to take an antibiotic and the bigger problems started up again even without gluten. 8. Discovered Vitamin D3 and B12, now I'm nearly normal again. My attitude is more like it was before, no anxiety, panic attacks, none of it. I worked in very stressful places and just like 10 years before nothing phases me. 9. I start to feel like crap again...lower back pain, anxiety, but no panic issues...its tough to explain. Give up sugar/carbs and it goes away. I start to look into yeast and start taking Candex. Problem goes away but I took Candex as a treatment, not a on going therapy. 10. Holidays come around, tons of sugar, carbs, CC, etc...really go down hill and now I seriously start on the yeast treatment. Candex, Probiotics, Capryllic acid, no sugar/flour/vinegar diet for 1 month. Got off the diet for the most part but I take 4 Candex a day, 6 Capryllic acid, Culturelle Probiotic and I feel incredible. The die off period sucked, joint pain, foggy, you name it but once I got through it I feel great. My tolerance to gluten has gone way up. I don't eat it but we've been out to eat at multiple places, same places I used to have a reaction to and nothing, nothing at all. Been out to eat every single day for the past 2 weeks, either lunch or dinner, no problems. Got a new doctor and we're waiting on a big test to come back but she thinks that the yeast overgrowth could cause the gluten intolerance. Once I get all the crap(no pun intended) cleaned out of the intestines and my body that it may subside. So many of the symptoms of both gluten/yeast are similar. Gluten intolerance can cause yeast overgrowth and vice versa. Going back and looking at the cruise, yeast feeds on sugar/carbs, since I had no sugar carbs for 2 months previous the yeast infestion should have gone down dramatically which allowed me to eat out without CC effecting me. I'm not ready to have a burger at McDonalds but there have been big changes to me since I went on the anti-yeast regimen and stuck to it for weeks instead of using it as a treatment. Its a year or so they say to get over Candida in total but its just interesting that my tolerance for CC has improved, as has everything else as I have improved the yeast situation. I should have the lab results back in about 2 weeks, they are cheating for yeast, parasties, you name it. Wonder if this might help out some who test negative but continue to have issues that cannot be explained.
  13. I take Culturelle, that one was recommended by my doctor.
  14. Well now ya tell me It came in the mail, and no I did not read the ingredients list as I should have. So I just bought a new thing of Candex today and my wife will take the other brand. She noticed it had malt in it just before I opened them. Sucks too because it is WAY cheaper than Candex.
  15. I want to start taking Psyllium husk pills for fiber. Wife bought some at GNC and they list oats so we returned them. Anyone know of a brand that is for sure gluten-free?