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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Shelly D.

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About Shelly D.

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  • Birthday 03/13/1963

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  • Gender Female
  • Location Idaho
  1. Happy birthday and may God bless you today!

  2. My husband (non-celiac) had similar symptoms (really bad D, then pain and bloating with the D getting less bad but not stopping) a few months ago. He thought he'd been poisoned at a restaurant but it lasted for way too long. Finally one of the guys he worked with had him try a Prilosec and it seemed to help. Now he takes one every day to keep the symptoms away.
  3. Wow, he is very thin. I think this is a symptom of celiac disease, the more experienced members would be able to confirm this. In one of the books (Gluten-free Cooking for Dummies) she talks about her son looking like a starving baby even though he ate and it was due to the malabsorption caused by his gluten intolerance (leaky gut). My son, who is an undiagnosed, and in denial, celiac sufferer has the opposite problem, he's not fat but he has this soft tire around his middle and fatty pectorals even though he's in good shape. I can ask my LPN and chiropractor if they know anyone who might be better able to help you both down this road if you'd like since your doctor isn't being helpful and supportive.
  4. As for restaurants...PF Changs if you want to make the trip into Spokane. Applebees and Red Robin will print out special menu suggestions, and I've had pretty good luck just ordering meat grilled with veggies on the side. Nothing breaded or deep fried (deep fryers seem to be able to spread the gluten) Salads are usually good as long as you remember to go without croutons. Most of the restaurants have ingredient and special menu info on their websites so you can plan ahead. Fast food is more limiting to me than dine-in. Taco Time and Wendy's are about the only places I'll drive through anymore. I can't eat any dairy or eggs along with some other random stuff that I sensitized myself to by eating a lot of (garlic, almonds) so I try to be fairly picky about my eating. It will amaze you where you find gluten. Pringles are bad but Stax are okay. Fritos are good but Lays are bad; it's weird. Be careful with the corn and rice stuff though because it has a high glycemic index and can cause weight gain. It has only been since July that I have been gluten free and, honestly, there are so many times each day that I miss my regular food or special treats, but I just keep telling myself that its for the better. I feel better, my family says I look healthier and am less grumpy so I just keep going, one day at a time. Your guy might go through a bit of a rough spot anywhere from a week to a month in, it seems to be some sort of withdrawal. I relied heavily on this site to help when I felt crappy. Get some cook books, just knowing that there are bunches of really great food to eat helps with the depression when it gets to be too much. Barnes and Noble has lots of good ones. I like the "For Dummies" one.
  5. Michelle, Welcome and don't panic. I'm in Lewiston and have found some interesting places to shop and dine out in our areas. Rosauers has the BEST section of foods for us in their "Huckleberries" sections. I'm all for eating basic diet foods until feeling better, but it is a bit frustrating at first! So try to feed him well but have snacks to nibble when the urge strikes.
  6. They are all really young and this was their first Olympics. I think the fact that none of them made the individual competition took some wind out of their sails though.
  7. Ummm, Oral Sex Question?

    I think this is a very interesting topic (and very humorous). I don't want to sound crass or weird, I'm really just trying to learn so I can avoid or at least know where and when I might be getting glutened because some of my glutinations seem to be a total mystery. I'm assuming that those of you who react are performing OS clear to the end and I was wondering, you don't...well...swallow do you? I haven't noticed any reaction yet, but OS is more prelims than finals for us. I'm curious as to whether you'd get a reaction if you tried OS with a condom on (I know, not very fun and really not worth the effort, but who wants to be sick?). If that's not an option, maybe trying OS as the second round so that the urethra would be already "washed"out and the seminal fluid would be..fresher. My husband says he is willing to sacrifice for the sake of research
  8. Arrhythmia

