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tclarkfl

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About tclarkfl

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  1. Knowledge is power. I will ask some more directed questions at my next visit. My doctor is convinced that I am ingesting gluten somewhere and I will pass on the information you have shared with me to get some additional tests run. I've only had a TSH run. I definitely need the whole panel forThyroid and Celiac. I haven't seen my rheumatologist for several years. Maybe it's time for a revisit there too. I want to feel better and get back the energy consistently that I know I have. I have two beautiful grandkids that I want to enjoy to the fullest. I will try to exercise more. I must admit when fatigue and joint pain hit, I don't feel like getting out there and walking, biking although I remember I usually feel better when I finish. I guess I'll have to make exercise a must do every day. Like you, I've had Celiac for YEARS without getting diagnosed so I'll be patient and hope for the best. Thanks again for taking the time to help me through this crossroad.
  2. Your comments have been so helpful! I am chagrined to say that I did not even know of the AGA IgA and AGA IgG versus the tTg that I had drawn on me recently. I truly have tried to eliminate gluten from my diet and felt that my numbers should have improved. I am definitely symptomatic when I ingest gluten so I know when I am getting gluten even in hidden forms. I had had symptoms for years prior to diagnosis and only when I switched GI doctors did I finally get the answer. I will pursue research into other autoimmune disorders. You state that you have four. Can you share which? My joint pain and fatigue have been particularly bad lately and I wonder if there is a correlation between gluten ingestion and pain and fatigue? Is this another manifestation for me? I will get Dr. Green's book and continue this journey. I have not been diligent enough in learning about this disease. Thank you for taking the time to share your knowledge. I plan on getting this under control as much as possible.
  3. My Tissue Transglutaminase IGA are increasing from 27 to 42; however, my Tissue transglutaminase IGG is 2
  4. Thanks! I have not eliminated gluten from my lotions, make-up, etc... I will check with pharmacist re: one medication I am on. All my vitamins say gluten-free. My significant other is mostly gluten-free when at home. I never thought I could get significant amounts of gluten from these sources? How about hair color. Should I avoid it? I have emailed manufacturers and they assure me that although gluten may be present, they would not estimate that I could absorb it. They may be wrong. This is a puzzle that I would like to solve sooner than later. I am pretty much symptom free but am concerned about my increasing numbers. I do get periods of joint pain and fatigue and now wonder if this is just but a new manifestation?
  5. I have been diagnosed with Celiac for almost 3 years. Unfortunately my IGA levels continue to increase despite my ever increasing vigilance. I am symptom-free unless I ingest "hidden" gluten. My GI, however, says I am getting gluten from somewhere. I've checked vitamins, eat nothing pre-packaged, make my own salad dressings, etc... and rarely eat out. I'm stumped! I also have Sjogren's. Fatigue has been a problem lately. I just had a third gastric endoscopy and now have gastritis due to lots of bile in the stomach. Any thoughts, advice would be most welcome
  6. I too am interested in a Central Florida support group. I live in Seminole County and am struggling with my diagnosis. I Can't seem to get my tissue transglutaminase levels down, despite living gluten free. Any advice is welcome.