This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
You mention all the symptoms that I had. And, I was diagnosed with IBS. My recommendation is to demand a blood test for celiac disease AND an endoscopy regardless of the blood results. Since your mom has similar symptoms, have her checked, too.
As a child I was anemic, diagnosed with anorexia (even though I just hated to eat food because I felt so awful afterward) and diagnosed with ADD. That turned out to be a cloud brain or foggy brain or whatever it's called. Bloating, severe constipation, and gas that rivaled my husband's after a burrito feast!
Just stand your ground. Your doctor works for you. If he doesn't cover all bases, then take your business elsewhere.
Good luck and keep in touch.
P.S. One suggestion: don't go gluten-free before an endoscopy or other celiac related tests. If you decide to go gluten free and you feel better, you'll have to go back to eating glutens if you find a doctor willing to do specific tests.
There's a doctor that she frequently has on the show. He's always educating her audience about the human body. Perhaps, when it's my turn to ping Oprah, I could use that tact -- ask her to invite the doctor to address celiac disease and offer experts such as Danna Korn and Shelly Case. We could also suggest that she have a cooking segment with Carol Fenster or Bette Hagman. Maybe Art Smith could join in and adopt some of his recipes for Celiacs. How's that for a show!
I discovered Amy's Mac and Cheese a few weeks ago and was thrilled. I had about 3 or 4 of them and then the last one gave me bad cramps and diareha (sp). It's the only thing I can think of that I ate gluten free.
After that, I decided to stick to what I know. Cooking it for myself in a gluten-free kitchen from gluten-free ingredients. I miss the convenience of it all, but don't have to worry about it afterwards.
I understand that Viactiv is gluten-free and I ate both the multi vitamins and the calcium religiously. At the same time, I had raging migraines to the tune of everyother day, brain fog, dizziness, and bloating. I decided to stop taking them in case the chocolate was promoting the headaches. Well, in two weeks I've only had two migraines and very little dizziness, and the brain fog seems to have gone away.
I'm not taking any multi vitamins or calcium right now, so I'd better start looking for an alternative. Again, not sure if it was the Viactiv or not, but things have definitely been better.
Does anyone have any suggestions on multi vitamins or calcium? Something that's good on the stomach? I took Viactiv in the first place because it didn't bother my stomach.
Two other books that I live by are: Gluten-Free 101 by Carol Fenster and Gluten-Free Diet by Shelly Case. Both books describe in layman's terms the disease, what to avoid, what to embrace. Both books are very positive, too. And, for the most part, the information seems very accurate.
I've had similar pain during intercourse, too, but my doc just figures it's associated with menopause -- early onset due to hysterectomy. Prior to diagnosis, I was told I had adenemyosis a cousin to endo. He's just given me vaginal hormone suppositories I use twice a week. What a hassle! If anyone can give me any info to give to him, let me know. My docs are learning about celiac disease right along with me.
Yes, Viactiv is gluten free. I've been taking one 500 mg with lunch and again with dinner since being diagnosed. It's the only brand that doesn't upset my stomach. I tried the Viactiv vitamin chews, and while they don't upset my stomach, they have a terrible after taste.
On the calcium note, when I was diagnosed with celiac disease, I was also diagnosed with osteopenia (early stage of osteoporosis), and after one year, my bone density increased and I am now just out of the osteopenia diagnosis.
Why would you need a medical alert bracelet for Celiac Disease? If you're unconscious and can't respond, I guarantee you that no medical professional will try and force feed you anything, gluten free or not.
If anything, they would hook you up to an IV for fluids and when you come to, you can tell them yourself your food restrictions. Again, they probably won't be able to accommodate you, so a phone call to Mom, other family members or a friend will be in order