This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I don't know if anyone has posted about this but i was just looking on the Dr. Oz show website and under Be On The Show on the Home page it lists the question, Recently Diagnosed with Celiac Disease? I think you have to agree to share your story on camera but thought i'd post this in case anyone is interested. Here's the link to it:
I'm similar to you also....no fruit for me right now. Not even lemons...the last time i tried them they irritated my stomach but with me switching to the lower SCD carbs my tummy feels much better so i hope i'm healing more and soon will be able to tolerate some of the non-sweet fruits.
I hope your new regime is helping you heal more! I've seen your new thread and will come visit over there too if you don't mind since you may not see this.
I appreciate the non-sweet fruit suggestions and info. I bought a papaya the other day and am waiting for it to ripen before i try it - i've got to remember to try it alone...thanks! From me following a low carb SCD diet the last 3 weeks I've noticed more die-off symptoms than when just starting SCD i think because i consumed carrots, bananas and goat yogurt from the beginning. I'm thinking the higher carb SCD legal foods were keeping the candida/yeast going. The first week of my recent new regime i felt fatigue, had a few headaches, irritability, joint pain and foggy brain, etc. but my stomach very quickly stopped hurting. Maybe the high carb foods were causing the gastritis/stomach erosion from feeding the candida.
I tried a little tiny taste of coconut oil the 2nd week and felt more joint pain, fatigue, fogginess so i think it just creates a big die-off reaction. I've also tried stir-fried cabbage and the same day i had stopped the carafate (w/illegal sorbitol) and i developed a rash on my wrists. Sorry if i've already mentioned this in my previous post also. From what i've read rashes can be caused by die-off. It could have been a reaction to completely stopping the carafate or a combination of both. I know when i started the carafate i would periodically get hot, itchy feet and hands at night. This rash comes at night also and my feet and hands will itch at the same time. It happened the same time every night for a while but now it's still at night but not quite the exact same time. I've also soaked in an epsom salt bath a few times and when i got out (first one was the worst) i had the itchy feet and hands and the rash on my wrists up the inside of my arms, abdomen and upper thighs.
Evidently it's taking me to only eat the very low carb SCD foods to start killing the beasties. I've felt better and can tell it's helping me. Tonight i tried 1 T of steamed then pureed cauliflower with a little olive oil so i'll see how that goes. The rash has appeared and i'm itchy but that's been happening pretty much every night - sometimes worse than others. Hopefully my tummy will feel ok with the cauliflower.
I found some seagate olive leaf extract capsules at one of the health food stores and it says it has no fillers or anything else so i think it'll be ok. I'll wait a little longer since i seem to be having pretty big die-off reactions.
Hopefully i'm making some progress! Fingers crossed! Oh and i found where i had read about the baking soda in water (on healingbybee or pecanbread - can't remember exactly) but it states the baking soda buffers the acid - it does seem to help me.
Hope you're still doing well!
Thanks Jan! I may try to find just the dried olive leaf first before the extract - i'm so hypersensitive also. I have some coconut oil so i'll try it later this week or the GSE.
What non-sweet fruit were you able to digest first or is easiest for you to digest? I'm trying to figure out which non-sweet fruit to try first - white grapefruit maybe? I looked for papaya the other day in the grocery store but didn't see any.
I always feel better and am less constipated when i ingest more water throughout the day. I've been putting a pinch of baking soda in my water along with the sea salt to help with my ph balance and it seems to work - does this seem ok to do?
Glad you're feeling and doing better Jan!
Thanks for the info Bea! I may check with a Health food store that might carry the olive leaf that i can make the tea with or grind it into a powder - i think you had wrote in another post that it may be more effective to make the tea with the powdered olive leaf. She carries dried herbs - i'll check to make sure nothing was added to them. I have coconut oil and GSE so i'll try those first.
I am feeling more clear minded and more energetic eating the low carb SCD foods. I guess I am pretty consumed with candida/yeast since it's taking eating only these foods to make a difference. Tomorrow will be 2 wks since i started it and i feel like this second week i've made good progress. The first week i had some die off symptoms (headache, irritability, itchy rash on wrists - i think the rash was a die off symptom or a side effect from stopping the carafate). I've read where some people have a rash from die off.
If i can't find the celtic or himalayan salt at the nearby health food store i'll order on line also. I may have to try the Sole too. I hope it helps you - let us know how it goes!
Great info. about the salt! I've been using sea salt and drinking purified water for a few years also Bea but in the last month or so started putting it in my 40 oz klean kanteen that i take to work with me. My allergies had flared up a while back and i did a search on here and found a post where Ali mentioned doing that can help allergies and it did! I've also been adding a pinch of baking soda along with the salt to try to alkalize - i used the hydrion paper to check my urine a few times and i'm pretty acidic. I've cut out bananas and carrots about 5 days ago and i'm only doing chicken, fish, bison and beef and low carb green veggies that i know i tolerate (asparagus, broccoli, romaine lettuce) for about 2 weeks. My stomach felt better pretty quickly after eliminating the bananas and carrots (higher carbs) so i'm pretty sure candida is my problem (i have many other symptoms also). I've also read gastritis can be caused by candida overgrowth which i'm still taking the carafate liquid my Dr. prescribed (with illegal sorbitol) but i've cut way back on it and my stomach still feels good so i'll be eliminating it soon i hope.
