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LindaB

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About LindaB

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  1. Tofutti Better Than Cream Cheese

    I have tried their products more than once and have gotten bowel discomfort lasting for a day. Sometimes it doesn't seem to bother me and then if I have it very often I do not feel well at all so end up throwing it out.
  2. My doctor gave me a sample of Skelaxin and I did find this drug on two list as being gluten free, but cannot contact the manufacturer and wondered if anyone has taken this and if it is in fact gluten free? Linda B
  3. Hi all, I have been gluten free for over a year and still have a problem with fiber. I do not eat any veggies except squash and cauliflower. I can eat fresh cantaloupe and canned fruit but no berries at all. Until recently I could not eat beef except if it was ground and can only eat a pork chop, but no other pork. I find I have a hard time with fats and fiber. I have not had a real dessert since on this diet--even the gluten-free cookies make me gassy. I eat not dairy or anything with casein in it, but can tolerate low acid no pulp orange juice. I drink gluten-free rice milk occasionally, but get most of my calcium with supplements. I am older so I feel it is taking me much longer to heal than most. I have recently gained 5 pounds and am getting stronger, but recently tried yogurt--just a spoonful and am still suffering from that. This diet has given me new problems which I never had before, however, the pain has stopped and now just have discomfort occcasionally, especially if I have to sit for very long. I feel it takes quite awhile for you body to get used to these new foods. As the months progressed I have found more and more things I cannot eat without discomfort. Linda
  4. Lily, Does your discomfort feel like a band right under your ribcage? I have found out that corn can cause real discomfort so have cut that out, but still drink Sprite which has corn syrup in it and it does not seem to make a difference. I feel that it is just the bowel still in the healing process. Sometimes it feels like a hard feeling like gas and I do get the right sided discomfort but not as much as I used to. It also depends on whether I have eaten a large meal or not as to whether I have that discomfort and if the food was soft or something like steak. I have wondered if the problem is just gas forming in the bowel from digesting food. My doctor told me I had Irritable Bowel Syndrome because I said sometimes it feels like a roe going across my abdomen and he said that was a very common phrase used to describe that condition. Linda
  5. I have been gluten free for over a year and still have trouble sitting up for very long because it is uncomfortable. It feels like a band across my abdomen just below the ribcage where the small bowel is located. This feeling goes away after not eating for awhile like overnight, but during the day it is directly related to eating. Has anyone else had this and did it eventually get better? Linda B.
  6. I wrote earlier and have that awful hungry feeling and the pain in the area around the navel. I do take Protonix and it helps to curb the pain in that area. Just to be sure I need to take it, I have stopped a couple of times and then the uncomfortable feeling comes back so it seems with this disease we may just have too much acid in that area. I know I sleep better when I am taking the medication otherwise I wake up and have to eat or I cannot get back to sleep. I am just hoping this goes away after awhile--for me it has been a year and three months and yet I know other Celiacs who have been on this diet for over four years and they do not seem to have this problem. I have never been a big eater so this is very trying to have to have food with me all of the time. Also, I might add that on endoscopy it did not show that I had reflux or an ulcer but the doctor put me on the medication anyway to see if it would help. Linda
  7. Gillian, Since being on this gluten free diet for over a year now I have the same feelings you do in the stomach and get very, very hungry and feel that I have to eat right now in order to feel better. My stomach will feel raw which I never had before. After eating I will start to feel better. I had my tests done after six months and was down to negative in all but one which unequivocal, so I know I am eating gluten free. However, I feel weird most of the time and my small intestine will feel different even now, especially when I am sitting after eating. I tend to lean to one side or the other to be more comfortable and am not able to eat all foods even though they are gluten free. The doctors don't seem worried about it though and sometimes I feel ok. I have found some things I used to eat bother me now, like corn which I love. I also eat more than I ever did before just to maintain my weight so I guess I am not absorbing everything even now. Just recently, however, I gain about four pounds so that was encouraging. I also cannot eat any rich foods or I have problems. Linda B.
  8. Feeling Really Down

    Newbie, I am post menopausal so that must be why I was put on the Fosomax. I am 58 years old and was just diagnosed with Celiac last in December of 2002. My doctor said after being ont he medication for a year he would send me for another bone scan to see if it is working--I sure hope so. Linda B.
  9. Feeling Really Down

    Newbie, I am Lutheran and I explained to our pastor that I cannot have the bread and she completely understood and knew that some churches do have gluten-free communion wafers, however, we do not. So when I go up for communion, the pastor does not offer me bread, but I do take the juice. You are not less of a person because you cannot have the bread, it is just important that you are there. I have been gluten-free for a bit over a year and am just now feeling pretty good each day. It took a long time for me to heal after 57 years of eating the wrong things and being diagnosed with everything but what I actually had. Why hasn't your doctor put you on Fosamax which you take once a week if you have osteoporosis. I take this pill and it is supposed to strengthen your bones after the loss of calcium. Linda
  10. Communion

    Newbie, I am Lutheran and I explained to our pastor that I cannot have the bread and she completely understood and knew that some churches do have gluten-free communion wafers, however, we do not. So when I go up for communion, the pastor does not offer me bread, but I do take the juice. You are not less of a person because you cannot have the bread, it is just important that you are there. I have been gluten-free for a bit over a year and am just now feeling pretty good each day. It took a long time for me to heal after 57 years of eating the wrong things and being diagnosed with everything but what I actually had. Why hasn't your doctor put you on Fosamax which you take once a week if you have osteoporosis. I take this pill and it is supposed to strengthen your bones after the loss of calcium. Linda
  11. Social Anxiety

    Lisa B. Thanks for the list--I am going to copy it. Some of the items I cannot eat, but other I can. Thanks again. Linda B.
  12. I also cannot eat vegetables except for squash and cauliflower which are soft and easier to digest. I do drink orange juice with no problem and eat canned pears and as far as fresh fruits the only ones I can tolerate are bananas and cantaloupe so far. I have been on this diet for a year. Meat is another problem except for chicken and fish which don't seem to give me much problem and once in awhile I eat pork chops. Getting enough protein is hard since I cannot have dairy so cheese is out and also nuts do not agree either, even peanut butter. Linda B.
  13. I have seen several posts saying they take Tums, but I have not seen them listed as gluten free on any of the sites. Are they and if not are Rolaids? What does anyone take for that gassy feeling after eating? Linda B.
  14. I use vanilla flavored rice milk by Pacific. I am on the west coast and it is made here. It does not taste too bad and is labeled right on the box gluten free. I use it in baking and just to drink. Linda B.
  15. Social Anxiety

    Lisa, When I took the Natural Calm it caused pain and a general feeling of not feeling well. I have the opposite of most Celiacs, I was always constipated, but since going on this diet a year ago I am no longer having that problem. Linda