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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Denise61

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  1. I was in a situation where there were no symptoms being exhibited so there were cetainly no reactions to gluten to be seen. Given the same set of circumstances , I would have the endoscopy done again in a heatbeat. I think it is very different when you are seeing symptoms and can make clear connections to diet. When this is not the case, wouldn't you want to be sure? It was sort of a fluke that he was even tested in the first place. We had no concerns about his health except for some episodes that turned out to be migraines! Had I just radically changed his diet, I think I would have been doing him a great disservice! We have to remember that each case is unique, and one plan of care will not fit every one.
  2. Okay, that sounded like an attack! That's a big leap to telling me that his health is "majorly compromised" when you don't know his health history. You have to realize that every stomach ailment is not celiac. I have taken him to very competant doctors with celiac experience. He had trouble with the I.B.S. for about two months - perhaps there was something going on at school that was making him nervous, and we haven't had trouble since. I do not take this lightly. When he was diagnosed with celiac disease, I had myself tested as well. I have always had stomach troubles. I found a good GI who ran blood work and performed an endoscopy which were both normal. I wanted to be tested because my aunt had celiac disease so I knew that it was in my genetic makeup. I was diagnosed with IBS at that time. And now I can make connections between stress and my showing symptoms. I cannot do that with food. I know very well that IBS is not a disease, It is a combination of symptoms. And incidently, he wasn't tested originally because he was having any stomach issues. It happened that an Endocrinologist ran a battery of tests on him that included the celiac disease screening. We had ended up seeing her because of some episodes where my son woke very nauseas, with slurred speech, and lack of balance with the need to vomit. To make a long story short, it turned out to be cyclic vomiting syndrome that is a form of stomach migraine. Our GI had thought the episodes could be seizures associated with celiac disease. We found out four days before his endoscopy(from a very competant neurologist) that they were migraines (I get migraines - he gets that from me too), and not seizures as we had feared. My doctor really thinks he has a case of gastroenteritis, but is watching him very carefully. He knows about the previous screenings, and if he doesn't improve, will look into that. I have complete faith in this doctor, and I don't usually say that about much of the medical profession. I always do my homework so that I will know what is happening. I know full well that many of celiac disease symptoms mimic other illnesses and often go undiagnosed. I don't think that is the case here. Don't be so quick to judge especially without all the facts!
  3. linsmad, At this point in time, he does not have celiac. He was retested at age six because he had developed stomach issues, and the doctor wanted to be thorough given the prior positive test result. He tested negative at that time, and that was when they tested for the marker. He has that unfortunately, but may very well never develop the disease. He was diagnosed with irritable bowel syndrome instead. He's had no problems since, and he's almost ten now. He has had something going on with his stomach this past week, so of course this has come back to my mind and that is why I sought out this forum. We have had several tests that have all been normal, which is a good thing. It's very possible that it's a case of gastroenteritis, and we just have to wait for it to run its course. It's just very difficult to watch him be uncomfortable for so long! We'll have another follow up on Tuesday. Hopefully, he will be better by then. If not, I will really be worried about his having developed celiac! I would suggest you read Danna Korn's Kids With Celiac. It's an invaluable resource and may answer many questions for you. Good luck!
  4. I would have to disagree with that statement. My son tested positive at four by bloodwork, but showed no evidence of the disease when undergoing the endoscopy. We have since learned that he carries the marker for celiac disease. I would want to know for CERTAIN that my child had celiac disease before I went about trying to make such drastic changes to his diet that he will have to follow for life. Why would you want to put a child through that if you didn't know for sure of the diagnosis? My understanding is that the endoscopy is THE golden standard of diagnosis.
  5. Hi all, I am at the end of a week with my 9 year old son having stomach aches. On Sunday, it was severe enough to warrent a trip to the e.r. to check for appendicitis. We were able to rule that out, luckily. When he was four, he tested positive to Celiac. He had the endoscopy which showed that he did not have it. At six, he had some stomach problems and because of the earlier positive test, the G.I. revisited that possibility. He didn't seem to have it, but was found to carry the marker for it, meaning he could develop it at any time. It turns out that I do have it in my family background. At any rate, he has has pain right around the belly button all week and has had quite a lot of nausea with frequent attempts to vomit, and some diarhea. When he starts feeling better (usually around lunch time), I have let him have something to eat. Then by dinner, the pain is worse and he can't eat again. Yesterday we went to the doctor who sent us for an ultrasound, exrays, and blood work. Everything came back normal. In the afternoon my son felt great - really back to himself in appearance and activity level. We were so happy that we let him have whatever he wanted for dinner. It turned out to be a panini with a side of pesto pasta. He woke up sick again today. Then I started thinking about what he had had to eat this week, and the lunches were half sandwiches. I started to think about the wheat connection. We will be seeing the doctor again this afternoon, but it's driving me crazy not knowing what is going on. In your experience, how much time passes between consuming gluten and exhibiting symptoms? Could a child go from being symptom free to showing symptoms virtually overnight? If anyone has any feedback they would like to offer, I would be greatly appreciative! Thanks for your time. Denise61