I still have some sea salt without iodine that i'm using but it's not celtic and Pele had mentioned the celtic sea salt a while back and i want to get that or the himalayan - i'm just not sure which would be better for me. Dr. Oz had mentioned himalayan salt being really good for you on his show not too long ago.
Now that i've cut out the higher carbs i don't get as hungry and maybe i can cut back a little on the animal protein to help with the acidity. I figure i'll do the low carb diet for 2 weeks and then try to add an anti-fungal maybe once or twice a week. I have some Grapefruit seed extract i'll try first - i know i need to go slow on the anti-fungals. Any recommendations on where to buy SCD legal oregano oil or olive leaf extracts? I'll try coconut oil again also - maybe that's why it didn't really agree - stirred up the baddies.
Ali and Bea - glad to see you're feeling better!
Pele - I'm glad you mentioned this and i remember a discussion about it a while back. I meant to call the company of the sea salt i've been using to make sure. It says no additives and the ingredients say just sea salt but i'd like to make sure. It doesn't seem to bother me but when i run out i may look for the Celtic sea salt to try.
Hmm, that's a good question Pele. I wonder too. I haven't tried any canned pineapple juice since i tried the Welch's grape juice in the beginning of the diet and it didn't seem to agree. I think I'm so sensitive and from having the stomach lining inflammation, preservatives and additives don't agree with me. After finishing the carafate medication my Dr. has prescribed i want to try fresh pineapple.... i hope trying some new SCD foods will agree!
Nomorecrohns.com has a list of SCD prepared products as well as great SCD info and recipes. Here's the link to the products list:
This is the only list i can recall seeing on-line - there may be another one that i don't know about or can't think of right off hand. Hope this helps!
I realized about a month ago that's how i feel eating the yogurt. I was doing the same since i'm so restricted in my foods so i would sometimes eat a good bit of yogurt at one sitting and i could really tell after eating more than usual. I will try it again maybe after a long while and i'll make the yogurt with raw goat milk and start off with very little just to test. Thanks Pele for the info and describing really well how i felt after eating the yogurt. I finally realized it when on Monday's i have a meeting right after lunch and noticed i felt like that in the meetings but after eliminating it i felt so much better and much more alert in the meetings - a pretty big difference.
I just read where you're off fruit (sorry to hear that and hope you can add it back in soon) but i found some of my notes when i was trying some of the scd desserts without eggs and here's some things i jotted down to use in place of eggs:
1/2 cup applesauce = 2 eggs
1/4 cup applesauce = 1 egg
1 banana = 1 egg
using gelatin - before starting your recipe combine 1 tsp unflavored (Knox) gelatin with 3 T cold water and 2 T plus 1 tsp of boiling water. This mixture = 1 egg
I've also used pureed pears which worked really well but can't find an amount that i used but probably is close to the same as the above applesauce amounts. I remember reading that egg replacers are good for recipes calling for 1 - 2 eggs but any more than that may not work very well. Hopefully you're tolerating eggs now and won't need these!
As mentioned above, watch out for the sorbitol, it really messed up my progress, and I'm so much better since I stopped taking the B-sublinguals containing sorbitol. Hope it doesn't bother you, but do keep an eye on it ...
Thanks Jan. So far i can't tell that it's bothering me besides leaving a bad taste but i rinse, brush my teeth and brush my tongue after taking it and that helps. I really don't like taking it since it has the illegal sorbitol but it is helping my stomach. I see my Dr. tomorrow so i'll find out how long i should take it.
Did your supplements list the illegal ingredients on the bottle or did you have to call the company? I'm taking the SCD Freeda multivitamin which is safe and my b-complex, active b-6 and vitamin D3 is from pure encapsulations so i think they're safe according to the ingredients on the bottle and they don't seem to bother me.
I'm doing much better after eliminating the goat yogurt and i've also stopped my hrt which the prometrium capsules i was taking had peanut oil and lecithin made from soy (i think) so it could have been both or one of these that bothered me. I had switched to the compounding cream of prometrium and it seemed to bother my stomach a little also but not as bad as the oral. So, i'm glad i'm not taking them now and hopefully will continue to do ok off of them - i think the SCD has helped me to do well without the hrt.
I long for the time when we will be able to live in a world where everything is good, natural, unadulterated, un-mucked about with, and unprocessed. Bliss.
I long for that time too Ali - it would be a dream come true.
