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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About mags

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  1. Truvia

    There is a very similar product called Purevia, which I like quite a bit and they explicitly state it is gluten free. Therefore I like them. Truvia seems shifty, although I'm going to make an attempt to contact them and find out.
  2. I posted this on another thread, but in Texas and Illinois Starbucks has switched from Silk. I suspect it is nationwide. I read the label but it wasn't clear that it was gluten-free. There were natural flavors. I need to contact them on Monday. Also, some Tazo flavors are gluten-free. In fact most of them. However some are not --2 or 3. One unsafe variety is honeybush.
  3. Starbucks in both Illinois and Texas have switched to some sort of generic brand for soy milk. I suspect it's nationwide. I have not been able to contact them to figure out if it is gluten free yet. I looked at the box and it has natural flavors, which can often mean barley in these kinds of "milks". The people working there were unable to tell me anything. I ask every time I go in. I jetted to the nearby seattle's best and they used silk, so I got my drink there.
  4. BTW--Gluten and dairy both trip your opioid receptors. If you're ditching both, it's gonna be a rough ride. You can do it though. Just don't give in.
  5. I went through three weeks of headaches. It sucked. It was absolutely withdrawal. It goes away. Hang in there. I have accidentally ingested a significant amount of gluten a couple of times now and I got headaches afterward, though not as intense or for as long.
  6. "They can biopsy the area beside the rash, make sure they don't do the rash itself. The antibodies are found in the intact skin next to the outbreak. " I had a biopsy done wrong--of the lesion itself. Has anyone else had this happen and do you know what were the conclusions of the pathologist? Mine said "lymphocytic infiltration with eosinophils consistent with urticaria or drug eruption" which my dermatologist explained to me means nothing.
  7. yes!! Chest, arms, tummy. Mine usually pinker and 2mm or so across, but sometimes they can be reasonably bright. Usually shows up in the morning for me. For a while I would wake up every morning and dread looking at my arms, because if I saw them I knew I was going to feel yucky for at least a few hours. I have been gluten-free since march, but it didn't totally fix it. A month later I went casein free as well and up until a couple of weeks ago I did great all summer ( meaning only a couple of dots, not like 50 - 100 ). I only had two outbreaks this summer and both of those were after eating in restaurants. I am hopeful that like some people I will be able to put casein back in later, but not counting on it. Fall allergens are back in the air and I'm trying to figure out if somehow the two combine forces to make the dots, or if something snuck back into my diet. My arms have been pretty clear but my belly has had some. I do know that I have TPO antibodies floating around (which can be linked with hives) at low levels and have had problems with iodine in the past. It's enough for me to assume I have a DH-like thing going on. In my mind I think maybe I headed it off before it got to be really bad. That's not based on anything though.
  8. I have wondered about "mild" DH. I get these little red spots on my forearms that show up 8-10 hours after I eat something bad. Bad for me is gluten or casein. Sometimes I get really nauseated when I get them, and sort of shaky or weak. They don't itch though. And they go away any time between 8 hours and 4 days later, without blistering or scabbing. So in that respect it doesn't sound like DH at all. But on the other hand it's *clearly* tied to gluten and casein and I don't have any other symptoms that say "allergy" plus it's not an immediate reaction. My allergist says it's not an allergy. It's weird. I've been to all kinds of specialists about it. I've scoured the internet. I only found one other person who seems to have the same thing out there, and she has even fewer answers. So I just don't eat those foods, and every once in a while I check the internet in case someone figured something out.
  9. Narcolepsy & Gluten

    I was actually diagnosed with narcolepsy in mid-2005. I started having other problems in the fall of 2005, and given my family history I went gluten free later in the year. I now sleep normal amounts and don't, say, fall asleep in my car at the post office. Now, I don't think I actually had narcolepsy. The way it's diagnosed is by making you take this sleeping test, and if you fall asleep too fast or too often while they're monitoring you, then they say you have it. However, I never had cataplexy or anything like that (even thought that doesn't occur in all cases). I will say, however, that getting in a normal routine is easier without gluten. I have more energy during the day to tire myself out the right way and thus sleep better at night. Plus, before I would only get the energy up to get any exercise late in the day, and in my opinion that doesn't allow your body to slow down for sleeping, so you get poor quality sleep. The trick is to be awake when you're awake and asleep when you're asleep, not in between for both. So my point is, I guess, that gluten can affect you in ways that can make you markedly more tired, but it's not necessarily a direct cause and effect relationship.
  10. Does anyone know if people following gluten free (or any other food free) diets are at an increased risk for developing true allergies to foods? I'm gluten free for a month and a half now, but I also have casein issues, namely when I eat casein I get very mild hives several hours later. Sometimes it's even as late as the next morning. This is probably an IgG reaction but it's not totally clear it's not an IgE reaction. I would think it'd be a simple dairy avoidance issue, but then I read this horrifying study that described how sometimes long term elimination diets can increase sensitization and cause life threatening or fatal allergies, so you don't want to do them lightly. link to an article describing the issue:
  11. Well, they don't itch--like at all! I'm on a LOT of antihistamines, leukotriene inhibitors, etc since it's Oaky out in Texas right now, so itching may not be actually possible for me. But they do look kind of like tiny pimples. Definitely no blistering or scarring and they go away pretty fast. Also, they appear on my belly, collarbone, and the insides of my forearms (not the outsides or elbows). He took a biopsy (of the lesion itself, not any skin away from the lesion), and it came back as "hives, with eosinophilic infiltrates, consistent with drug (or food) hypersensitivity". I've never seen such little baby hives before (we're talking 4mm max diameter, most less than that). I've been gluten free casein free for about 4 weeks now. They have gotten better but not gone away completely yet for more than a day or two. However yesterday I ate TUMS smoothie fruit flavor which I found out after the fact have gluten. It's like the only flavor that has it! What luck. I got the dots within a few hours and I have a headache and some pretty extreme nausea today. Check first chew second. I guess the reason I ask is that I know it takes a while being on the diet before any organ specific antibodies could potentially go away, so I don't expect instant results.
  12. Greetings! I'm wondering, has anyone had an experience where they had chronic hives, went gluten free, and the hives went away in conjunction with TPO antibodies going down? I know that gluten-free can lower organ specific antibodies in celiac patients, and that TPO can cause chronic hives. I'm just wondering if anyone has actually lived this chain of events. I have this problem where I seem to get these tiny little hives (they're hives, according to the dermatologist who did a biopsy, not DH. They only last 12 hours at most and then disappear completely). In trying to get to the bottom of it, a thyroid antibody test was ordered and it turns out I have elevated thyroid antibodies. They seem to be related to something I eat, showing up maybe 3-6 hours after eating or in the morning after I ate the night before. Two years ago I had tests done for celiac since both my grandmother and my mother have had the disease. My biopsy came back negative (however I had not eaten gluten for four weeks at the time) and my blood tests came back with gluten related antibodes at a level of 9 (cutoff for suspicion was 10). However, since I was told I didn't have it, I went along eating pizza and sandwiches until the TPO test came back and I started rethinking. Any thoughts? Thanks! R