This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Welcome. I have been on this road of gluten-free living for over 3 years now. I wish I had your baking knowledge. I am learning and have gone from hating the kitchen to loving baking and cooking. I love experimenting. Cooking Gluten-Free by Karen Robertson has some wonderful recipes. I love the cinnamon rolls and brownies.
mom to Beth and Samantha, both gluten and dairy free (me, too!)
My girls do not have access to a fridge at school. I pack their lunch in a 12-pack cooler. If the stuff needs to stay Cold, I used a freezer pack. If it needs to be hot, I put it in a stainless steel food jar from Nissan.
At home, we are all gluten-free just because it is easier and eases my mind about cross-contamination issues. Plus, I probably need to be anyway too. It certainly won't hurt DH. But, I am finding I can replace most of our food with great or better gluten-free alternatives. We ate mostly whole organic foods prior to going gluten-free. We just opened doors in one direction and closed them on the gluten behind us.
Now, away from home, DH eats whatever strikes his fancy. I had planned to be completely gluten-free by September 30 but a medical crisis (or two) with my in-laws has delayed that.
I agree here but I would do at least 6 weeks. Some say 12 to 20 weeks is what it takes to get dairy completely out of your system. However, from personal experience, you usually see signs of improvement quickly enough to know by 4 or 6 weeks if it is the culprit. Why was he on soy formula? Did he not tolerate dairy formula?
Because of the AA decent, I would not immediately suspect celiac but you never know where they might have been some European blood mixed in.
My allergy was probably always there but I was not diagnosed until 5 or 6 years old when it got severe. Also, allergies develop from over exposure to a substance. This can happen at any age. Also, they are finding children often do not "out grow" an allergy but the symptoms may change. Also, both my girls are dairy "intolerant" but both tested negative on allergy tests. But clearly neither can have it. I have heard kids with whooping cough sound better than Beth does when she gets milk.
My MIL had open heart surgery 3 weeks ago. She will be moving in with us when she is released from the hospital. She is clueless on our diet (gluten and dairy-free). She eats a lot of bread and has to have rolls with most meals. I am concerned about cross-contamination. I am not very willing to re-introduce these items into my house. We are happy without them. But, she has been through so much, I am not sure it is wise to further change her environment. We eat oddly enough as it is without denying her "staples" she is accustomed to. Any advice?
I think my family falls for both these "lies". My dad was diagnosed via blood tests at 3 y/o (50 years ago). He was put on a barley, rice and phenobarbital diet. Symptoms resolved and he was told he outgrew it. But, he has not been "normal" since. He goes four to five times a day - A DAY. He has had polyps removed. His mother has had colon cancer. My aunt and I have been diagnosed IBS. But, they claim there is no reason to be so concerned about my daughter getting gluten.
Also, I have found that once you change your mindset, living gluten-free is quite easy. I say that not being completely gluten-free myself yet. I have worked so hard to keep my girls gluten-free that I am only now (15 months later), focusing on me. At home we are totally gluten-free. It is at work that I slip. Mainly, it is money. A $.99 hamburger is much easier on the budget than the $5.50 salad. But, that is changing. I am going to be completely gluten-free by the end of September.
mom to Beth, dairy intolerant, gluten-free since Aug 04
and Sam, dairy intolerant and gluten-free since June 03
My daughter is believed to have celiac disease. Her bloodwork came back negative but since the doc was dragging his feet, I had taken her off gluten prior to the blood work (weeks prior). My dad was diagnosed celiac disease at 3 y/o and told he outgrew it. Now I know why he is never "normal". My aunt's (dad's sister) new GI doc told her that celiac disease is too rare for my dad to have been diagnosed with it. It was probably something else. So, that blew my idea of finding a good doc around here. Most are retiring. She does great of a celiac disease diet. So, I am not sure I "Need" a doc diagnosis. But, I think it would be nice to have someone believe me. Her ped (the one that did hte blood work) feels that if the diet is working, leave it at that. I guess I could if my family would trust that diagnosis.
So, know any celiac disease-literate doc in Alabama?
mom to Beth, 7 1/2 dairy intolerant just went gluten-free Aug 2004
and Sam, 4 dairy intolerant and gluten-free since June 2003
I discovered that my now 4 y/o probably has celiac just a month after returning to work fulltime. Talk about throwing you for a loop. Here is how I handle things:
1. I do NOT trust anyone to give her food I have not provided for her. Cross-contamination is too much of an issue.
2. I try to provide her with normal gluten-free food. She loves ham rolled around pickles (or cheese if your little one can handle that, we can't). Naturally gluten-free soups I make in my crock-pot while at work. Fruit, lots of fruit.
