Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

H*****

Advanced Members
  • Content count

    19
  • Joined

  • Last visited

Community Reputation

0 Neutral

About H*****

  • Rank
    New Community Member
  1. http://scienceblog.com/community/older/2003/B/2003848.html
  2. P.S. See http://Lame Advertisement/p/articles/mi_m0FDN/is_1_12/ai_n19170706/ and http://scienceblog.com/community/older/2003/B/2003848.html
  3. Nicole, Curcumin has TNF blocking action without being unduly immunosuppressive. I wonder if it would work for ulcerative colitis?
  4. I received this letter today from Lawry's: Lawry's September 2, 2009 Dear Ms. Davis: Per your request we are sending a letter in addition to our email response, in reference to questions about your gluten inquiry. We are writing to clarify your concerns about our ingredient statements. In our initial response, our language about rye and barley is mentioned in addition to other grains related to various forms of wheat. We were not stating that barley and rye are "related grains." And while all forms of wheat gluten are listed as "wheat" in our ingredient statements, other grains such as barley and rye, are always included in the ingredient statement if they are present in the product. Though the FDA does not require us to label barley or rye, we do so in an effort to be more helpful to our consumers. When present, these ingredients are not listed in bold type like the "Big 8" allergens, however. Our Lawry's Seasoned Salt contains no gluten from wheat, barley or rye. As we mentioned before, we always encourage consumers to review the ingredient statement at the time of purchase. If you have any additional questions, please let us know. We hope to have the continued pleasure of serving you. Sincerely, Jennifer Heinlein Consumer Affairs Specialist *** No gluten from wheat, rye, or barley!. It couldn't be any clearer than that! Thanks Lawry's!
  5. Me too! Count me in! I'm gluten-free, but also have primary biliary cirrhosis. Would love to have beer and wine without the repercussions to the liver.
  6. I am 61 but occasionally I take college courses, and I can tell you that our local community college cafeteria has gluten in just about EVERYTHING! I have written gluten-free suggestions to them numerous times, but they don't make any changes. About the only thing I can safely eat there is a piece of fresh fruit, one of the salads that has no croutons, and a couple of the salad dressing packets, and a cup of milk. I get so tired of the same thing over and over. But that's truly all they have that is safe! They have sandwiches, and pasta, and pizza and chips that have gluten in them, etc. etc. There is absolutely no source of protein there, aside from milk, that they have not contaminated in some fashion with gluten! So I REALLY sympathise with your plight as a college student. My suggestion is to start brown-bagging your lunches. I think that's the only way you're going to make it through college. It's very sad that college cafeterias are so unresponsive to the needs of their celiac students, who may actually in many cases be living on campus.
  7. As an untreated celiac your risk of death is twice that of the normal population. See http://www.celiac.com/articles/148/1/Celia...ated/Page1.html
  8. I've been there, and I love it. I especially like the triple combo, which is guacamole, hummus, and artichoke dip or seed pate. I just ask for more of the first two and make it a double combo. If you tell them you're gluten-free they will take care to substitute more 100% corn chips, and celery sticks for the usual pita bread.
  9. Yes, Tamiflu is gluten-free according to http://www.clanthompson.com/res_info_lists...d_category_id=6 .
  10. Slow stomach emptying can also be a sign of scleroderma which can go along with celiac disease. Ask for the ANA test, and if it is positive, regardless of staining pattern, demand the anticentromere B test which is specific for the most common form of scleroderma. My diagnosis was delay because other autoimmune disease was masking the ANA anticentromere staining pattern. DQ8 is notorious for causing multiple autoimmune diseases. I have DQ8.
  11. I have the DQ8 gene. Also have CREST scleroderma. the skin on my lower legs is exceedingly dry and flakey. When I put on dark socks, the flakes form dust all over them. It is a problem I have had for years. Ask you child's doc to run the ANA test on her. If it is positive, with any staining pattern whatsoever, demand the anticentromere B test which is highly specific for CREST scleroderma. My diagnosis was delayed for many years because other autoimmune diseases were masking what othewise would have been an anticentromere pattern. Finally the test was done this winter and was highly positive.
  12. CREST scleroderma is the most common form of scleroderma, and unfortunately the docs usually do not do the anticentromere B test to check for it, if the ANA staining pattern is other than anticentromere. In my case the ANA pattern was speckled, homogeneous or nucleolar, and only once was it anticentromere. So my docs did not do the anticentromere B test. I went undiagnosed for years until this winter when a neurologist finally ordered the anticentromer B test and it came out highly positive. I also have the DQ8 gene which can cause a multitude of various autoimmune diseases. Apparently I also have at least one other autoimmune disease which masks the anticentromere ANA staining pattern most of the time. Moral of the story, if you have symptoms of CREST scleroderma (burning, aching, hurting hands or feet; tendonitis; gastric reflux or difficulty swallowing dry food (lingers in the lower esophagus); hands and feet over-sensitive to cold; ring size changes; or any combo of these), you should insist on having the anticentromere B test, and if positive, get yourself to a scleroderma center where the docs know how to deal with this complex disorder. Most rheumatologists just aren't knowledgeable in how to deal with it.
  13. I have both the DQ8 gene and CREST scleroderma. My recent anti-centromere B test came through quite positive, and this test is supposed to be over 98% specific for CREST scleroderma. Since this is a progressive disease, it can be assumed that the other 2% will eventually develop at least 2 of the 5 signs needed to diagnose it when these antibodies are positive. In fact, I have 4 of the signs in the CREST acronym, plus liver inflammation, spinal inflammation, tendonitis, neuropathic symptoms, Hashimoto's thyroiditis, dry eyes, and obstructive sleep apnea, all of which are common with this condition. I, too, am wondering how many of us, particularly those of you who have DQ8, have scleroderma? Unfortunately many doctors do NOT test for the anticentromere B antibodies, choosing to test only for SCL-70 instead. So in my case, diagnosis was delayed for many many years, primarily because I apparently also have another autoimmune disease which masks the ANA anticentromere staining pattern, making it look like other patterns. Most of the time the pattern simply looks homogeneous. Once the pattern was anti-centromere, however, many years ago, and the docs failed to do a followup anticentromere B test. It wasn't until this winter that a neurologist finally did the test, and it came out positive. So the moral of the story is, the DQ8 gene, in particular is notorious for causing multiple autoimmune diseases, and if you think you have the symptoms of scleroderma (particularly aching, burning hands and feet, with hands and feet quite sensitive to cold, gastric reflux, and ring size changes) be sure to insist on the anticentromere B test! If you have had both the anticentromere B and SCL-70 tests, and they were negative, we need to know that, too, so we can get an idea of the proportion of properly tested people who have this disorder. You should also tell us whether you have DQ8 or DQ2.
  14. I'm sorry to tell you, Nick, but the study of Jurnanik et al (at http://www.sciencedirect.com/science?_ob=A...c083e37ebadd72c ) indicates that untreated celiac disease may result in multiple myeloma. Your friend needs further testing for both! Since gluten sensitivity may not show up in the serum blood tests, he should probably have the fecal antibody test and HLA testing. These are both offered by Enterolab. If either of these is positive (and considering his reaction to the malt beverage), he should probably go gluten-free. The next test he should have with regard to myeloma is immunofixation and electrophoresis of blood. If this is positive, he should find an oncologist who specializes in multple myeloma to further clarify whether he has multiple myeloma, or just the precursor stage, which is monoclonal gammopathy. However, since his IgG is that high, together with low IgA and IgM, chances are that it is indeed multiple myeloma.