This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
My son is a Junior at NC State University. He has lived off campus his entire college experience thus far so hasn't had too much difficulty. But it has been a challenge none the less. He wants to meet with the "higher ups" and attempt to get some changes made and some gluten-free awareness there on campus for other students, because he knows they are out there.
Do ANY of you have any stories, experiences, etc of similar situation where people worked on the ground level to get things changed like this? I would appreciate anything you can offer to help.
Well, can someone at least tell me the difference in seeing the antigliadin antibodies vs the t-transglutaminase antibodies? I'm just trying to figure out why this particular one was higher when all the others were improved.
I am one of those people who do not have a strong reaction physically when I accidently get glutened. It is frustrating as I start feeling bad days later...I think...and have no idea what in the world I ate. I have still had a lot of days where mentally I was off and had a great deal of fibromyalgia symptoms.
I was at the docs last week for bronchitis and asked for a new celiac panel since this would ensure the same lab was used as the last time. She gladly did it.
Some of my results are better, even within normal range, but there is one that is much higher than before. I don't know exactly what each one means though, so that is where you experienced folks come in.
Antigliadin Abs, IgA
This test changed a bit, but was within range both times.
July - normal range 0-4....my result was 2
December - normal range 0-10....my result 6.8
Antigliadin Abs, IgG
July - normal range 0-9....my result 18
December - Normal range 0-10.....my result 31.3
WHAT'S UP WITH THAT?????
July - normal range 0-3....my results 21
December - my result 3 YEAH!!!
July - normal range 0-5...my result 13
December - my result 2 YEAH!!!
Endomysial Antibody IgA
July - Positive
December - NEGATIVE!!!
Immunoglobulin A, Qn
July - normal range 70-400....my result 192
December - my result 189
Both of these are in normal range but I'm not sure what this tests for.
My PERSONAL suggestion would be to never buy ANY rice pasta but Tinkyada! I've heard from many celiacs that it is the best brand and I believe it. Even my husband and teenage son who are not Celiac eat it with no problem. Now I WILL say...cook it according to the directions. The first time I made it it was like eating an earth worm! It was soft on the outside and well...it wasn't cooked enough. We are very content with the Tinkyada here.
Here's the link to the recipe. I remember the gal that created it saying that she intentionally used several whole grains so that it was lower on the Glycemic Index. Hopefully that would be a plus in your daughter's case with the diabetes.
Didn't she have SOME symptoms for you to get her tested?
My son was 18 when diagnosed and initially he went in total denial, but it only lasted a few days. I had to let him own it though, but he was already "of age" where your daughter is not. He, like me, did not have the diarrhea and chronic aches, etc, but he was SO fatigued and finally was able to realize the two went together. He was napping during the day because he just could not make it though the day without one. We also just found out that he already has more osteopenia than *I* do and I'm 45! So it was definitely affecting him, but not in immediate dramatic fashion.
Hopefully you can find a support group in your area where there are others her age who have it and they can meet her. It really does stink to have this disease, much less to have diabetes as well. Encourage her all you can with how well she is doing with the diabetes and let her share her feelings. You can have the proper foods at home, but cannot really control when she is out. But there is so much out there that you can usually find a substitute for just about anything and still make it gluten free. I finally found a bread recipe for sandwiches that honestly does not taste that different than the whole wheat bread I was making months ago. That was a BIGGIE for my son.
My grocery bill is getting pretty scary! I have found some things online, but it seems Amazon has one thing cheaper, then someone else has something else. I love Amazon because I can get free shipping...that's better than paying for gas!
So what items have you chosen to purchase online because it was cheaper and where did you order from? Also, if you had poor service, mention that too.
Yesterday I could not stay awake unless I was up and walking. I've had this one other day, a few weeks ago, and I just napped....two naps of two hours each and I was STILL tired. Yesterday I had a lot to do so I fought it, finally getting a Starbucks Latte at 5 p.m. so the caffiene would help.
It just dawned on me today that this might be part of me being glutened. Friday I had slight D, the sleepiness was Saturday and today I have been sore all over and had a stomach ache.
I do not know what I ate, if that is what this is. It would have had to come from CC, because I ate nothing that outright had gluten.
Could the sleepiness be from a glutening? It was like I was drugged!
Would you find Thai noodles at a traditional grocery store chain? My lazy 18 year old son is lamenting the passing of his Ramen noodles!
My son is in college, and has just been diagnosed for a couple weeks. He still eats hotdogs, just without the bun so far. Just make sure to get the gluten-free ones. He also likes the pizza shells mentioned above, with gluten-free sauce, turkey pepperoni and italian cheese. He's eating a lot of fresh fruit as well.
Mexican...at home...is pretty easy too. I asked for help preparing a mexican meal for a crowd and got great advice. You could make up a larger batch of taco meat and freeze some in single portions. Make a yummy taco salad if you want too! Chips....cheese dip....OH....1 lb velveeta cheese cut in cubes/add one can Rotel tomatoes and nuke it, stirring it till it is cheese dip! Looks gross to begin with, but was VERY good. I personally think nachos is a complete meal!
My son is only 18 and has been diagnosed for less than 2 weeks. We went to Whole Foods and he found the Kinnikinnick pizza crusts and wanted to try them. He was REALLY pleased with his first one...used Classico for the sauce, turkey pepperoni and mozz cheese. He was thrilled to have pizza, since so much else has been taken away.