This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
You might want to consider fat intolerance. Celiac's can and often does destroy the gallbladder - it did mine! You need a certain amount of dietary fats to absorb the fat soluable vitamins (so don't eliminate fats completely). However, if you notice more GI discomfort in the late afternoon/evening, a lot of smelly gas, a pain under your first right side rib (just above your stomach), perhaps some pain in your back directly behind that area, and some right side shoulder pain - you might consider that it is your gallbladder.
I too have Gallbladder problems (just diagnosed) - they are very common with Celiacs. There is a lot of information on the Web about flushes, but I am very interested in your experience. I have had an Ultra Sound and a HIDA scan (28% function) done for my gallbladder, and my doctor never mentioned a flush. Has your M.D. made the recommendation, or are you seeing a Naturalpath. I really want to keep my gallbladder, so I am searching for alternatives. I know this does not answer your question, but I appreciate any information you might be willing to share!
Doctors work for us, and since you are a Celiac, you can have the expectation that the doctor will indeed test your children for the disease. So don't go in all apologetic with a list of "reasons" for your doctor to do the tests. Tell him/her that you want the testing done as soon as possible due to the genetic risk, and that you appreciate their efforts. If a doctor ever makes you feel like you need to give them even one more reason to have that testing done, find another doctor - just be confident!
See if your doctor can perscribe a different Thyroid medication that is dairy (lactose and casien free) as well as gluten free. Try that and see if all goes well before you start looking for other grains - it's worth the investigation! Good Luck!
quote name='Martyg' date='Jul 9 2008, 12:05 PM' post='445582']
I do not normally do milk, yogurt (cheese does seem to bother me) so I don't know if there is a problem. Years ago when I did drink some milk, I always bought the lactose free. I don't normally do dairy, except some cheese..
I've been eating mostly rice and don't know if I am becomng allergic to that. Can celiac's develop allergies to the limited grains that are permitted.
I was going to tell you that your new medication contains lactose (I am lactose intolerant). Do you normally use cows milk, cheese, yogurt, etc. (lactose) in your diet without problems? I am sure you noticed that your old thyroid medication does not contain lactose. The Lamotil you are taking also contains corn starch - do corn products normally bother you? - Just some thoughts.
I am negative for DQ2 and DQ8, and female. I have 1/2 of the DQ2 gene, and have Celiacs, "Mine was highly unlikely, but still possible (like less than 1% chance, but still a chance - I seem to always fall into that category )." Science still knows very little about all the factors that result in Celiacs. One member here told me that countries other than the United States include more genes in the diagnosis - I don't know what those are (anyone?).
Anyway, I have my life back since my diagnosis. If being Gluten Free did not solve a life time of pain for me, than I would be searching for a different diagnosis. I am happy where I am at!
I have always heard that first degree relatives should always be tested. The chances are so much higher!! Now, for my opinion on a possibly "touchy" subject - I don't think I like the doctor you discussed very much at all. Your family doctor knows that you cannot tolerate gluten, then tells you that he or she thinks a gluten-free lifestyle is "rather unhealthy." My diet is much healthier without gluten. Just for example, I do not get the food cravings to eat excess breads anymore (and that is very unhealthy). If it were me, I would be off finding a much more supportive doctor!
For the others in your family, why not? If all of you have the same problem, it would be certainly easier to manage your household gluten free, and remember although statistics say 1 in 100 people have celiacs, 15% of the population is gluten intolerant. Anyway, good luck - hope this helps, Kelly
I'm sorry, to clarify the test said I was DQ2- and DQ8- (negative after each meant negative for each), but that I had the presence of the "HLA DQA1*0201 Alleles." So I'm negative for the two major genes, but have this "HLA DQA1*0201 Alleles," and I do not know what that means.
Hello, my name is Kelly, and I am new to the group. Throughout my life I have experienced a lot of GI issues, that have coincided with increased consumption of Gluten (I really did not make that connection until this January). I'd feel reasonable great in the summer (times when I rarely if ever ate things that contained Gluten), and then would become progressively misserable throughout the winter as I ate more breads. cereals, and cookies.
Anyway, I spoke with my doctor about this, and she ran the celiac serology panel (that included IgG and IgA Gliadin Antibodies, and total serum levels). This test came back negative, with normal serum levels. Then, I started a gluten-free Diet. It has been three weeks, and I feel better than I have in my entire life. My joints don't hurt any more, my bowels are not going crazy any more, and I have more energy. I don't mind being gluten-free at all, especially since it makes me feel so good!
Due to my response to the gluten-free Diet, my doc sent me to a GI specialist who decided to run the Gene Test for Celiacs. Those results came back today, stating that I was DQ2- and DQ8-, with a less than 0.1X (or extremely low risk) of developing Celiacs. However, the "HLA DQA1*0201 Alleles" was detected - I have no idea what that means, and the GI doctor did not explain.
I was hoping that someone here could shed some light on these results. I have had the allergy tests for the "big 10." I really do believe I am sensitive to Gluten. Can a person have a gluten intollerance without having positive genetics, are there other genes that might be involved, or do I have somewhat positive genetics with that "HLA DQA1*0201 Alleles?"
Any and all advice would be extremely helpful! Thanks so much, Kelly