Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Chelsea_Lynne

Advanced Members
  • Content count

    10
  • Joined

  • Last visited

Community Reputation

0 Neutral

About Chelsea_Lynne

  • Rank
    New Community Member

Profile Information

  • Gender
    Female
  1. I probably will eat a gluten free diet for the most part, but I like the idea that I could eat gluten if I wanted to if I don't actually have Celiac since it won't cause damage.
  2. I have been seeing a gastroenterologist since the summer because I wanted to get an actual diagnosis. I have been eating gluten free for about 6 years because I thought it made me feel better. I used to get stomach cramps and diarrhea all the time. I had bloodwork done when I was younger, and the "Tissue Transglutam AB IGA" and "Gliadin AB IGA" were negative. My total IGA was 233, which was in range. The only thing that was positive was "Gliadin AB IGG, and it was 53 (Strong Positive). Those were the only tests I had done when I was younger, and my doctor didn't think I needed further testing. I had a Celiac Disease Complete Panel several months ago, even though I have been eating gluten-free for around 5 years. My gastroenterologist ordered it just to see I guess. My total IGA was 226, which is in range. The "Deamidated Gliadin Abs IgA" was 6, which is negative. The "Deamidated Gliadin Abs, IgG" was 2, which is negative. The "tTG IgA" and "tTG IgG" were negative as well. I also had the genetic testing done. It says negative for DQ2, but it says positive, one copy also for the alpha subunit I'm guessing. It said positive overall for DQ8, and positive, one copy for both the alpha and beta subunits. So I have one copy of the alpha subunit of DQ2 (overall negative) and one copy of each of the alpha and beta subunits of DQ8 (overall positive). I then did a gluten challenge and ate gluten for around 6 weeks before having an endoscopy done. My gastro took a lot of biopsies in different areas. I also had the Celiac Panel blood work done again after eating gluten for about 7 weeks. I got all of the results today, and everything was negative. I had no damage at all in my intestines. When I was eating gluten during my gluten challenge, I noticed a lot of bloating and gas, slight headaches, fatigue, and an increase in my anxiety. Could I still have symptoms like that even though I don't have Celiac?
  3. Aww, that must be horrible. Thank you. I'm really nervous to have an endoscopy done, but I really want an actual diagnosis.
  4. I recently saw a gastroenterologist because I want to know if I officially have Celiac disease or if I just have a sensitivity to gluten. I had bloodwork done when I was younger, and the "Tissue Transglutam AB IGA" and "Gliadin AB IGA" were negative. My total IGA was 233, which was in range. The only thing that was positive was "Gliadin AB IGG, and it was 53 (Strong Positive). Those were the only tests I had done when I was younger, and my doctor didn't think I needed further testing. Today, I got the results back from my recent bloodwork. I had a Celiac Disease Complete Panel, even though I have been eating gluten-free for around 5 years. My gastroenterologist ordered it just to see I guess. My total IGA was 226, which is in range. The "Deamidated Gliadin Abs IgA" was 6, which is negative. The "Deamidated Gliadin Abs, IgG" was 2, which is negative. The "tTG IgA" and "tTG IgG" were negative as well. I also had the genetic testing done. It says negative for DQ2, but it says positive, one copy also for the alpha subunit I'm guessing. It said positive overall for DQ8, and positive, one copy for both the alpha and beta subunits. So I have one copy of the alpha subunit of DQ2 (overall negative) and one copy of each of the alpha and beta subunits of DQ8 (overall positive). My gastroenterologist said that I could still just have gluten sensitivity and not Celiac with these results. The only way to know for sure is to do a gluten challenge and have an endoscopy done. I'm planning on starting the gluten challenge in October after my school interviews. With this information, do you think it could just be gluten sensitivity and not Celiac? I'm hoping it isn't Celiac, so I won't have to be so strict about eating gluten free. If I actually had Celiac, would I have a reaction from a very small amount of gluten? I have had a Twizzler in the recent past without any issues.
  5. I just got a copy of my twin sister's bloodwork, and these are her results: Anti-Endomysial: normal Gliadin IGG: 47 HI Gliadin IGA: normal Do you think she has a good chance of actually having Celiac or no?
  6. Thanks. I guess I just wish I didn't have to eat gluten free. People hate going out to eat with me since we can only go to certain places. It really stinks. And my sister wasn't officially diagnosed with Celiac, though.
  7. Thanks. I actually do have hypothyroidism. I'm being treated, so my levels are fine now. I'm not sure if she definitely has Celiac since only one of the blood tests came back positive.
  8. Really? I thought a small amount would be more likely cause a reaction after so long of eating gluten free since my system isn't used to it. Yeah..I guess it could also be that I don't drink enough water.
  9. I have had stomach issues (cramps and diarrhea) since I was young, and I used to see a gastroenterologist. I believe she did the blood tests (whatever they had in early 2000s...I don't know if it is different now) for Celiac and they came back negative. She just diagnosed me with IBS. Years later, I decided to try eating gluten free to see if it helped. I have been eating gluten free for probably about 5 to 6 years now, and I no longer have the stomach issues that I used to have. I actually deal with constipation now, but I think that could be from eating a lot of rice products. It is such a pain to eat gluten free, and people always think I don't actually have Celiac since I was never officially diagnosed with it. I can't get tested though because I have been eating gluten free for so long. Recently, my twin sister got the blood tests done for Celiac and one of them came back positive (the rest were negative). She had the same stomach issues as I did, and decided to just start eating gluten free as well. Since eating gluten free, she has noticed her toenails are clearing up (she has had a problem with them for years that look like fungus, but it always came back negative for fungus). I decided to just try something with gluten tonight to see what happened. I chose something that I have been missing...Twizzlers haha. I ate one Twizzler about 1-2 hours ago, but I haven't had any stomach issues yet...is it too soon to tell? This is so weird. Update: I just started to get a slight headache. Could that be from the gluten? I actually used to get a lot of headaches when I was younger before eating gluten free.
  10. I looked on their website, but it didn't say anything about it, and I contacted them, but they haven't replied yet.