    Mirabella, You can absolutely have stress in your subconcious. Any unfinished projects, little irritations, chronic aggrivations, all sorts of things can add a little layer of stress to your body and mind. These stresses can cause depression (fatigue is a common side effect of depression), anger, mood swings, and many other issues. I always think about a quote I saw on a card, "Dr. Phil says, 'To alleviate stress the first thing you need to do is finish all your unfinished business.' So I decided to finish the bottle of wine, the box of chocolates and the bag of chips." Trying to cope with celiac disease and all the new stuff can add a lot of stress too, especially if your family isn't supportive. See your doctor, then get out of the house and do something for yourself like take a walk, get a massage or a mani/pedi, or go out with the girls for gluten-free drinks at a comedy night.
  9. I'm glad I'm not the only one watching. It seems like it's not as important as it was when I was a kid. The morning radio show I was listening to didn't even know how many medals Micheal Phelps had won and whether they were this years or last or all together. I realize that this probably means they have a busy life but, sheesh, this is the OLYMPICS. The best athletes in the world competing and representing us. Mens gymnastics was so distressing last night, I felt so bad for all of the competitors. They didn't seem to be able to focus or luck just wasn't with them. A Japanese guy fell off the pommel horse twice and the Chinese or maybe Russian guy fell off the rings and a guy crashed the landing off the vault. It was amazing to watch. The synchronized diving fascinates me, how do they do that? I'm lucky to jump in with any amount of grace let alone twist-turn-roll and go in with no splash. I can't wait for the individual events. Phelps goes for 6 & 7 tonight, woohoo go Phelps. Any of you old enough to remember Mark Spitz? That thick mustache and cocky attitude was such a change from traditional olympian demeanor.
  10. Because I don't like dairy milk and the phytoestragens in soy do a whammy on my PMS I have been drinking Rice Dream. After I read the previous messages I became concerned that I might be glutenating myself (again ) so I emailed Rice Dream Saturday and this was the reply I got this morning, "Thank you for taking the time to contact us regarding our Enriched Vanilla Rice Dream Beverage. We strive to maintain the highest quality products and appreciate your patronage. Analytical testing methods and detection limits have improved over the years. Recent testing shows that the Rice Dream Beverages (as well as the barley protein used to make the product) meet gluten free requirements. This has probably been true historically, however analytical testing methods did not permit us to make this claim. We have always maintained a conservative stance regarding gluten in the beverages. The same rigorous standards now allow us to declare them gluten free. The formula and processing methods for Rice Dream beverages have not changed. Each batch will be tested appropriately. Thank you for your continued support. If we can be of further assistance, please feel free to contact us at 1-800-434-4246, Monday through Friday from 7AM - 5PM Mountain Time. Sincerely, George Consumer Relations Representative I guess I'll have to see what happens since I just ate a bowl of Koala Crispies with Rice Dream before I got on my computer.
  11. I love the Olympics!! Go Micheal Phelps and my hero..Dara Torres. Can you believe a 41 year old woman can look so great?
  12. Sorry, I'm embarrassed. I'm trying to figure this website out and am still having trouble catching on to where everything leads. It's too bad you didn't get better, I hope you figure it out.
  13. What a revelation!! I feel pretty dumb too. A vet told me that dogs are frequently intolerant to corn so I spent hours looking for really high quality dog food that didn't have corn in it...and yet I continued to eat it. Now that you mention it it does seem logical that we omnivores aren't dealing with domesticated grains any better than our domesticated carnivores are.
  14. Like everyone else has said, if it feels good --do it! From what I've read one indicator blood test (Total serum IgA) gives false negatives because the person getting tested can be deficient to start with so an elevated reading actually comes out looking normal. Be sure you doc is running all five tests on your blood, they are- tTG-Iga, EMA-IgA, AGA-IgA, AGA-IgG, and total serum IgA. (from "Living Gluten Free for Dummies, by Danna Korn) Although Danna Korn says the EnteroLab stool tests aren't "considered a standard diagnostic tool" for celiac disease I got positive results from a GI test (I used Diagnos-Techs Lab). I collected poo 2x over a 3 day period in vials and spit in another vial, all in a nice mailer kit, provided by an LPN to find out I had gluten intolerance, my family doc Dx-ed the Celiac Disease and ran blood tests that came back negative. I still consider myself as having celiac disease.
  15. Arrhythmia

    I have occassional missed beats, and then thumping to catch up, especially when I lay down at night. It is scary. I've also had episodes where my heart beats out of control. Once I had to call the EMTs and they had me at about 230 beats per minute without being able to convert it back, so they used a med to stop my heart for a few seconds. When I went to the ER the doc said that it was Supraventrical Tachycardia (SVT) and if it only happens once every 35 years that I shouldn't take meds for it but that I should follow up with a cardiologist. I didn't, my bad. About ten years later I had an eppisode IN my family doc's office and then had to follow up w/ the cardiologist. He agreed with the ER doc. What I have isn't immediately fatal but it is good to be able to give it a name (just like finally knowing I'm gluten intolerant ). I haven't noticed any change since being gluten free, bummer. I did notice that it happens more often when I've over-eaten though. Keep trying with your doctors, and if they don't help try someone less embedded in the AMA establishment. Go to a LPN or a chiropractor or a nutritionist that can refer you to someone more caring. I would think having your pulse within the normal range would be a good thing though, 90 seems high.