3. I cook/bake almost all weekend. I have a pretty good routine down and when it gets thrown off course, I am completely messed up for the week. I get up Saturday morning and get breakfast started (usually pancakes so they can be reheated all week or waffles). Then I start a load of laundry. I may also whip up some gluten-free muffins while cooking the pancakes. I have a great cookbook, well two actually, and bake lots from them so my girls do not feel left out. I can do gluten-free chocolate cupcakes, bread, brownies, muffins, chocolate chip cookies, etc. My girls never liked snadwiches much so I was accustomed to alternative lunches. Many potatoe chips are naturally gluten-free, same with corn chips.
4. We went nearly completely organic. The ingredient lists are so much easier to read. There is very little question about what this or that ingredient is. And, on the rare occasion there is, the product is often labeled gluten-free. My girls LOVE Envirokids cereals. Most are gluten-free and they have great old standbys -- KoalaKrisps are cocoa crispy type things. Panda Puffs are peanut butter like things, Gorilla munch is a lot like Kix and Amazon Flakes is a lot like Frosted Flakes. They are organic and gluten free and loved at my house. Plus, stuffed in a ziploc bag, their playmates never know they are not "normal" but healthy and safe.
5. Prepare prepare prepare. Get a freezer. Bake 5 batches of muffins on one weekend. Bake 4 batches of cupcakes the next. Get the idea. Then just pop them in containers and into the freezer. When packing a lunch, stick in an individual container and stick in their lunch box. It is thawed by lunch. If doing morning snack, you might want to stick it in the toaster oven for a couple of minutes to thaw it out some.
6. Mornings - I get up and hour and 15 minutes before the rest of the house. 1st I walk the dog (very relaxing) and then I make lunches. My girls are not old enough to do their own yet. Plus, I figure I am better able to handle the lack of sleep. My girls miss about 1/2 hour to 1 hour a day of the sleep they are supposed to be getting since we commute to school. I got fancy coolers for their lunches. There is a top semi-insulated compartment and a bottom very insulated compartment. Then there are a couple of pockets for utensils, napkins, etc.
I am sure I am forgeting something. This is so routine to me now, I barely think about it. Also, this has been a very stressful week for me. My mind is shot!
That is awful about your daycare. I guess I am lucky. Whatever I say goes, period. I have a much easier time with strangers. I just tell them she can't have wheat and they go with it. I know celiac is much more than that but I encounter those that don't realize white bread is wheat bread too.
Can you just pack his lunch? Don't let them give him anything that does not come from his bag. This is what I do. Even at the places that participate in government lunches are fine with this.
You may want to arm yourself with documentation as to why a biopsy may be needed. My insurances won't pay for one without positive bloodwork. I do not have $13,000. Even if they would do it, EnteroLabs is cheaper even without insurance coverage because of our deductable.
I believe some children do outgrow a milk intolerance when it is developed early. Some do not. Then others do not even develop it or perhaps, shows signs of it until later. Also, many intolerances/allergies may change symptoms you show as you age or are off of it for a while. I am allergic to milk, diagnosed at 6 years old. I was told I outgrew it. As a child it cause severe respiratory problems/congestion. Once it was re-introduced, I did not suffer that congestion. However, it did affect me in other ways. I did not know this until I got PG the first time. Dairy caused vomitting. So, it was removed from my diet again. A lot of other "problems" I had been having since an early teen (when dairy was re-introduced), disappeared. My leg aches/growing pains, headaches, bloating, irritibility, etc. was gone. Now, whenever I have a glass of chocolate milk (I indulge sometimes), I get severe leg aches for days.
Neither of my girls can tolerate dairy, with different symptoms. My youngest is the only one tested for an allergy to it and it was negative. But, she still can't have it. So what did I prove by the test?
Mel, how long was your daughter suffering from diarrhea? I have heard, the longer the celiac goes untreated, the longer before the healing takes. This could explain the diarrhea still. I also found that I missed some stuff, like playdoh, Elmer's glue, things you do not think of. Sam started reacting once a week when we changed schools. Turns out once a week they play with playdoh. I never even considered it. I can't stand the stuff so it was not in my house.
My four-year old is still nursing. She refused solids until 13 months old. She always had looser stools than I remember with my oldest but some babies do, I thought. I did not notice them get looser with solids but not really firm. I did notice after a stomach virus at 2 that her stools were never firm after that. Things progressed from there. Sam has never been small. 8 lbs at birth, 10 by two weeks and 20 by three months. She did slow down and now at 4 years old is 40 lbs which is still about average. I am tiny as is my oldest.
My daughter's blood work was negative also. But, since my dad was diagnosed at 3 years old, I removed all gluten from her diet. In a week she was potty trained and the diarrhea stopped. Since, I have read that under a certain age (3 or 5) the blood work is not extremely accurate. I have decided I do not need a diagnosis. She is thriving, why change that. It is a lot of work. But, she just can't do wheat. Now, her sister has some other symptoms that may be related to celiac. So, she is going gluten-free also. It is harder with her. She is older and in school. But, we are working through it. I have a friend that did not believe it could be celiac with her son. But, he grew three inches the first few months on a gluten-free diet.