This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
No skylark , this was my first test , I just assumed that perhaps having been off gluten for 4 months prior to the test maight have made a difference in the results even with enterolab, I don't know and no I have stayed away from a lot of fruits most of the time but never did go on the foodmap diet, I know I cannot tolerate onions in any shape or form and watermelon is a killer , I just find it hard to believe that fructose would make me so sick , it feels like a dozen dogs are chewing at every muscle in my body , on top of that I still have gas pain now my husband tells me I have sores and redness on my back , I am seing my doctor on Friday and will ask to be tested for fructose , in the meantime I will try foodmap , I have nothing to lose , I appreciate your input and knowledge .
It makes a lot of sense that an 8 after 4 months of gluten free should raise a red flag , what I find so confusing is feeling better than ever when I first reintroduced gluten , at least for about 6 weeks , what's with that , hence my confusion , anyone ........ Nora ........? I noticed that I always react to fructose with an increase in muscle pain and a lot of stomach and bowel issues , from what I read a lot of people who react to fructose also react to fructan , wheat is a fructan so possibly it is not a gluten issue as much as a wheat fructose issue , possibly I got away with the symptoms until I added a lot of fruit salad on top of the bread , does this make any sense to you ?
I have to find out if enterolab detects such a reaction , what I mean is could it show that I am not sensitive to gluten yet react to the fructose component of wheat ?
It makes a lot of sense that an 8 after 4 months of gluten free should raise a red flag , what I find so confusing is feeling better than ever when I first reintroduced gluten , at least for about 6 weeks , what's with that , hence my confusion , anyone ........ Nora ........?
I got my results from enterolab 6 weeks ago , the result was an 8 , anything under a ten is considered non celiac , however I had been off gluten for 4 months at the time of the test , needless to say I resumed eating gluten with a p[assion , I felt better it seemed , five weeks later I am now in the worst fibro flare ever , ibs flare , the works, the exhasustion , the fibro fog and the sudden depression makes me unable to function , could enterolab exagerate when they say that they can detect a reaction when one is off gluten , would four months have been too long , I dont know what to do any more, should i go back to gluten free , has anyone gone through this experience ?
Hello , I live in Ontario Canada, I have been on a very strict gluten free diet in the hope that it would help my stomach issues and my fibromyalgia symptoms . I read that there can be a long period of withdrawal however I am somewhat mystified that after 9 weeks I find myself with new symptoms , reflux has improved dramatically and the pain in my chest and upper back also but now I have pain in my lower back , legs and feet , I feel weak and tired and most importanly I went from havinbg greasy formed stools to very loose stools , is this due to detox or did I wait too long to start the diet , I am worried as to what is happening to me , I do not consume any gluten free grains , I only eat meat, non gassy veggies and bananas , no dairy , if anyone has had this experience I would be very grateful fore any input , thank you
Hi curious george,
I live in Hamilton Ontario , my test was covered , the secret is to get it done at a hospital lab, the insurance did not cover the test from the lab at my doctor's office , make a few calls , it must be the same in Toronto. Good luck!
Thank you both again, as of this morning I made a promise to myself that no matter what I will learn all I can and do all I can to get better, I am sure that my husband will be supportive , he does listen to all I say about reactions to different foods and he is not a fussy eater to begin with , like me he is puzzled at times and he does want me to get better , I realy cannot blame anyone but myself in not trusting my gut feelings ( pun ) that eliminating my triggers will help me heal!
Will let you know how it goes , in the meantime Merry Christmas to all !
TXPLOWGIRL AND gluten-free IN DC , thank you both for your advice , I have one more question , I forgot to add that my allergist has diagnosed me with corn as my biggest allergy plus eggs give me instant stomach ache , so if I add gluten , msg, sulfites , dairy , soy ( related to msg ) possibly nightshades as I react to tomatoes , glucose and gassy vegetables I am left with a very restricted diet , my question is am I a rarety ? did silent celiac cause all these sensitivities and will I eventually be able to add any of these foods once my gut has healed some ?
Every one I know eat all they want so I feel like such a hypochondriac ( wrong spelling I think ) around them , I guess I shouldn't as they all have health problems that may be caused by their diet , it felt good to eat what everyone was eating when I had company , it made me feel normal , now I realise that attitude is sick and hurting me , heck they all drink and I don't , yet I never felt bad about that so as you said only me can take care of my health , thank you for your support and kindness , it helps a lot to know other people can relate .
