owka4u replied to jebus's topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Hi, I started getting the headaches in my 30's long before I was diagnosed with celiac. I went through 2 nasoplasty surgeries thinking they were sinus related. The headaches got progressively worse over the years and would last 3 days and I would be noushsous as well. My doctors tried Imitrix but the only thing that helped was Demerol and it only helped the first day then the headache was right back. Finally I went to an Urgent Care clinic with a full blown headache with nausea to get a shot of Demerol and a doctor who normally headed a pain clinic asked if he could try something else which had to administered by IV drip at first. I said yes thinking it probably would not work. But after about a half an hour, I walked out with no headache or nausea. The medication is DHE 45 and the generic is Dihydroergotamine Mesylate Injection, USP. It has to be injected inter-muscular in the thigh at the onset of the headache, but it is the only thing that has worked for me. I was not diagnosed with celiac until being treated for Hepatitis C which caused the celiac to become full blown and put me in the hospital. After this I had some really bad episodes of headaches; the worse lasting for about 15 days. It was a very stressful time in my life and occurred in the months of June and July, so I think it was a mixture of allergies and celiac aggregated by stress. Usually at their worse the headaches came once or twice a month. At the time I had a job where I could take time off without pay or use vacation time or I would have been let go. When that job left the state, I finally had to apply for disability and the judge was amazed I was able to work as long as i did. The headaches have gotten less frequent with age and strict dieting, but I still get them. If I take the shot as soon as I feel a headache coming on, it will stop it after a couple of hours and the next day it will be gone. If you have high blood pressure you may not be able to use this medication. I hope this information helps.
Hi Everyone, I am a new member; I was diagnosed with celiac about 15 years ago. I have Granuloma Annulare mainly on my thighs, calves, and feet. I had a biopsy done at Oregon Health Sciences recently, but have had this condition for about 2 years and it seems to be slowly spreading. I also have Hepatitis C, when the doctors tried to treat me with Ribavirin/Interferon I lost 50 lbs. in 6 months and had to be hospitalized. That is when I was diagnosed with celiac. I also was diagnosed with Dermatitis Herpetiformis while at the hospital which is symptom of celiac. I wonder if this is also related to celiac. I think celiacs could be prone to many more food allergies then just gluten. I intend to get checked by a good allergist when I have time. It takes several days for comprehensive testing. Meanwhile I will start the cortisone cream the dermatologist prescribed hoping it does not thin my skin too much as that's the last thing I need. lol PS: I also get migraine like headaches and I have to inject DHE 45 at the onset or they get worse and can last for several days. I think it is related to celiac. Does anyone else get these?