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dilettantesteph

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dilettantesteph last won the day on December 30 2018

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About Me

BSc Biohemistry University of British Columbia, Vancouver, B.C.

MSc Chemistry University of British Columbia, Vancouver, B.C.

- resulting in 2 publications in peer reviewed journals

PhD Chemistry Indiana University, Bloomington, Indiana

- resulting in 13 publications in peer reviewed journals

Postdoctorral experience The California Institute of Technology, Pasadena, California

- resulting in 2 publications in peer reviewed journals

Relevant job experience: Worked for a testing company in Canada developing protocol and testing for trace impurities in food and soil.

Worked at Los Alamos National Labs in New Mexico doing research chemistry on the reactivity of metal metal multiple bonds.

Play recorder in a quartet, saxophone in a band, and piano in my house.

Love gardening.

Sick all my life until diagnosis Nov 2007.

Married with two children including celiac son born 1997, diagnosed at the same time.

As a super sensitive celiac, I believe it is essential to our health to be able to exchange information about which foods to eat, and what things to avoid.

  1. I am sorry that you are feeling sick again. It is tough when it seems like the only way to find out if something will make you sick is to have it make you sick. I hope that you recover quickly. I also hope that you make good progress at figuring out what is bothering you. I hope that keeping the food diary helps.
  2. Not all celiacs have the same level of sensitivity or other intolerances. Just because another celiac can eat something doesn't mean that you can. You can read about that here: http://www.fda.gov/d...h/UCM264152.pdf Health Hazard Assessment for Gluten Exposure in Individuals with Celiac Disease: "Available evidence suggests that many aspects of the...
  3. When your ulcer was detected, were you treated for H. pylori? http://www.webmd.com/digestive-disorders/h-pylori-helicobacter-pylori That might help.
  4. I was thinking about it myself. How was it? Which one did you try? Did you find it locally?
  5. Talk about a fast response! Interesting about how the quotes show our local time zone while the posts show California's time zone.
  6. When I was looking at wines yesterday I noticed some stating that they were unoaked. I also heard someone asking about a wine and being asked if she preferred unoaked. Is that a gluten thing referencing the use of barrels?
  7. You may want to consider a diet like this one: http://www.biomedcentral.com/1471-230X/13/40 There can be wait times around 3 months where I live in the US to see a GI. Last time my son got in quickly only to find that the doctor knew very little about celiac disease. He didn't think that it could cause reflux because that wasn't listed as a symptom...
  8. Here is a study that you can show your GI: http://www.biomedcentral.com/1471-230X/13/40 "Here we describe the effects of a 3-6 month diet of whole, unprocessed foods, termed the Gluten Contamination Elimination Diet (GCED), on NRCD. We aim to demonstrate that this diet reclassifies the majority of patients thought to have RCD type 1 (RCD1)." ...
  9. Irishheart seems to be saying, in the super sensitive section, without any reference to evidence, that it is not true that some celiacs are sensitive to lower levels of gluten than others. She says that it is just that some celiacs are more paranoid than others. I was trying to show some of the science that says otherwise. There are amounts of gluten to...
  10. Also: http://www.fda.gov/downloads/Food/FoodScienceResearch/UCM264152.pdf Health Hazard Assessment for Gluten Exposure in Individuals with Celiac Disease: "Available evidence suggests that many aspects of the response of those afflicted with celiac disease to a gluten challenge vary widely. " "Because of the significant degree of individual variability in...
  11. The science does not agree with you, Irishheart: http://www.ncbi.nlm.nih.gov/pubmed/17209192 "After a baseline evaluation (t0), patients were assigned to ingest daily for 90 d a capsule containing 0, 10, or 50 mg gluten." "One patient (challenged with 10 mg gluten) developed a clinical relapse." The others did not. That "smidge" of gluten did not cause...
  12. The only scientific information I gave was from the USDA.
  13. I don't understand how this relates to what I said. I said "I don't know if it is the feed, or something else about the winter, like not being in the sun."
  14. The OP asked this: "I've read that people who are super-sensitive like me can sometimes react to eggs if the hens were fed gluten. Have any of you found that there some truth to this?" I answered with my personal experience. I reacted to eggs. Later I found that I can eat pasture fed eggs that don't get supplemental feed in the summer and I freeze these...
  15. Thank you for understanding the point that I was trying to make. Thank you for restating it in a way that might make sense to others. I find eggs a valuable addition to my diet.
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