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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About fedora

    • Rank
      Advanced Community Member
    • Birthday 07/10/1909

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    • Gender Female
    • Interests my kids, gardening, dancing-clogging and swing, reading, live music
    • Location north coast CA

    fedora's Activity

    1. fedora added a topic in Board/Forum Technical Help   

      Editing A Very Old Post
      I would like to edit a very old post of mine, several in fact, to remove some personal information. Is this possible? I have gone over the thread and can not find a edit button. Is there a time limit or am I missing something. Thank you.
      • 2 replies
    2. fedora added a post in a topic Enterolab Results   

      so ,I want to get this have 4 daughters? One not tested, one tested positive for celiac but you don't know her genes, and two more listed here.
      after you clarify, I'll repost, but for now....
      yes daughter #3 has a strong possibility of having the complete celiac gene.
      You have at least half, hubby has half, daughter # 2 has half

      the half genes can cause gluten intolerance and celiac, though not at as high of a rate as the complete gene.

      good luck
      • 0
    3. fedora added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Hawaiian Host Caramacs
      does anyone know if hawaiian host maui caramacs have gluten in them. I just got a box from a friend as a gift and want to eat them.

      Ken you know?
      • 0 replies
    4. fedora added a post in a topic Gluten Free For One Whole Year!   

      thank you everyone

      I hope you have continued success and good health
      • 0
    5. fedora added a post in a topic Cold Sores   

      my daughter was get 3 kinds of mouth sores
      cold sores, sores in the corner of her mouth, and white sores in her mouth

      the PA said the ones in the corner are from a bacteria/ yeast combo
      the white sores in the mouth are associated with celiac, which my daughter does not have
      the cold sores are herpes. I thought her sores may have been from gluten, I put her on a gluten free trial diet. I ended up getting her sore swabbed and it was positive for herpes.

      I would suggest getting your sores tested.
      • 0
    6. fedora added a topic in Celiac Disease - Coping With   

      Gluten Free For One Whole Year!
      Yesterday was my one year anniversary of being 100% gluten free!!!!!!!!!!!!!!!!!!!!

      I feel pretty good, so much better than I did for years. Even when I didn't eat wheat I still had bad symptoms at times. I wish I had gone gluten free years ago.

      I don't feel poisoned
      I don't have weird visual effects where everything would seem further than it really was
      I don't get brain fog
      I am not dizzy all the time
      my blood pressure went up to normal
      my skin doesn't itch constantly everywhere
      I don't have a rash on my hands anymore(that had started to spread)
      I don't have chronic constipation
      I don't have hemoroid pain
      I don't feel like vomiting when I have to go to the bathroom
      my facial skin doesn't break out nearly as much
      my hormones have stablized- I have a bigger libido and am far less moody, PMS is greatly diminished
      I am less likely to get irratated and bitter
      my blood sugar is stablized- I don't go from fine to starving in a second, I progress to hungry
      When I am hungry, I don't feel like I will vomit

      I can't believe how many facets of my life have been touched by this
      sometimes I have a bad day, or a symptom, but it is not the norm for me anymore
      I still use bananas as medicine, I would have died without them long ago

      When people find out that I can't eat gluten and they say how that's too bad or say,
      NO, what is too bad is that I was undiagnosed and sick for so many years, since I was a child. I have no problem not eating gluten because I never want to go back to how I was before

      Good luck to everyone else
      • 10 replies
    7. fedora added a post in a topic Tourettes, Narcolepsy And Gluten   

      I know a family whose daughter was diagnosed with Tourettes at 6. Within the month they removed gluten. They never tested for Celiac. Within a week her tics were almost gone. She is doing much better.

      I have talked to her mom and her other symptoms scream celiac to me, but either way, they have removed ALL gluten and most other grains from her diet. She eats corn, rice, potatoes, sweet potatoes.

      I have encouraged her to come on here, but don't know if she ever did.
      • 0
    8. fedora added a post in a topic Genetic Results   

      dad of five boys,
      you only have 2 genes: DQ8 and DQ4
      DQA1*0302, DQB1*0402 is the full name of DQ4

      DQA1*0302, DQB1*0302 is the full name for DQ8

      The 0302 in the alpha part of the DQ4 gene does not confer gluten intolerance.

      Just because they numbers are the same, doesn't mean they act the same. You have to look at the entire code and the placing of it.

      your children can either get DQ8 or DQ4 from you.
      Then they get their other gene from their mom.

      I've read the study quoted before. I have the half gene DQ2.2 and DQ5.
      I never got blood work or biopsy, so no clue on that, but I had symptoms across many systems in my body that are better now.
      • 0
    9. fedora added a post in a topic Itchy No Rash   

      I don't remember clearly, but it started to go away within the first week. I went from itching ALL the time to barely itching. I do still itch more than most people probably, but they may be just my make up. I have sensitive skin in general- very fair, sunburn easily, react to chemical soaps, etc.
      I also itch if I eat too much sugar, like around halloween.
      The only other food problem I know for sure I have is with nuts, but they give me D, not itching.
      • 0
    10. fedora added a post in a topic Itchy No Rash   

      I itched A TON with no visible rash on huge sections of my body. It goes away when I don't eat gluten
      • 0
    11. fedora added a post in a topic Rash On My Finger   

      mine is caused by wheat and was one of my symptoms as a preteen(but on my foot) and then when my symptoms worsened again, it was one of my first and worst symptoms. horrible, it ate my hand up.

      My friend gets it from corn though and my dr says it is definately allergy related.

      Have any of you been tested for IGE allergies? I never have been but wonder if I have a wheat allergy too on top of being gluten intolerant or if it is just because wheat has the most.
      • 0
    12. fedora added a post in a topic Can Symptoms Differentiate Between Celiac Disease And Gluten Intolerance?   

      good point mike

      several people I know felt triggered by stomach bugs,
      My next door neighbor is in his late 60s and just got diagnosed. His only real compaint for years was heartburn, then he got shoulder surgery. About 22 months later, he was horribly ill. He believes the surgery triggered him, but then it took a little while to get deathly ill from it.

      Also, some of us Knew we needed to avoid wheat, so we did, but still ate other glutens. Then it gets real confusing.

      plus, everyone has a unique immune system. Some may go full throttle right away,whereas some my slowly build up to a crescendo.
      • 0
    13. fedora added a post in a topic Dr's Opinion-eye Twitch Cause Usually Metabolic   

      mine just started up again bad. I started drinking coffee again, I stopped in January cause I could not handle it after going gluten free.
      hmmm. caffeine, plus I am not drinking enough water either.
      • 0
    14. fedora added a post in a topic I Heard Van Gough Had Celiac...   


      Van gough was my favorite painter my entire life. In 1998 I had the wonderful experience of seeing his Holland collection on display in DC while they restored he museum in Holland. Incredible!!!!

      I saw the painting wheat field with crows, one of the last paintings he did(they are unsure which was his last) that was mentioned on that VG illness website

      In the painting the sky is what is ominous. The crows are dark and scary. The fields aren't so much, but add to the loneliness and fear of the painting.

      If he were celiac and suspected it, I would think the wheat fields would be dark and scary and there could be beautiful fruit trees around- who knows

      Poor guy no matter what afflected him
      • 0
    15. fedora added a post in a topic Are Halls Gluten Free   

      halls are gluten free. I ate tons this winter(sick) and was fine.

      ricola was not the last time I checked.
      • 0

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