Thankyou for sharing your experiences, I have now made a promise to myself to stick to the diet, I seem to react to fructose, msg, sulfites and gluten , dairy , hence with every bad reaction and fibro flare I keep changing my diet , if I think fructose cause the flare then I eliminate that and resume wheat , the problem is that I can't seem to wrap my head around the fact that it could be all of the above , my diet would be so restrictive that I would have to cook seperate meals for my husband and shopping and cooking while in a fibro flare is difficult as it is , so I make the meal to please him and suffer the consequences , I know it's crazy, last night we had guests and I served lasagna , , the garlic in it alone gave me such pain in my left scapula and stomach I could hardly breathe , was it the sulfite in the tomato sauce, the gluten in the pasta , the ricotta and mozarella or all of the above , because so many people feel that fibromyalgia is a made up disease I hate to draw attention to myself by stating that I cannot eat anything that I suspect and I stress only SUSPECT is contributing to the pain, I suppose I cannot expect anyone to take me seriously as as don't really know what I am doing and the doctors have no clue as to what is causing my pain , except thatt I was diagnosed with fibro , the tighness in my upper back scapular area is at it's worst yet I hear gas in my upper stomach and suspect it's trapped gas in my upper back that's causing the pain , I also have heartburn and the PPI that I am on are not helping one bit , sometimes I manage to release a huge burp and it then feels like a giant bubble in my left shoulder blade is leaving my body and the pain simmers down yet I still feel the fibro tightness in that area when I try to turn my upper back sideways , all this to say that I don't know what to do at times , I had a two week flare last month after I ate date squares and pork roast with garlic, it felt like the flu without a fever , I could hardly move a muscle , stomach pain, shivers and nausea plus it made me real emotional I was in tears a lot of times and could not explain why except that I felt so sick , can anyone relate to any of this or am I crazy?
NEW ANTIBODY DISCOVERED IN THE BLOOD OF
MANY FIBROMYALGIA PATIENTS
Reactivity on the APA Assay Correlates with Fibromyalgia Severity in Many Patients
FOR IMMEDIATE RELEASE
NEW ORLEANS, February 10, 1999 - Autoimmune Technologies, LLC, a New Orleans
biotechnology company, today announced that scientists have discovered a new antibody in the blood
of many fibromyalgia patients. This research is described in an article entitled "Anti-Polymer
Antibody Reactivity in a Subset of Patients with Fibromyalgia Correlates with Severity," which
appears in the February 1999 issue of The Journal of Rheumatology, a prominent scientific journal.
Using a patented blood test called the Anti-Polymer Antibody Assay, or APA Assay, researchers
found anti-polymer antibodies in approximately one-half of all patients who were diagnosed with
fibromyalgia and in more than 60% of the fibromyalgia patients with severe fibromyalgia symptoms.
Patients with diseases frequently confused with fibromyalgia, including rheumatoid arthritis, systemic
lupus erythematosus, and systemic sclerosis/scleroderma, had a much lower incidence of these
antibodies than did the fibromyalgia patients.
Fibromyalgia syndrome is a chronic pain disorder that affects millions of individuals, primarily
women, in many countries throughout the world. The cause or causes of fibromyalgia are currently
unknown, but researchers have suggested that trauma, infection, and exposure to environmental
factors may all participate in the development of this debilitating illness. Together with widespread
pain and tender points in various areas of the body, signs and symptoms include fatigue, sleep
disorder, morning stiffness, headache, cognitive problems, and other symptoms. In the United States,
some 3% to 5% of adult women meet the strict diagnostic criteria of the American College of
Rheumatology for fibromyalgia, but as many as 15% to 20% of adult women may have fibromyalgia-
Fibromyalgia syndrome is often difficult to diagnose, and typically a diagnosis is reached through the
time-consuming and expensive process of ruling out other illnesses that have similar symptoms. In
addition, many physicians consider fibromyalgia to be the result of aging and other normal body
processes and do not regard it as a distinct clinical disorder. The resulting reluctance on the part of
some physicians to attribute their patients' symptoms to a specific illness has added considerably to the
distress of many fibromyalgia patients. Until now, there has been no laboratory test to help identify
"Our results show that there is a unique immunological response in many fibromyalgia patients," said
Russell B. Wilson, Ph.D., president of Autoimmune Technologies and lead investigator of the
published study. "We hope that these findings will lead to a better understanding of the illness and to
the development of treatments for these patients."
It is possible, Dr. Wilson pointed out, that anti-polymer antibodies are associated with one of the
several different causes of fibromyalgia, perhaps the cause that tends to produce the most severe
Thank you both for taking the time to answer my concerns, I will resume a gluten free diet , there has to be a connection , I also have a very low vitamin d level and autoimmune thyroid , I cannot find the newsletter I received yesterday and am quite upset that I may have deleted it , it was from the FM/CFS /ME association and it stated that a new blood test is in the making that actually shows antibodies in people with fibro and may well prove it's an autoimmune problem , it should be approved by the FDA and on the market within the next two years , wish I could remember all the details , maybe I will google it in the hope of finding it, it stated your doctor would not be aware of this study as yet , anyhow , more proof that it's not in our heads !
thank's again ,