This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I don't have any glutening symptoms. Either that, or in 2.5 years, I have never been glutened. I have half a mind to purposely eat something with gluten just to find out, but I'm too chicken. And really, what would be the point? I avoid it as best I can, 100%.
I was diagnosed at age 42. Up until then, I had zero symptoms and could eat anything I wanted. Suddenly one morning I had a pain in my stomach just under my sternum, and it wouldn't go away. I tried eating crackers but it made it worse (gee, what a surprise!). I had this pain for a couple of weeks and called my doctor. He suggested a round of Prilosec and an appointment with a gastroenterologist. The Prilosec did help, and by the time I went in for the endoscopy, my symptoms were gone. I received the diagnosis two weeks later (pain was still gone), two days before a trip to Europe. I ate whatever I wanted in Europe - my last hurrah - without any pain at all. My bloodwork was also positive, so I reluctantly accepted the diagnosis and went gluten-free.
My trigger: I think it was stress. My daughter's best friend was killed in a terrible accident, two days later my father in law died, and my son was graduating from high school and figuring out where he wanted to go for college. Just a lot of stressful things happening all at once.
My kids have both been tested for antibodies and both are negative. That, as we all know, doesn't mean they'll never develop Celiac, since they certainly might have received the genes from me. If, at some point, either of them develops symptoms, then they will be tested again. I would not recommend that a person completely avoid gluten in order to prevent them from developing Celiac, unless they're already exhibiting symptoms.
My house has been gluten-free since I went gluten-free in August 2008. The only gluteny items allowed are beer, or snack type items that my husband keeps in his office or my daughter keeps in her room. No gluten (except beer) in the kitchen or main living areas. My husband and kids agreed to this ahead of time. I told them it would be a lot easier for me to not get CC, plus I am the grocery shopper and the cook... so.... . Anyway, at least *they* can eat whatever they want when they're not at home.
I do not get upset when others eat gluten-filled foods around me. I feel envious, yes, but I don't feel upset with them at all. I've been pleasantly surprised that so many people in my life have been very accommodating of my dietary needs and have gone to extra work to have foods available for me to eat in social situations. It's really nice.
Still, I'd be lying if I said I didn't miss some things and wish I didn't have this disease. But it is what it is.
Hi! I'd like to join you, too. I started Weight Watchers the day after Thanksgiving, and by Valentine's Day I lost 16 lbs and reached my goal weight. Now I'm maintaining by tracking calories using an online tracker (MyPlate, on the Livestrong website), rather than continue to pay the monthly fee for WW Online.
Like some of you, when I was diagnosed Celiac 1.5 years ago, I overcompensated for my loss of gluten by eating a lot of junk food that was bad for me, and I gained about 10 lbs pretty quickly. I feel so much better and in control now!
Weight Watchers really works! I combined it with running, which I think was a huge help. I started off slow and am now up to 5-6 miles, 3x a week.
They say maintenance is the hardest part. I'd like to stay accountable, and since we're all in the same gluten-free boat, this seems like a great place to do that!
I've been on WW for the past month and have lost 9 lbs. Ideally, I'd like to lose 8 more. My favorite snacks are 94% fat-free microwave popcorn, or hot-air popped popcorn. Also veggies and hummus! And fruit like apples, clementines, bananas. All good snacks. I used to love trail mix and almonds, but it's too many points so I mostly avoid them now.
Are you joining online or meetings? I'm online only, but I think with meetings you can also sign up for E-Tools online, and have access to recipes and message boards there. They are very helpful. Good luck!
Schar white bread is really, truly good. I haven't found it in any local stores but you can order it from Gluten Free Mall or some other sites. It's expensive (of course) and the slices are small, but they don't have that icky rice flour taste. That reminds me of the time I was on a vacation and there was an In-n-Out Burger near our hotel. I decided to buy some gluten-free hamburger buns at Whole Foods so that I could have a bun for my burger. I should have known when I *hoisted* the bag of 6 rolls from the shelf, to put them back. They were like bricks, and so dry. Yuck, yuck, yuck. The burger was better without that bun! I know Schar makes rolls too, but like the bread slices, they are small. Good to keep on hand in your freezer, though.