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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About linsmad

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  1. Has anyone researched this at all? I use Wishbone Light salad dressings and the ingredients "seem" to be fine-but when I double checked on their website-the info was evasive. The Cecilia's book only has some of the Wishbone dressings listed? Can anyone help me on this? I would really appreciate it!
  2. My husband and I just struggles with this exact decision ourselves. My dh has celiac and we decided to blood test both of our kids a year ago (though neither were showing any symptoms). One came back slightly elevated, the other negative. Our pediatric gi advised waiting and re-testing our slightly elevated child via blood 6 mos later. The results were slightly skewed. One of the tests came back markedly higher while the other one decreased. We were recommended to have our 7yo daughter undergo a biopsy. Our first reaction was to try dietary changes for a number of months and then re-blood test (which the doc agreed to as long as we were willing to commit to 6 mos.). In the end we decided to undergo biopsy so that we have an answer. For us we needed to be able to tell her (and ourselves) yrs from now that we have definite results. The process was not bad at all (both dh and I have done it ourselves but were dead set against it for our daughter). Honestly things couldn't have gone more smoothly. Our outcome was that she has celiac. I am glad that I have those definite test results for her and for me! Best of luck with your decision-it's never easy, but just do what you think is best for you and your child!
  3. In addition to the previous suggestions...I would also add a colander and anything teflon or non-stick. Those surfaces are pourous and despite many cleanings I was unable to clean it enough. Hope this helps!
  4. My 7 year old daughter was just diagnosed with celiac too! My husband has celiac so we have eaten quite a bit of gluten-free food over the years. When I told her that she needs to eats gluten-free like her dad she said-OK. That was it. She sees that he eats well-and she eats most of the same stuff too. It is a great idea to make the homemade lunch enviable. Someone recommended Annalise Roberts cookbook-and I can't say enough about that one too! Amazing. You don't miss the gluten in those recipes at all! My non gluten-free family members LOVE the bread! (And they don't even have to eat gluten-free!) What did everyone do with the school-did you let them know right away? Just the teacher and school nurse? I am not sure how to go about informing everyone. Did you send a note or anything to classmates parents so that you can get a heads-up of class birthdays and such? Any help would be great. Thanks, Tracey
  5. Thank you all for your replies. It is good to know that even in "asymptomatic" cases there were improvements. We aren't going for the endoscopy for about two weeks-so I still have some time until we get actual results. Was it hard for your kids to accept the diet given that they weren't "really sick" (for those who were old enough to understand)? We basically eat gluten-free in our home, it's just school and going out that will be a change...
  6. My husband was dx with celiac about 6 yrs ago. He was completely fine and then all of a sudden had terrible stomach issues and lost almost 40 pounds over a few months. He never had the irritability that many people have described. Oddly enough-he does now! Whenever he ingests the slightest (and I mean slightest) amount of gluten he becomes a totally different human being (and not a very nice one!). I know first hand how hard it is to seperate the disease from the person in these situations. This "gluten volatility" that my husband suffers can last for days on end! We have two children and they are starting to be able to tell the difference when he has been accidentally glutened. My best advice to you is to follow your path on the gluten-free diet. The best thing you can do is take care of yourself first so you wife can see first hand the changes you have made in yourself. As for me-I can understand to a certain degree these mood swings and things-but it is so hard for my kids and other family member to understand.
  7. My 7yo daughter is asymptomatic but has has two progressive blood tests with elevated EMA/iGa numbers. The ped GI is recommending she have an endoscopy to determine if she has celiac or not (my husband does). We randomly screened both kids and found slight elevations in my 7yo. I am wondering if anyone else has found out that they or their kids had celiac and were asymptomatic but noticed improvements after going gluten-free. When my husband was diagnosed at 41 we were thrilled he had celiac. He had been so sick he had lost 30 pounds and was so lethargic. He had a life changing improvement after making the dietary changes. I am just wondering if there will be some sort of improvements to anticipate for my daughter should she be diagnosed with celiac and have to maintain a gluten-free lifestyle. I hope this makes sense. Thanks in advance for your help!
