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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About B'sgirl

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  • Birthday 08/22/1981

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  • Gender Female
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  • Location Utah
  1. I grind my own flour. Rice flour tastes much better if you grind it fresh. I usually use a combination of flours but I use brown rice flour the most. I also use Jasmine and Sweet rice flours. 1/3 to 1/4 of my mixture has fresh ground millet grains as well. I have to buy my starches but I get them in bulk and store them in sealed buckets to save money. It is so much more affordable to grind your own. You can also store whole grain rice a lot longer than flour so it is good for a long term food storage as well.
  2. We actually do not even have Celiac. Testing was negative and genetic testing showed gluten intolerance but no Celiac as well. But the insurance doesn't care. It's all the same to them. But no insurance doesn't mean we would go without monitoring anything. It was a high deductible so we planned to pay for routine care and minor problems with cash. (And honestly I wish more people would do that). I prefer it that way. My only worry with not having insurance is if something large and unpredictable were to come up. That's what insurance is supposed to be for. Anyway, I would just say be careful how you fill out insurance applications. Be honest, but don't put every little symptom that may not be connected with the disease. I think that's what got us and now we have to go back and prove that they aren't related in order for them to even consider reducing the rate.
  3. My problem is not insurance denial. It's a rate up. They will not reduce the rate unless there have been no symptoms for a year. But with 3 little children it's nearly impossible to avoid accidental exposure. It's frustrating because our health is great and we hardly spend any money on health care. We applied for a $12,000 deductible plan and they still rated us up 133%. It is more than I can bring myself to pay because we just don't use that much health care.
  4. I need to get some stool testing that reports bacteria and yeast levels and varieties. I'm going to take management of this into my own hands. What's the most cost-effective way to get this done?
  5. The gist of this process: 1. Some food (or molecule or protein or parts thereof) gets into the blood stream. It may be that this item is supposed to get into the blood stream or it is pulled into the blood stream too early (the enzymes or bacteria have not yet fully disassembled the item) or it should never enter the blood stream. 2. The body
  6. I've tried several times to fry cornmeal with no wheat flour mixed in. It falls apart in the fryer every time! What do I mix in with the corn meal to make my hush puppies stay together?
  7. Happy birthday and may God bless you today!

  8. What kinds of challenges do your kids face with their "food allergies" and other issues? What do you do to help them feel better about it? I have a 2 1/2 year old and a 1 year old who have to be gluten/milk/soy/egg/yeast free. So far they are a little young to feel out of place but I want to know how to prepare myself. I would love to hear specific experiences. So far my son's worst experience is in family gatherings when someone has made some very attractive looking dessert. Everyone is eating it and it smells so good. He wanders around with his eager face then looks at me and says, "That'll mayka tick!" (That'll make you sick). It breaks my heart. I try to make sure he has something he likes to make up for it but it's never quite the same. My neighbor says her children keep their sandwiches hidden in their lunch bags so no one can see that it is different. What have your children experienced and how do you respond to it? How do they handle it?
  9. I know someone in Austria with Celiac who cooks with this. The brand name is Wiechert and the flour is called Fertig Mehl. Does anyone know of anything like it available in the U.S. or online? I just wonder if it would taste better than rice or bean flour. My friend claims it does. I'd pay good money for some if it was really free of gluten content.
  10. Sounds like my son. I recommend reading a book called Raising Your Spirited Child by Mary Sheedy Kurcinka. It has nothing to do with Celiac but I found it to be very helpful. Even if your child doesn't fit the exact mold it is helpful. He just had a sudden influx of energy after going gluten-free and we had to find ways to manage it. Being clingy can also be a sign of overstimulation. Is your child extra sensitive to textures of food, the feel of clothing, etc? The book has advice on how to avoid emotional meltdowns and lots of other things.
  11. 1. How long does it usually take a young child to catch up to the age average for size after going gluten-free? If growth was stunted they may never actually catch up. It is better to compare their personal growth than compare to other children. 3. I'm concerned that her blood work was negative years ago and is still negative now for celiacs. She had one gene for Celiacs. She responded well to the gluten-free diet and is still on it. I have no intention of taking her off the diet. blood work will show up negative if there is no gluten in the diet. I don't trust the results because my son's blood work was negative but I put him on a gluten-free diet anyway and he improved a great deal. I KNOW he reacts to it so it doesn't really matter what the tests say (although his pediatrician doesn't seem to agree). You might want to try removing other foods from her diet to see if that makes a difference with the rashes and growth. I removed milk and gluten from my son's diet and saw lots of improvement. But there were still periodic rashes and diarrhea until we pinpointed soy as another problem for him. Once we removed soy from his diet he didn't have anymore problems.
  12. I agree with this suggestion. It can be really hard to read the symptoms when they are little. If the baby is gluten sensitive feeding it to her could prevent the absorption of important nutrients and you won't realize it until the damage is already done.
  13. I had the same concerns about having my child tested because he was so young (not even 1 1/2) when I suspected Celiac. He had many symptoms though and so I figured it wouldn't hurt to just put him on a gluten-free diet and see what happened. He improved a great deal with the diet change and I later had to eliminate milk as well. After awhile I had him tested through Enterolab which showed he was also sensitive to soy, egg, and yeast. He made the most improvement after we cut out soy and his symptoms are pretty much gone. We never did any invasive testing. So what I would recommend for you is, (and this is just my personal opinion), just do a trial diet. It won't hurt the child (even if it's hard on the parent) and it might actually help. This is such a critical growing period and the wait to get in for testing is so long. In the meantime he could be deprived of much needed nutrition. I would try the diet and wait until he is older to do the testing if it still concerns you.
  14. I had the same experience with my daughter. She would always scream and arch her back all of the sudden and I never understood it. She quit doing when she was about 6 months old too. I can't remember when I started avoiding gluten with her so I'm not sure if there is a connection. I am still not sure if she can tolerate it or not. I just don't give it to her. The few times she's had it I think she gets diarrhea but it could have been caused by something else as well. I plan to just play it safe until she is old enough to tell me how she feels after she eats.
  15. I went on a gluten free diet while breastfeeding my second child because my first child had celiac and actually weaned himself (probably because my milk was harming him) by the time he was 4 months old. I wasn't going to take any risks w/#2. And what I learned from it is that I actually feel a lot better on a gluten-free diet. My symptoms were so mild I didn't notice until I went off and then back on gluten. So if you go gluten-free for the sake of your child, pay attention to how you feel as well. After all, the disease is genetic and it had to come from somewhere. (I still don't know if #2 is gluten-sensitive but there is some evidence indicating she is. I just keep her gluten-free to be safe and because it's easier for #1.