This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
After a year of being diag w/Celiac Disease and Crohns, trying different gluten-free diets(Blood type,SCD......) I've come to the conclusion that ALL GRAINS are not working for me. I can eat rice one time without an apparent reaction but if I eat rice say once a day for 4 days straight I will start to have GI issues. Also potatoes, corn , soy, beans and dairy are out. Meat, veggies and some fruits are what I eat.
I'm pretty much back on the SCD other than my meds for Crohns.
I've been making muffins and pancakes with almond flour and it's not half bad. I don't handle Honey that well so I use berries or apple sauce for sweetness. Nothing like the Dunkin Donuts muffin I use to eat every morning but does the trick.
I was out like a light during my Colon/Endoscopy(sp?) and can't remember a thing.
The prep was a bit painful from the amount of bathroom trips
I was a little tender for a few days after but it cleared up after that.
I would call my doc if I felt extreme pain afterwards!
As you stated Entocort cannot guarantee that there product is gluten-free because sometimes there venders use Corn starch and sometimes WHEAT starch. I was told this by the company and so was my GI. I was told to stay off that drug.
I currently taking a 20 day run at 10 mg of prednisone for Crohns( I also have Celiac)- and it does work. BUT its like making a deal with the devil. I helps a lot of symptoms but replaces them with many side effects. Also my experience is that it doesn't Cure anything-my GI problems have returned soon after tapering off both times I took it.
If you do end up on Prednisone make sure the bottle states its gluten-free. Roxane brand is gluten-free.
The first 2 brands I took caused me upset stomach and cramping along with urgent needs to go to the bathrooms within 24 hrs of taking them.
The one I'm currently taking has no side effects for me.
Do they work?
-I would say yes. My BM are down from 3-4 a day to 1-2 and they're not as urgent. Very little cramping and if I do get cramps/pain I take a few more enzymes and that calm things down. I was total grain free for a while and for the past week I've been eating rice again without the GI problems I previously having.
I've been following the SCD on and off for 6 months. I do feel better when I eliminate ALL grains and sugars. Occasionally I eat potatoes without any symptoms but I try to stay as close to the diet as I can.
The biggest issue for me is a lot of the foods that are recommended give me GI problems-Almond flours, Dairy( SCD Yogurts, Farmers Cheese), Red meats, Honey, Pork and most Fruit-even Bananas bother me. So getting enough calories is an issue.
I have bone, joint and muscular pain along with extreme fatigue.
It was worse for 3 months after I went gluten-free. It then went away after 4 months of Prednisone (I have Crohns also) and now its back again.
Going through the diagnosis process is not fun. It took me around 3 1/2 months of hell before I was confirmed to have Celiac Disease. But I also had a colonoscopy and was told I had some irritation in my colon and that I might have Crohns as well as Celiac. Turns out that I do have a mild case of Crohns. So I guess I'm saying in my case it was worth to get the biopsy. If you choose to go with a biopsy make sure that you get a colonoscopy at the same time. All these intestinal disorders have similar symptoms so the best way is to go in and check them all out.
I think how your feeling is perfectly normal phase to go through.
I was so sick for a while I didn't care about the social impact on my life,I just wanted to get better. But now that I'm venturing out of the house again I'm running into the same issue.
I do feel seperate from others in social contexts where food is present but this is still pretty new to me and this is gonna take some time to get use to.
I'm going to a support group next week for the first time so I think that may help.
I think meeting people that know what your going through could be a very positive thing.
Is there a support group in your area?
And like the other said seek prof help if you continue to feel down.