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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About chb

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  1. Thanks for sharing that blog. As someone who was told by my doctor that I wasn't celiac, but should just avoid gluten if it made me feel better, it is nice to see gluten sensitivities taken seriously. This journey is so hard some days, it helps to have a medical person encouraging me that it IS necessary for me.
  2. My tests also came back showing I needed to eliminate casein. It was a tough blow. I had already been gluten free for 2 months and still felt pretty rotten. It was only when I eliminated the milk, that I really started to feel better. Everyone is different, I suppose you could just do the gluten first and then once everyone has adjusted, drop out the milk to see what difference it makes. Gluten or casein sensitivities are not only about your intestines. I had no GI symptoms at all. If you are making antibodies against gluten or casein, your body will be reacting to it in some way and your digestive system is only one of the system's in your body.
  3. Sigh....I swear this dairy free thing is harder to handle than the gluten free.
  4. I wanna play! No more or mostly gone: Migraines Brain Fog Flashing lights Fatigue My "Tantrums"--there's just no better way to describe it Rash on face Lost the weight that I had gained when I felt so bad
  5. I made the corn/rice version for the first time tonight and it came out very nicely. The crust was pleasant tasting with good texture to it. My non gluten-free husband thought it was really good. Give it another try with the vineagar--it must have made a big difference.
  6. Thanks so much cragiecarter for bumping this post up. I'm sure I glanced at it at the time, but I didn't know my gene testing results then which also happen to be the same as Crimson's. I actually had my endoscope done the day of the original post. Since my endoscope looked good, my blood tTg was not elevated, and I have no GI symptoms, the GI doc did not give me a diagnosis of celiac. I was just told, stop eating gluten if it makes you feel better. My Enterolab results showed all of my values elevated except for malabsorption. Wheteher it all makes me celiac or just "gluten intolerant" all I know is I feel soooooo much better now. I suffered from fatigue and nuerological problems.
  7. Dbmamz, Thanks so much for that first recipe you posted. I made a batch earlier in the week and they were GREAT! I've got my stuff lined up to make some more today.
  8. Personally, I had been feeling so awful and been back and forth searching for answers, I was very relieved to have something to grasp on to. Of course, it's a lot to fully take in at once. I have a lot of days now that I am feeling better that I have a pity party for myself that I didn't have when I found out gluten was a problem. It was a much harder blow for me when I got my Enterolab results back and realized I needed to cut out dairy also.
  9. I don't know about Canada delivery times, but when I just did my testing with Enterolab it took exactly 3 weeks from the day they recieved my box to the day they e-mailed results to me.
  10. THANK YOU everyone who has replied so far. Your answers are helpful to my scattered brain. And Lizz, especially thank you for that thought. I'm sitting here trying to muster up energy to go do music at VBS this morning and that really helped!
  11. Hi all, I have mostly been plauged by fatigue, infertility, and neurological symptoms. Came across info in the spring that it might be the gluten. I felt so good after a small gluten free trial I went back on it to have the tests done. My blood tests came back negative for everything, except I had an elevated antigliadin IGA. My endoscope biopsies came back clear. My doctor pretty much said you don't have celiac, but if eating gluten free makes you feel better, it won't hurt you to try it. Wanting to nail down exactly what was going on with me, I went ahead and ordered the tests from Enterolab. The following are my results: Fecal Antigliadin IgA 45 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 84 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score 283 Units (Normal Range <300 Units) Fecal anti-casein (cow's milk) IgA antibody 26 Units (Normal Range <10 Units) HLA-DQB1 Molecular analysis, Allele 1 0202 HLA-DQB1 Molecular analysis, Allele 2 0301 Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7) Interpretation Of HLA-DQ Testing: Although you do not possess the main HLA-DQB1 genes predisposing to celiac sprue (HLA-DQB1*0201 or HLA-DQB1*0302), HLA gene analysis reveals that you have two copies of a gene that predisposes to gluten sensitivity (any DQ1, DQ2 not by HLA-DQB1*0201, or DQ3 not by HLA-DQB1*0302). Having two copies of a gluten sensitive gene means that each of your parents and all of your children (if you have them) will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity may be more severe. So, I feel really good that this verifies what my body is telling me when I eat Gluten free. I have been gluten-free for a little over a month, except for a few mishaps, that immeadiatley brought on the visual disturbances and migraines. I have two questions though that I would love to hear advice about: I am shocked my casein came back elevated. Could it be resonsible for neurological problems or does it only manifest itself in GI problems? I don't have a problem following the gluten-free diet, but the thought of eliminating any milk products really is a tough blow. Since my Transglutaminase is elevated showing an autimmune reaction, does that mean it is Celiac or just as my gene test shows a sensitivity to the gluten? Does a gluten sensitivity lead to an autoimmune reaction? Just kind of wondering how I label myself. Thanks so much for offering up any thought on how you understand my values. I'll be e-mailing my doc tomorrow to see what reply she might have to the tests she did vesus what Enterolab came up with.
  12. I saw them today at Kroger.
  13. Atlanta Gluten Free Bakery?

    I have no idea if they do gluten free, but my SIL ordered a vegan cake from this bakery in Dectaur a couple of months ago for my nephew's birthday party because there were some kids in his class with egg and milk allergies. The cake was delicious. (Was able to try it since I hadn't had my endoscope yet.) They also do wedding cakes, so it might be worth your time to call and ask if they have ever done anything gluten free.
  14. I agree, Dr. Green's book is excellent. Do you have a library nearby? Maybe you could check out a few of the ones you are interested in. Read them, and then decide which ones are worth owning. I have been able to check out all the books mentioned so far from our library.
  15. I just wanted to share my good experience with others. I finally got in to see the GI for my referral today. I have been very nervous about having to go to yet another Dr. and try to jusify my symptoms. Especially after reading the experiences that some of you have had. (Just a little backgorund, I have mostly nuerological symptoms, infertility, fatigue--no GI. Tried a couple of weeks gluten-free and felt SO much better, so I went back to eating it to see what the tests would show. My celiac panel values were all negative except for my IGA Gliadin was positive.) I saw Dr. Toubbeh at the Glen Lake Kaiser Permanente center in Atlanta. She was very nice and well informed. Totally up on having a gluten sensitivity/celiac without GI problems as the main symptoms. She said I defiantly had plenty of symptoms to warrant investigating. Her take on my blood work was that the antibodies that my body is making aginst the gluten were "not the most specific for celiac, but they were the most sensitive." I have an upper GI endoscopy scheduled with her. She did also warn me, that it was possible that there would be damage that might be missed being seen during the scope, and that following the diet for a longer period would be recommended even if damage is not seen. She said if the diet makes you feel better than do it--it won't hurt you. So, I left feeling pretty good. She totally confirmed for me that I am going on the right path. So, I just wantd to share for others out there that there are some really good knowledgable docs out there. On a cute side note, we were all snuggled uo on the couch this evening and my husband asked me, "So can you start the special diet now, or do you have to wait?" I told him I had to wait until all the testing was done. My 8 year old piped up and said, "Mommy, why do you have to go on a diet? Your already skinny." Lol! That made my day!