This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I know its scary right now, but take some comfort that you are working to find out what is wrong. The GI will likely order blood tests and maybe a biopsy. Although not everyone chooses to go ahead with the biopsy, we did just to make sure there was nothing else going on. Also realize that tests in a child this young may come out as a false negative. In that case you can try going gluten free to see if it helps.
If you do go gluten free this website is a great resource as is your local celiac chapter. Also realize that it does get much easier and that you would have caught this early and before alot of damage was done.
We had the same issue with our daughter. At age 6 she had to have caps put on her back teeth and another pulled with a spacer put in as it was absessed. This was before she was diagnosed. We did have it done under sedation by a pediatric dentist and it went great.
Now that she is gluten free she hasn't had a single cavity.
My latest favourite cookbook is Deceptively Delicious. Although not a gluten free book, I have found most receipes work with substituting an all purpose gluten free flour mix. It works with purees and packs everything with lots of nutrition. My daughter loves the brownies, although I haven't told her they have spinich and carrot in them.
I wish it were that simple. You have to claim the incremental cost on your income tax forms as a medical type deduction. In order to get this deduction, your claim will need to be at least a percentage of your income (I think its 3%, but you would need to check this). You need to be able to prove these expenses so keep your reciepts, also a letter confirming your diagnosis is needed if requested.
Personally, we have not spent enough to come close to the lower limit so we haven't bothered claiming it.
We are going throught pretty much the same thing. My daughter's BMI jumped 3% in 3 months. I would go back to the doctor's and ask for her weight to be followed closely, including tests for cholesterol (my daughter's is elevated even though she is only 9) and as mentioned before, blood sugar, thyroid, and vitamin deficiencies. Doctor's are sometimes reluctant to deal with weight issues unless pushed by the patients, but if he still doesn't recognize that it is an issue, I would find a new doctor.
Ask for suggestions on some good books to read on adding exercise as well as diet involving the whole family. We have also found a pediatric obesity clinic in town; they have a pediatrician, nutritionist (very familiar with celiac), trainer, and physcologist. Ask if they have any studies going on soon to help cover the costs. We are meeting with them today so I will let you know if they have any great suggestions that may help. Your town's YMCA or other facilities may also offer a similar program.
I followed a plan similar to Atkins (reduced carbs but not as low as Atkins) and lost 60 lbs. I have know kept it off for 2 years.
My biggest strategy for keeping the weight off is to weigh myself daily and never go over a threshold point (rougly 5 pound over my goal weight). If I hit that weight, I go back on Phase 1 for a few days to get back to my goal.
I have wondered about this myself. My 9 year old doesn't have the problem with sleeping, but is very sensitive to anything hot. Her showers would make me shiver and any hot drinks need to be cooled down to tepid or else she complains they are too hot. Not sure if it is a celiac thing or just extra sensitive skin.
I buy the gluten free rice tortilla shells (the sell them in the freezer section at Superstore in Canada). They are the same size as the regular soft tortillas and are great for burritos and enchiladas as they are softer than the corn varieties.
I think the best part of my daughter being diagnosed is she is finally not in pain all the time.
I thank my lucky stars every day that this is what she has. Considering some of the horrible diseases out there, we consider ourselves blessed that she has something treatable by diet alone. No it's not easy, but it is manageable. We have learned to forgive ourselves when we make a mistake and the occassional glutening makes us realize how far we have come.
Challenges are a part of life, this will be just one of hers and may help her deal with others as she grows up.
Hang in there, it is hard at first, but does get easier and the outlook is quite positive.
There is no such thing as a little celiac. My daughter doesn't always have symptoms and it is hard for us to tell when or what got her as she doesn't have an immediate response. I have found that the longer she is gluten free, it takes less to show a reaction and the reaction tends to be more severe. You may find this to be the case with your little guy as well.
You will need to keep him as gluten free as possible. We do have a mixed kitchen in our house, but some families choose to have their kitchen completely gluten free. To do this, we try to keep one counter for gluten free foods only. I also keep a set of wooden spoons and a strainer that are kept free of gluten. She also has a shelf in our pantry for her foods. He will need his own toaster (I bought a cheap one for under $10 at Walmart that works well enough), and I was able to purchase bread bags in case she goes to a relatives and wants her toast.
You should also keep a dedicated tub of margarine, jelly, peanut butter, etc. as these containers tend to collect bread crumbs easily. I mark all of these with a green sticker so everyone knows, I use these for cooking her meals to make sure it is kept safe.
If you are wondering about which foods are safe, I would start with a natural foods store to start. Their staff is usually knowledgeable and they tend to have a bit more of a selection. Once you have a handle on reading labels, then venture out a little more. Also starting with fresh foods and meat is a good way to get going.
Lastly, I would suggest joining your local Celiac group if there is one. Ours had a ton of information to hand out when we joined and the information was invaluable. There is also the opportunity for the kids to get to know each other with things like Christmas parties and summer camps.
We don't purposly let them have gluten. All of my daughter's issues come from cross-contamination or the rare bone headed move on my part.
Although we try our best, I think it's inevitable to get glutened once in a while. You can't beat yourself up about it, it happens to anyone who takes the chance to eat anything. Once it does, you just to plug your way through it.
Welcome to the board, you will find alot of great advice here.
Thanks again to everyone else for your suggestions.