I just found this site while I was researching celiac disease & I feel like I have finally come home!
I have not been diagnosed with celiac or IC, but if I don't have it, I may as well. I hesitate to go to drs & get new diagnosis because I don't wnat to be loaded up eith meds or surgeries, etc if I can change it with diet. I am already intolerant to sugar, dairy & now I believe grains as well.
3 years ago, I had a hysterectomy . One year after that, I was on vacation & had to come home because my bladder pain became so bad. I went to urologists for a year & they found nothing, not even infection. They loaded me up with long term antibiotics & Pyrideum. The long term antibiotics only made me sick in other ways, so I stopped those. The pain pills were crucial to my survival tho. A year later, I finally got on estrogen. I new I needed it, but when they checked my hormone levels they were always "fine". I finally found a dr that just gave it to me anyway. Well, lo & behold, my bladder got better & better every month after that. It is now a year later & I still have to avoid coffee, tea, yogurt, tomatoes in large amts, whole grains (which I just recently found out), canned meats like tuna & salmon. I can't think of others just now. Tea & yogurt are the absolute worst. A whole grain english muffin recently sent me to urgent care facility. This got me checking into Celiac related problems. I am 3-4 days into the grain free diet. The last 2 days I have been weak & faint. The first 2 days I was very irritable. With all my food intolerances, I am having trouble finding foods to eat outside of meat & veggies. I also have a yeast problem that I have had for years. My family askes me what I am going to eat. Drs can never find anything. I am completely disgusted with that whole profession. They just want to stick me on nerve pills to cover all this up.
Anyway, maybe estrogen replacement may help some of you IC ladies as it did me. I can identify with every single one of your bladder complaints.
So glad I found this site!!!!!