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Beth in N

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About Beth in N

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  1. I'm more inclined to think it's eating out more than contamination at home, simply because it happens always a couple days after eating out. I used to go months in between these gluten sleeping days but the last month or so, it's been once a week. I need to discuss not going out with the family. I just need a break occasionally on the cooking, due to my other issues.
  2. But if there is gluten on the outside and I get it on my hands, can I not get glutened from it?
  3. It does seem to ME that neuro symptoms are common on the second day. When I have those days, I usually went out to eat two days before. Today at at ladies conference at church, I brought my own food. But right after I put salt and pepper on my salad, I almost hit myself. I know others, who were eating chicken salad sandwiches, had used the salt and pepper shakers. I wonder if it is simple things like that which are getting me at restaurants.
  4. Don't have Hashi's. I take two thyroid supplements and levels are good now. Both times I THINK it's been from eating out, but it's so hard to know. I guess if I went without eating out for a month I'd know, but that would be so hard. But each times it's been two days after eating out. But I also have gluten eaters at home, but they have a dedicated spot. They are really good about keeping gluten out of the kitchen, but I do clean up both areas.
  5. I've had Celiac for several years. I honestly don't remember when I was diagnosed...possibly one of my symptoms...crappy memory in the last couple years. I did not have the classic symptoms before diagnosis and was honestly shocked at the diagnosis itself. There are lots of times I THINK I was glutened, but I don't know it for a fact, since I don't react the same way. I will have a day when I sleep most of the day...can't stay awake for the life of me. That has happened occasionally over the years. It's happened a once a week for the last two - three weeks, yesterday being the most recent. I slept even longer than usual, but in addition, had some strange sensations in my head. I can't call it vertigo. It was almost like a brain shiver, but not as severe. Like dizziness that was only seconds and would go away, but happened repeatedly. I checked my BP to make sure it wasn't low. My heart rate was ok. But I definitely didn't feel right in my head. I stayed in bed, even after waking late yesterday afternoon because of it. Today I've been able to stay awake without a problem, but I'm getting that occasional quick dizzy feeling. It is getting better though. No new meds as of a full month ago. So I've assumed this is MY way of having a gluten reaction. I refer to it as a "gluten coma" to family and they know what I mean. I know regular allergies can worsen over time. Can the same hold true with Celiac? I know it isn't a true allergy, in the anaphylaxis sense of the word. I've done reading about neuro symptoms and I'm nothing near what I read about ataxia. Does anyone have any insight into this? Anyone else experience similar symptoms? Thanks in advance, Beth in NC
  6. I've had Celiac for several years. I honestly don't remember when I was diagnosed...possibly one of my symptoms...crappy memory in the last couple years. I did not have the classic symptoms before diagnosis and was honestly shocked at the diagnosis itself. There are lots of times I THINK I was glutened, but I don't know it for a fact, since I don't react the same way. I will have a day when I sleep most of the day...can't stay awake for the life of me. That has happened occasionally over the years. It's happened a once a week for the last two - three weeks, yesterday being the most recent. I slept even longer than usual, but in addition, had some strange sensations in my head. I can't call it vertigo. It was almost like a brain shiver, but not as severe. Like dizziness that was only seconds and would go away, but happened repeatedly. I checked my BP to make sure it wasn't low. My heart rate was ok. But I definitely didn't feel right in my head. I stayed in bed, even after waking late yesterday afternoon because of it. Today I've been able to stay awake without a problem, but I'm getting that occasional quick dizzy feeling. It is getting better though. No new meds as of a full month ago. So I've assumed this is MY way of having a gluten reaction. I refer to it as a "gluten coma" to family and they know what I mean. I know regular allergies can worsen over time. Can the same hold true with Celiac? I know it isn't a true allergy, in the anaphylaxis sense of the word. I've done reading about neuro symptoms and I'm nothing near what I read about ataxia. Does anyone have any insight into this? Anyone else experience similar symptoms? Thanks in advance, Beth in NC