  8. I think that in my case several people recommended getting an endoscopy as proof. Since we have no reason to suspect anything (any change in diet may only improve things internally) it would be hard to judge whether dietary changes are working. Before instituting a lifetime of changes for my daughter-should we have the "gold standard" proof? My pediatrician had told me that with our family history and the slightly positive bloodwork, he was comfortable saying that she has celiac. When the same doc consulted a pediatric gi with the test results and growth charts, this doc was not comfortable with a celiac diagnosis without further evaluation. They said more conclusive testing needs to be done. I guess the positive is not such that even with a family history is so conclusive that warrants no additional testing. My husband and I are looking to do as minimially invasive testing as possible, but yet be comfortable that we have a conclusive diagnosis. I don't want my daughter to turn 13 and question this. Even for myself-I don't want to look back and question this situation. Does this make sense? This whole celiac thing can be so complicated!!!
  9. Denise61 Does your son have celiac? Or does he just have the markers for celiac? My daughter blood tested positive (slightly) but shows no other symptoms. She is and has always been 95 percentile for height. My ped contacted the pediatric gi (we have an appt in july) and said that further evaluation would be necessary. Did you do any additional bloodwork or just an endoscopy? Thank you for your reply...I wasn't sure if this ever happenned?
  10. Thanks for all of your responses. As I suspected the B vitamins seem to be very important. My husband is going back to his gi doc, and can possibly be tested for vitamin deficiencies as well. I will check out some of the products listed too...
  11. I don't know if you like the pretzel taste...I've breaded chicken tenders by first dipping in a mixture of honey mustard and a dash of milkf, and then into gluten-free pretzel crumbs (the sesame pretzels are great for this) and thne bake them. My kids love them =
  12. Thanks for yor replies. The pediatric GI doc office said that they will do as little invasive testing as possible to gain a diagnosis. I am confident that we may be able to avoid an endoscopy in this case. What is strange is that our pediatrician (when giving me the results that my daughters blood test was positive) asked me if she eats gluten currently, or is if she is currently on some sort of a gluten/wheat restricted diet? This leads me to think that her blood work numbers were not really that high. She currently eats whatever she wants. Am I crazy to think this? I have a call into the doctor to further explain the results, because perhaps they were borderline? Has anyone ever done prometheus testing, or other advanced bloodwork testing to confirm their diagnosis? I honestly think my daughter will be fine whatever the outcome. We do a lot of baking for my husband, and my kids LOVE his gluten-free food! Hopefully we'll make this as positive as an adjustment as possible =
  13. I am new to this board...I recently had both of my children blood tested for celiac-and my older daughter (age 6) came back positive. She shows no signs or symptoms at all. My husband was dx with celiac about 5 years ago. My pediatrician recommended that we take our daughter to a pediatric GI doctor. Has anyone had similiar experiences? Did you have go through an endoscopy or were you able to just put the child on a gluten free diet? I am willing to accept the gluten-free diet, but am reluctant to put her through an endoscopy, as it will only confirm what we already are confident of through blood test. Is it really important to know the level of damage in her body? Have your gi docs recommended endoscopy anyway? Also, did you begin a gluten-free diet immediately after blood work confirmation? Any help would be greatly appreciated!!!
  14. Has anyone found any help in relieving some of these symptoms with b vitamins? I have read that people with celiac are more likely to suffer from this type of vitamin deficiency with in and of itself can cause depressive symptoms. Does anyone have any experience with this? What b-vitamin supplements do you take? Thanks in advance!
  15. My husband never suffered from depression and anxiety, until after he removed gluten from his diet. Whenever he accidentally is "glutened" he is absolutely unbearably miserable!! It is a hard thing to go through, and I saw the post on the green magma. I will check this out for him! This site is so helpful for dealing with all the stuff that goes along with gluten intolerance. When my husband was diagnosed, we were told, " just don't eat gluten" and given a list of acceptable and unacceptable foods. That was it. This website has been so helpful!