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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About samantha79

  • Rank
    New Community Member
  • Birthday 04/25/1979

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  • Gender Female
  • Interests Reading, Knitting, Cooking, and spending time with my children and husband
  • Location Yarram, Victoria
  1. Happy birthday and may God bless you today!

  2. Hi everyone, I will apologise in advance if i rant and make this topic overly long but for the first time in ages i am some what getting there with doctors and my kids.. My 7yr old daughter has shown the symptoms of Coeliac for the past 2 years! She also carries one of the genes for it. I had all of my children gene tested when i was diagnosed, although i have only been diagnosed for just about 16months now i have been taking my daughter to multiple doctors to find out why she suffers constant stomach pains which at times reduce her to tears. fluctualting bowel motions, headaches, tiredness, iriitability and so on and so on... Every doctor i took her to would feel her tummy check her temp and send her on her way.. That was until i moved to a new town went to a new doctor and next thing i know i'm with a paediatrician who upon 15min appointment referred her to a gastroenterologist I am nervous for her now as this wednesday she goes in for her endoscope.. I am hoping we are about to get to the bottom of her problem. BUT, The doctor i took her to that referred her to the paed has now left the doctors practice i took her to so i had to make an appointment for my 6 yr old son with a different doc! Low and behold i back to square one My son had full coeliac screen done 8 months ago and came back borderline on these results, the doc back then said he would leave him for 6 months and then see what the next lot of results are.. So i go see new doc explain about last test results and he won't redo blood work!!! According to this doctor there is no need to rush to do these tests as even if he is a coeliac there isn't anything to do for it.. Then tried to tell me, a diagnosed coeliac that it has nothing to do with gluten!! As you can imagine i grabbed my sons hand, told the doctor to go back to school and proceeded out the door!! So i again on the search for a doctor that knows what their doing
  3. Do You Cheat?

    There is no amount of money that could make me want to cheat and consume gluten.. I have had 2 accidental cross contaminations ( thanks to family members) that were absolutely horrible . So if that is the reaction i get from a bread crumb in a spread, there is no way i would deliberately eat gluten.....
  4. My Rant!

    [color="#800080"][/color][b][/b]Hi all, I'm only really doing this so that i can vent what has been building up for quite some time now!!!! I have been slow and lame, it has taken me 4 years to realise that when it comes to doctors it is either really hard or basically impossible to find one that actually listens to their patients. It is my own personal opinion that they are just there to say hi, put things in your ears, check your throat, say it's all in your head, but, have this script anyway!! This is the treatment i received with myself and several doctors when i was trying to find out why i was feeling worse by the day. It took low iron tests, dehydration, panic attack symptoms, reflux, headaches, tiredness and hysterectomy and all the doctors i saw still said it was either depression or that i suffered from anxiety. One doctors idea was to put me on anti depressants which ended in me having a reaction to them, her idea was to give me another form of the tablet, i refused of course and never saw her again! Finally, I found a doctor who really listened. After i told them everything that i suffer from every day and even explained for the umpteenth time that these symptoms got worse with certain foods (pizza, pasta and sausages and some sauces) they decided that they would do a full coeliac screen on me. At this point i had never heard of this disease and panic set in! But, the results came in and all showed normal. So, the what is wrong with me set in again Lucky for me the new doctor wasn't happy to leave it there and decided that she was going to send me to a gastroenterologist anyway to have them check for ulcers instead. On first appointment with the gastro doc he did an endoscope, told me that i had no ulcers, but, that he took some biopsies anyway to be on the safe side but that everything appeared to be normal from what he could see. Lucky for me that he was very picky and of a high standard, his off chance biopsy to cover all possible bases gave me the answer that i had been seeking for 3 years. I was diagnosed as a Coeliac!!! Of course, this scared me i had no idea what to expect, so i got online a year ago and found this website. I was in heaven i found everything i could possibly want to know! BUT, then the fun began. Doc decides that my 4 children should be tested for coeliac. All blood screens came back normal, but they covered all bases and whole family was gene tested. I carry both genes..DQ2 and DQ8. Each of my children carry atleast 1 of the genes. And this is were the fun begins!! I have now been running back and forth to doctors and paeds with my 7 yr old daughter! She has for the past 20 months complained constantly of stomach pains, bowel problems, headaches and is easily irritated. Again, her bloods came back normal. I have even explained to doctors that i would not wish for one of my kids to have the diet requirement that i do, but, i need an answer, so in 2 months she is finally going to she a gastroenterologist! It has taken a move to another state to get a paed doc that will listen to me. Even though my daughters blood work up is negetive he still recommends that the gastro do biopsies, and has used my past results of false negatives as his back up, so in 2 months you will either read another of my blogs, i will either be ranting again that i at my wit' s end or that i'm celebrating that i finally have an answer.