Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

1 Follower

About Caletara

  • Rank
    New Community Member

Profile Information

  • Gender Female
  • Location Boston
  1. I was diagnosed with a delayed food allergy by a holistic MD too--I was found allergic to gluten, wheat and brewer's yeast(which is weird since I don't drink). He didn't bother doing an IGA, as I reacted pretty strongly to the IGG. You just may not be allergic to gluten--the common denominator between wheat, rye and barley. I don't know about Mcdonalds, but the french fries were probably dusted--and I believe they fry them in the same oil they use for the hash browns. Unlike you I get nerve pain from eating gluten and wheat, but I also do get cracked lips, and have some digestion issues--stools become uneven(harder and then looser), and I feel like I digest less, I have anxiety. Symptoms can range the spectrum. I'm still discovering symptoms that I can attribute to eating gluten. My advice, if it makes you hurt, just don't eat it. The pain isn't worth it, especially seeing as your symptoms last so long if you cheat or mess up.
  2. I'm not celiac, but I do have a delayed allergy to gluten. My doctor had me challenge, and eat gluten for three days or until I had a reaction. I had chinese food for lunch. It took only for hours to have a reaction, so I didn't need to go for three days. That's a typical reaction for me, time wise, it's usually about 4 hours, give or take a little and then I'm having nerve pain in my fingers for the next three days.
  3. P.f. Chang's

    I just went to P.F. Chang's for the first time two days ago, actually. I got two orders, gluten free of course, and I feel fine. I guess it just depends on the staff, and there is always a risk of contamination. My own food nearly got glutened when a friend stuck out his fork and wanted to try mine. While it was nice to have chinese food again, after months, it was surprisingly not as good as I expected it to be. Maybe because gluten makes everything taste better, or because I've been eating healthy/whole type foods only since the diagnosis.
  4. Jerking Awake At Night

    I get this all the time when I eat sugar or things that can be converted to sugar too late at night.
  5. Major Sleep Disorders And Celiac

    I am also a very light sleeper, anything will wake me up. But I also found that gluten free doesn't quite get rid of my sleeping problems. I think sugar aggravates everything-i get muscle twitches and shakiness and some nerve tingling when I eat it too late at night, when I sleep. It's profoundly annoying. I'm still trying to figure out what's making me clench/grind my teeth. My doctor wants me to do a neuro-adrenal test, to find out if any of my hormones are low and causing my sleeping problems. A word of wisdom with sugar--even fruit teas seem to do it for me. I use the natural loose teas, so theirs no actually sugar in it, but the fructose from the fruit itself gives me sleeping problems. Good luck!
  6. I've been a very anxious girl ever since childhood. But since I eliminated gluten from my diet and started getting my vitamin D levels back up to normal, I've really improved. I wish mainstream doctors new food intolerances could be a problem/cause of anxiety/depression, rather than just prescribe drugs for boost your seratonin levels. I tried to get my vitamin D levels tested before I even knew gluten could be a factor. I was laughed out of the doctors office.
  7. I know exactly how you feel. I stepped wrong last September(on my birthday no less!) and felt intense pain all throughout my right food. Couldn't walk, couldn't put weight on it--all my Xrays and MRI's were normal. It still hurts. I can walk on it but it hurts to run and weight train. I'm also low on vitamin D, my doc has me supplementing. So, I don't know what else to do, but I feel your pain and completely understand. It really bites not to run when you enjoy it so much. Have you had your vitamin D checked out?
  8. Candida Overgrowth

    I sure hope I can kick the candida. Yeast came back very high on my ELISA blood test, higher than the gluten and wheat. Eliminating those has had a profound impact on my symptoms(they've pretty much stopped). My doc seems to want to wait on doing anything for the Candida for me, maybe until I get stronger and heal my gut more? I haven't changed my diet since eliminating the gluten/wheat, is it possible to kick t he candida just by getting stronger and without diet changes/meds?
  9. Allergy Test

    I was diagnosed with a delayed food allergy to wheat and gluten. There isn't a lot of doctors who will do it and it took me 2 years to get an accurate diagnosis. Up until they docs were convinced I had carpal tunnel/fibromyalgia/thoracic outlet syndrome or any other nerve problem they could pin on me. My primary care doc is an alternative medicine doctor, with a regular MD. He's also an allergy specialist. He had me to an ELISA blood test for IGG. Good luck! My suggestion would be to look in alternative medicine clinics, maybe you'll find an MD who will test for you all too.
  10. Chicken

    I know this thread is a little old but I just had a reaction to perdue's ground chicken with wonderful 'rosemary flavoring'. They say it's gluten free.....My symptoms and I disagree. But then again, it could be due to some other food contamination too.
  11. I'm new here, I've been gluten free for about 6 months now--I actually have a delayed food allergy to gluten rather than celiac disease. I had Perdue ground turkey without a problem, but last night I made some ground chicken with perdue. According to the website, their ground chicken and turkey is gluten free, despite the 'natural flavorings' label on the ingredients. But I was up all night in pain with my typical gluten-eating symptoms. Has anyone had a reaction to perdue ground chicken? It it possible they changed their ingredients and haven't updated the website? Or maybe I was contaminated through another source.... Nice to meet you all though. despite the pain I'm in right now