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It really sounds to me like you have some sort of intolerance, whether it is gluten or anything else, but definitely tell your GI about how your symptoms were abated by avoiding gluten and were intensified by reintroduction. I don't know how quality your GI is but I would hope that would lead him/her to order the test even w/o your request, but obviously you should request it regardless.
The problem is that doctors tend to favor uncommon presentations of common disorders rather than common presentations of uncommon disorders. Although mathematically this is probably a favorable move, it tends to narrow the scope of the differential diagnosis and that is why so many people (including my grandmother) are thrown into the IBS bin when really there is probably a variety of things going on, one of which is Celiac.
Please let me know how your results turn out, I'm very interested.
btw, is Ensure gluten free? or does anyone know of good liquid gluten free products? I found a very good protein shake that is very easy on my stomach called American Whey (it is locally distributed) it is both lactose and gluten free. It is good for breakfast but I need some carbs for lunch/dinner. Any advice would be appreciated.
Regarding the Zaps, one reason your ENT probably wanted to start you on the SSRI is because those are a common symptom of patients with clinical depression or gen anxiety disorder. Don't react negatively to that all that's really saying is that your body's nervous system is malfunctioning (probably because of your gut pathology) and these drugs have shown great efficacy in normalizing that nervous function. I personally am going to start an Antidepressant (not an ssri cause I get migraines) for these symptoms.
Paradoxically, a cardiospecific beta blocker has done nothing for my palpitations, I can't increase the dose very much b/c I'm a runner and my resting HR gets below 40 w/o it and I'd rather not die in my sleep, at least not till I'm old and have dementia. But I doubt it would have any drastic effect, it really just slows my hr and lowers my bp.
I think we are on fairly the same page as far as symptoms.
Have you asked for a blood test for gluten intolerance? As I mentioned all my other labs were normal, except for celiac disease and I have a (2nd degree) fam history. I only ask because your extremity paresthesia would be typical of vit deficiency caused by any malabsorptive disorder and neuro symptoms such as headaches (also anxiety, depression, and ataxia) have been associated with celiac disease, though the evidence is inconclusive, hence my inquisitive thread.
Since I am asking alot of questions I would really like to give back. If you are going to get a blood test please get the EMA IgA ELISA, even though your primary physician may be impressed by the results of an anti-gliadan test, your GI specialist will not. The fact is that the EMA IgA test has no competitor in terms of positive predictive value (which means that if the test is positive, you have the disease). The PPV of EMA IgA at the very lowest is 80% but most likely is closer to 90-95%. Not to mention, it also has comparable measures of specificity and sensitivity to the anti-transglutaminase test. (I realize you've had an EGD) but for anyone else, even with the possible errors of biopsy, if that blood test is positive you have about a 1 in 10 chance of a negative biopsy, probably less. A lot of people on here don't feel the need for biopsy, I understand that as the serological tests are 90% diagnostic alone. However, I would do it - you may have substantial damage that should be checked periodically with dietary change.
The test is expensive, but if I were on a liquid only diet, I would do it. Of course you will probably want to couple it with a total IgA to make sure you aren't deficient.
Question: are you on a gluten-free diet and if so what do you drink on your liquid diet?" It is pretty difficult for me to find gluten-free meal replacement shakes, although next to an IV this would be the best initial treatment for anyone starting a gluten-free diet as it would speed the healing of your intestine. I've thought about stealing a few banana bags from the hospital (j/k)
Question2: have your palps/regurg stopped since the liquid diet? how long did that take to subside?
Last comment: I'm not sure acute anxiety is the term I would use and I'm only a student but anyone with our symptoms is going to have anxiety. Unequivocal research relates anxiety to the gut and the heart so I wouldn't be so upset about the diagnosis of anxiety. they are obviously missing the root cause but I wouldn't be hesitant to treat the anxiety, meds or no meds.
If you have not seen an allergist that would be my next step. The blood tests aren't the most reliable but you could at least use them as a reference to start an elimination diet and then add the questionable foods back slowly and see how your body responds.
It's hard to say if we are experiencing the same thing, I kind of doubt it. My heart pounds but the rate/rhythm are not really irregular (I take my carotid or radial pulse while listening to my heart and they are identical). The Zaps I am referring to are like sudden mini jolts that occur in muscle fibers directly over areas of stress (so mostly over my heart/stomach/intestines. These are normally very weak but so frequent that I can't stand them. You could almost equate them to a tickling or light touch but stronger. Once in a while I will get a stronger, painful jolt but that's about once every day or two. People with gen anxiety disorder or depression will commonly describe these systemically but for me it is localized.
Hello everyone - I've read many of your posts but this is my first--
To give a short background I'm a medical student so I have a unique perspective on this issue but it's not necessarily helpful.
In short over the past few months I have suffered from palpitations and frequent, silent burping. These tend to be most prominent in the evening or after meals, but I am able to feel sensations of tightness, spasms, and "zaps" all day long (yes 24 hours a day). This has made me very very anxious and required me to take anxiety medication just to get through the day. I have also developed Depression.
This has been coupled with some minor atypical reflux symptoms: epigastric pain and intermittent right hypochondriac pain (around gall bladder), and in the morning I can sometimes taste the medication I took the night before.
Additional symptoms are dental erosion in all 4 quadrants and white spots on teeth, abnormal flatulence and constipation
Meds: omeprazole 20mg b.i.d. (for 2 months) and clonazepam for anxiety
omeprazole has been completely ineffective and it's trial period has all but expired. clonazepam works as it should.
Heart EKG and 48 Hr Holter were negative for arrythmia (it showed pvcs but within normal limits)
Labs (including nutrient deficiencies) are all normal, except...
Endomysial IgA screen 108 (normal<20) and the titer was 1:80 (I think the normal is 1:10 maybe 1:5) anyway positive.
Awaiting appointment for biopsy
I started the gluten free diet a week ago (note: not so worried about the influence on the biopsy results, I'm more interested to see results related to the acid reflux). why? from every research article I've read, if the Endomysial IgA is positive, you have Celiac Sprue (the lowest PPV I've seen is 80%, but most agree 90-95).
So finally my question:
Has anyone experienced similar symptoms and if so how long did it take for the atypical reflux symptoms to subside? After a week I've noticed little change (didn't expect to). I am hoping that once the palpitations cease that my heart perception will subside and I can go back to living a normal life (with the diet, of course).