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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About CCR

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    • Birthday 06/28/1958

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    • Gender Female
    • Interests Used to love baking. :(<br />Avid knitter.
    • Location New Jersey

    CCR's Activity

    1. CCR added a post in a topic Help Programing Zojirushi X20 Bread Machine   

      My Zo bread machine is only for gluten-free baking. I thought I was being neurotic but I guess I'm not alone in worrying about switching back and forth.

      I just use the basic cycle for my gluten-free mixes and it has worked fine. I also got a recipe from the company (if you call them, they can guide you through finding recipes) and used the basic setting for that, too. I have not been brave enough to customize anything.

      The only time I had a problem was when I had not attached the paddles securely enough. One came out and traveled up into the bread. So one side mixed and the other side looked like the cross-section of an archeological dig. Oh, a flour layer. Oh, a mushy layer. Fascinating.

      We only ate the good half.
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    2. CCR added a post in a topic In Search Of A gluten-free, Nut-free, Soy-free Crepe Recipe!   

      Just wanted to thank you for that recipe, JenPen. I made a double batch for the French class yesterday and they were a huge hit. The teacher emailed me to ask for the recipe (I hope you don't mind that I gave it to her!) because she said they were some of the best crepes she'd ever had and she has a celiac friend who would love them. I can attest to how yummy they were because I ate the two that tragically ripped when I tried to turn them. Quel dommage, n'est-ce pas? (pardon my lousy French)

      I think I'll be making them every month. My son was so happy and so was I. Thanks!
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    3. CCR added a post in a topic gluten-free One Year And Crazy   

      Dulce de Leche is fine.

      Debbie, you really should call Haagen Dazs. You'll get your own list (and who knows, it may have even more flavors on it) and you might get COUPONS. To buy ICE CREAM. What could be better? Call 800-767-0120. They are very nice on the phone.

      If I had a xerox machine or a fax I would totally send you a copy. But I don't. So sorry!

      Dulce de Leche is my son's fav flavor, too. And he's gluten-free. Don't despair.
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    4. CCR added a post in a topic Diagnosis For Children Of Celiac Parents   

      Wow, that is really interesting. That sounds like ME!
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    5. CCR added a post in a topic What Follow-up Should I Receive Post-diagnosis?   

      Thank you for the info. I had the appointment last week and asked for some of those tests, plus a celiac panel (which I never had done before) but I will see her again in a few months and I'll ask for the rest.

      I am going to start to ask for copies of these tests, I think. It seems many people on the forum do that, and it sounds like a good idea.
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    6. CCR added a post in a topic gluten-free One Year And Crazy   

      I actually contacted Haagen-Daz early on and they have many gluten-free flavors. They mailed me an info sheet in response to my phone query and some coupons, too.

      The flavors that DO contain gluten (in the superpremium category) are:

      Caramel Cone
      Cookie Dough
      Cookies and Cream
      Sticky Toffee Pudding

      The rest are fine. The light version is fine except for Caramel Cone.

      If you have a specific flavor in mind, I'll look on my sheet for you. But if you call the company, maybe you'll get coupons!
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    7. CCR added a post in a topic gluten-free One Year And Crazy   

      Hi Debbie,

      I am so sorry to hear how unhappy you are. I am only gluten-free for 3 months and I'm still pretty sad, too. My problem, however, has always been being overweight and that has not changed from giving up gluten. I guess we are all different in the way this disease affects us.

      Anyway, just sending some encouragement your way.

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    8. CCR added a post in a topic Diagnosis For Children Of Celiac Parents   

      jberg, just wondering how you are doing. Did you get to see the doctor yet?
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    9. CCR added a post in a topic Bookstores Suck   

      I found a ton of books at my Barnes & Noble (in NJ) but they were all in the cookbook section, not in the Health section.
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    10. CCR added a post in a topic What Should I Ask The Doctor? (about Endoscopy)   

      My doctor told me when I woke up that he suspected celiac (which had not even been a possibility as far as I knew) but that the biopsy would confirm it. Which it did.

      It was easy, easy, easy. Best sleep I've ever had.
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    11. CCR added a post in a topic Diagnosis For Children Of Celiac Parents   

      I'm sorry I don't know more but I can tell you that in my case, I personally did not lose an ounce of weight and I still was diagnosed by biopsy as celiac. I had no symptoms beyond anemia. I don't know if it is different with children. I have a book that I have not read yet: KIDS WITH CELIAC DISEASE by Danna Korn. She says that
      "a negative blood screening does not mean your child doesn't have celiac disease." She talks about genetic testing, you know if your son carries the genes for celiac? That's a more expensive blood test that many doctors don't do routinely. Korn also discusses stool tests. I got the book from Amazon. You might find it helpful.

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    12. CCR added a post in a topic Diagnosis For Children Of Celiac Parents   

      I am far from an expert but I do have a 13 year old who was just diagnosed by biopsy after positive bloodwork. I am sorry you are having such a rough time. We had a straight line from pediatrician's positive bloodwork to gastro's positive bloodwork to confirmation by endoscopy. But I had been reading all along on this forum and I have heard people say that insurance coverage of a biopsy can be a problem if the right bloodwork isn't done first.

      I do think you should persist and see the gastro as soon as you can (maybe there will be a cancellation) and get his/her opinion. Our gastro did not think the bloodwork ordered by the pediatrician was adequate. He ordered his own. Maybe your gastro will find something the pediatrician missed, something that will justify the biopsy, from the doctor's perspective as well as from the insurance company's perspective.

      You are smart to keep your child on gluten until this is resolved. I wish you and your child the best of luck.

      By the way, my son's only symptom was that he had lost 10 pounds between check-ups. He wasn't feeling ill at all and I thought he was just thinning down, getting ready to have a growth spurt or something. I don't think there are "typical" symptoms. The fact that your son feels terrible and that you have celiac would be enough for me to pursue it.

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    13. CCR added a post in a topic In Search Of A gluten-free, Nut-free, Soy-free Crepe Recipe!   

      I can't thank you enough! I will give these a whirl. They sound great!
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    14. CCR added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      In Search Of A gluten-free, Nut-free, Soy-free Crepe Recipe!
      My 8th grader's French teacher wants to have a monthly French food party in class. She is very open to accommodating his allergies (nuts, soy) as well as his celiac disease. I told her I'd search for a gluten-free crepe recipe. Anyone have one? I'd be very grateful.

      • 4 replies
    15. CCR added a post in a topic Have You Substituted A Food For What You Can't Eat?   

      I am having a real addiction to Kettle Corn (the sweet kind) and to Kozy Shack flan. Very high in calories, but gluten free!
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