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sperlyn added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Celiac Versus Gluten Sensitive EnteropathyHello,
My name is Lynette, I am 29, live in Australia, married and have one child.
I have been given two different diagnosis from one biopsy result. I would really appreciate if you could shed some light, or maybe clarify the situation.
In 2000, I was diagnosed with Hashimotos. To this day, it has not settled down. In January this year, I went to a new G.P. who went through my history and symptoms and ran a few blood tests. From these tests, I tested positive for antiendomysal antibodies. Foolishly I then went off gluten for a couple of months and started to feel better. I then decided I could not live the rest of my life following such a strict diet unless I had to, so I went back on a gluten diet for 4 weeks to have a biopsy to confirm a diagnosis. I had the biopsy, discovered I had grade 2 reflux and waited for the results. I went to my G.P. who said I had Gluten Sensitive Enteropathy - which he explained was the same as Celiac but not anywhere near as severe (I am finding it very difficult to find informationt to colaborate this). I then received a letter from the gastro that performed the biopsy saying I had Celiac disease. I rang the gastro and told her what the G.P. had told me and she said to me that if I were her patient, she would treat me as though I have Celiac disease. She told me to take the letter to the G.P. and show him her diagnosis and that my siblings also needed to be tested. I took the letter to the G.P. who then said he didn't actually know if it was Celiac disease at this stage as the changes in the biopsy were only mild.
The summary part of my biopsy results reads:
"small intestinal mucosa - intraepithelial lymphocytosis consistent with gluten sensitivity."
Sorry for the length of this post. I would be greatly appreciative of someone could clear some of my current confusion. At present, I don't know whether to answer yes or no when someone asks me if I have Celiac disease.
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