I made my first fermented cabbage juice and it's not that bad. Jan - i think you're right on the carrot juice - it was probably too sweet. I started it Sat. and drank my first juice Tues. night and have been drinking a little with breakfast and with dinner diluted with a lot of water. Wed. i had a little bit of rumblies in my tummy but i haven't eaten the goat yogurt in a while so maybe it was the good guys eating the bad guys. I don't drink any at lunch because it may be a little smelly bringing it in to work. It does taste a little like carbonated water like the recipe says but it does smell and taste like cabbage but not bad.
The carafate my Dr. prescribed seems to be working really well (even though it has sorbitol and maybe 1 other illegal ingredient, i've got to check into it) - no more sore stomach. I haven't really checked into what exactly is illegal in it besides the sorbitol because it's working so well. I hope it's just the sorbitol - i haven't eaten any illegal foods since beginning the diet so maybe this little bit won't hurt me. A couple of mornings i felt a tiny bit of soreness but that was after a few days of starting it and now i haven't felt any soreness. I have a followup with my Dr. on Sept. 3rd so i'll find out more and how long i'll need to be on it - hopefully it'll help heal the irritation and i'll be able to add some new legal SCD foods soon! Squash season is coming up and i hope to be able to eat it again...yum! The past 2 mornings i've been drinking warm water with a little fresh squeezed lemon juice and a little sea salt and it hasn't irritated my stomach....YAY! Lemon juice irritated my stomach before.
Bea and Liz - congratulations on your progress and hanging in there with the SCD....sounds like it's going well for you guys. Great to hear!! It was tough for me in the beginning but i've been so limited for so long....hopefully i'm on the road to being able to eat more SCD legal foods really soon!
My cholesterol was in the 240's (with a good ratio) before my gluten sensitive diagnosis and before going gluten-free in Jan. 08. I have it tested about every July and July 07 it was in the 240's (HDL was around 70 and LDL was high). July 08 it had dropped 54 points after being gluten-free for 6 mths - it was around 170 something and the only change i'd made was going gluten free. My guess for me is that i cut out a lot of trans fats - i was eating processed gluten-free foods back then but most all of them contained no trans fats. Also, it could be due to the inflammation in my body calming down a lot. I've been on the Specific Carbohydrate diet since Sept. 08 and July 09 my cholesterol was around 200 so it had gone up a little - my HDL was good (can't remember what it was though). I'm eating more animal protein and a little more red meat on the SCD so that could be the contributor to it going up this year maybe. I think i do have a lot less inflammation in my body since i lost some weight after going gluten-free and after starting the SCD and i believe most of it was inflammation. I have a lot less joint pain now also.
I haven't tried grapefruit yet but plan to. I just made some plain jello and put a little honey in it - i didn't eat much of it because it had no taste but tried to eat some. I drank a lot of water and some of the SCD electrolyte drink and chicken broth made with boneless breasts not cooked very long. It wasn't bad at all and i felt ok on just the clear liquids. I found some organic cabbage so i'm going to start the cabbage juice tomorrow night so hopefully that'll help - i'm just taking the probiotic capsules right now also.
My GI Dr. prescribed liquid carafate for me to take 1 T an hour before each meal and 1 T before bed for my stomach lining irritation she found on my endoscopy on Monday. She also saw some green bile in my stomach and specks of dried blood but no ulcers. She took biopsies from my stomach and small intestine so hopefully i'll hear something soon. I'll have a followup appt in about 2 wks. She supports the SCD so she knew i'd been on it for a while and i'd been gluten-free for 1 1/2 years. The carafate seems to really be helping and one of the side effects is constipation but so far since i've been taking it i'm going twice a day! So, so far so good and i've had no stomach soreness or pain since taking it. It has sorbitol and probably other illegal ingredients in it but it doesn't seem to bother me so far. Hopefully i won't have to take it very long - i don't like using illegal ingred. but since it's helping i'm going to continue. Oh and it also has aluminum in it...yikes! The sorbitol does give me a bad taste in my mouth but i'm brushing and rinsing really good and scraping my tongue after taking it and that helps. Oh and i think i have an allergy to latex or something they used - i woke up from the procedures (felt like i'd only been asleep for 5 min!) and my nose immediately itched and started running but i didn't think nothing of it since it had been bothering me off and on from ragweed blooming here. It gradually got worse and Tues. i sneezed and blew my nose all day long and felt miserable. My skin around my nostrils is red and raw - maybe from blowing but maybe from the latex from the oxygen tube they put in my nose? My sister did the same thing after hers - i don't know if she had the red skin around her nostrils but immediately had the sniffles / allergic reaction along w/headache - her Dr. suspected latex. I called my Dr. office and they're looking into what it might have been. I felt better Wed. so maybe it had moved out of my system - i found a post from Ali on here about drinking water with a little salt and i tried it and it seemed to really help - thanks Ali! I didn't want to take an antihistamine - don't think there's any that are SCD legal that i could find. I used NeilMed nasal cleanser also and it seemed to help too.
Good news is i don't have to have a colonoscopy until 4 years - i get an extra year...yay!
Hope everyone is doing well!