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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About crazymurdock

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  • Birthday 01/22/1973

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  • Gender Male
  • Location North Carolina
  1. Refractory Celiac Disease

    Hi sophi054, the medical study you are enrolled in, is it for monoclonal antibody therapy? I was also diagnosed with RCD type 2 back in May, and then reconfirmed in August after many tests at Mayo Clinic. I had clonal t-cells with villous atrophy with increased intraepithelial lymphocytes despite years of being gluten free. I was diagnosed with Celiac Disease in 2003. After the first diagnosis of RCD type 2, I was put on a daily dosage of budesonide and the 11 years of diarrhea finally ended. I am enrolled as a study participant with Dr. Murray at Mayo using the monoclonal antibody therapy - and now have been reclassified as type one. After the last treatment in October, I am happy to say that I am back to the weight I was before all I had lost January - May of last year. My color has returned and my energy is slowly coming back. My biopsy from November’s endoscopy was night and day difference from the one I had in August. I hope you have success with your study.
  2. Hi jddh,   This last June, I was diagnosed with type 2 rcd from a local gi doctor who then referred me to Mayo Clinic. It has been a challenging journey - especially this past year dealing with the symptoms, the unknowns, and at times the ignorance that comes with celiac disease and gluten. I was diagnosed with celiac disease by a biopsy in 2003. From before that diagnose up till this June when they started me on budesonide, I endeared diarrhea every day despite a gluten-free diet.     
  3. I know it has been awhile since anyone posted on this topic but thought I would add my two cents. First off, Integrous, I hope you have found some answers by now. Like some of the others, to anyone looking for a great celiac disease doctor, I would also suggest Mayo Clinic and Dr. Murray based off personal experience. I was referred to him from a GI doctor in Asheville, NC. After experiencing some concerning health issues, and after many tests my diagnosis of 11 years of celiac disease was upgraded to refractory celiac disease with clonal t-cells, something the Asheville doctor hadn't seen but once in 20 years and said I needed to be treated by a celiac center and felt Dr. Murray was the best option and he hoped that I would qualify for a study that they are running to treat rcd. If you google or youtube search for Dr. Murray, there are several informative videos that he has posted on celiac disease, rcd, and gluten issues.  
  4. Hello lblb24,

    To be honest, I have not gone to many of the resturants in Magie Valley. I live not but 5 minutes from there, but hardley go - very sad. I do not know of a resturant in the area that specifically caters to gluten-free food, but any time I have ate out, all the people have been very understanding when I ask questions concerning the food - some places, like Outback Steakho

  5. I saw that your from Waynesville. I am vacationing to Maggie Valley in June. Any restaurants with gluten free options?

  6. Anyone From North Carolina

    I do not know if it is so in other FoodLions grocery stores, but a couple of days ago I went into the one in Waynesville and they had a little section dedicated to gluten free foods. I was shocked! Normally I would have to drive 40 miles to go to Earthfare in Asheville to shop for things.
  7. Anyone From North Carolina

    I am hiding out in the Waynesville area- not far from mile marker 20 on Interstate 40.
  8. Hi Everyone, Do you have room for one more? I have always been on the heavy side, having a large frame structure, but I am way over now. I am currently 284 lbs and would like to get down to 210 lbs or so. A year and a half ago, while I was traveling to and from Mexico on a job assignment, I went through a rough time and was continuously getting glutened and had lost a lot of weigth to quickly. In 4 months time I was down to 230 lbs - a lose of 50 lbs. I finally got an apartment down there and was able to shop and cook for myself. I then gained everything slowly back - faster after completing my job assignment and then starting school. Erik
  9. Thanks Jackie, I quickly scaned you research paper and plan to read it in more detail when my littles ones are asleep. It is very informative with facts that I had not found on the internet. I recieved some good news from my Dr. last week. Though now I am now going to be more on the lookout for the out of the ordinary symtoms or changes. Thanks again! Erik
  10. I got to talk to the Dr. by phone last Thursday. The biopsy results were good news - he went through the list of good things such as no hardening of, no Wilson's disease, and so on. There is some inflammation. That was why he had ordered the extra labs - something to do with the soft tissue. I can not remember all the exact wording - but he basically said that my immune system is still fighting and that there was no need to go to medication now. I do not classify as having AIH. He wants me to come in every three months for continued monitoring. When I get to see him in person the next time, I will get more of the details for future reference. At the moment it seems that I have dodged a bullet , but it is very helpful to have those like all of you on the this forum who have information and are willing to share both your experiences and knowledge with those of us who are in need of support, so thank you! Also a big thanks to all of you who offered prayers.
  11. Thanks to you and AliB for the info.
  12. How long of a duration do you take the milk thistle? I started taking it two weeks ago to see if it helps out. There is nothing in the directions on how long you can or should take it. Thanks!
  13. Still do not have any results or answers yet. The nurse called on Monday and asked me to come in for more lab work. When I asked about the liver biopsy, she said that there was some inflamation and the Dr. want to run more blood tests. Hopefully when the lab work comes back, I will be able to talk to the Dr. and see what is up.
  14. All that I was taken before this was a daily multi-vitamin and a B12 supplement. I am now taken a herbal supplement of Milk Thistle to help the liver do its thing. The doctors did not say anything about it yesterday. Thanks for your insight and expirences.