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lyoung2

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About lyoung2

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  1. Hi Sarah, It is always the grease that gets me. I am definately more sensitive to greasey foods since I've been gluten-free. Laura
  2. I hope someone can help me out. I used to purchase a Corn Flakes cereal from Whole Foods that came in a Blue Box. I know it is not Natural Path. Whole Foods does not carry it anymore (and they weren't helpful in tracking it down) and I can't remember the brand name. It is the only one I liked and I'd like to find it somewhere else to order some. Thank you for your assistance. Laura
  3. Thanks for checking on that Stephanie. After they said it was 1%, now knowing that this is still too much, I would have let it go. So, based on what you have all checked on, is it truely gluten-free (provided they make it in a separate pot)? Even though I've been gluten-free for 1 yr now, I'm so used to eating only items specifically labed gluten-free, that all the other lingo just confuses me. Thanks again. Laura
  4. A restaurant chain in Northern CA now has low-gluten pasta on it's menu. I asked what the % of gluten was and she checked with the manager and was told 1%. Am I correct that that is still too much. I thought I read somewhere it's safe under .02 or something like that? Thank you, Laura
  5. I'm sorry to hear that 2 of you were given bad meals at Outback. I have eaten a few times at both an Outback in Northern CA and also WI and have always been fine. I do explain the situation and ask for the menu and I haven't had a problem. It more than likely is a training issue that if they are going to provide the menu, they should also educate what that really means to the wait staff. Laura
  6. I have been symptom free for a good 8 months. Prior to going gluten-free I wasn't as bad as some folks, but was sick quite frequently. I have accidentally had gluten a few times but know it immediately, so I don't believe I'm getting gluten somewhere (except possibly the beauty products). I'm just not sure if the products would cause this seeing as I was using them prior to the diet and didn't have dry hair. My thyroid was checked a few years ago for another problem, and it was fine. I don't know that much about the DH part of Celiac so wasn't sure if the dry hair was a symptom at all. Should a person with celiac disease automatically change their beauty products as well as food? Thank for your response. LauraY
  7. Hi Ladies, I'm glad I found your posts. I have been TTC for 5 years, with 1 very early m/c. I did not know I was celiac disease until last year, and have now been gluten-free since August 04 and have noticed a difference in my cycles. Unfortunately I can't say for sure if celiac disease played a role in my infertility or not, but my age is going to definately be a factor now (I'm 42). Good luck to everyone. LauraY
  8. Hello All, I am an unconfirmed Celiac and have been gluten-free since August of 2004. After a few months I noticed that my normally fairly smooth hair was getting kinky and very dry. I do not have any skin problems. After reading some of the posts, those of you with DH have sores on your scalp. So I'm wondering if the dry hair could simply be a lack of nutrition or is it a sign of DH? I have only gone gluten-free with food, not any beauty products. Thanks for your input. LauraY
  9. Thank you all so much for your responses. I'm so tired of going around in circles, and you have helped me out with your words of wisdom. Kaiti, I know you asked why I was looking for an official diagnosis, and I guess my answer to that is because both Dr's were trying to tell me that it must be something else because the diet was not working 100%, only about 80%. And because some of my b/w was border line, I was starting to believe them. So, I am going to go back on the diet and be way more careful with not just food, but also the beauty products, as well as taking the dairy out which Enterolab says I have an issue with too. I am going to ignore the dr's for now and see how things go for a few weeks. Thanks again for all your support. Laura
  10. Thank you Kaiti for your reply. The initial blood work and colonoscopy from the first Dr. was NOT gluten-free. When I did Kimball and Enterolab, I had only been gluten-free for 1.5 months. I definately did feel better gluten-free, but not 100% which was why Dr. #2 wanted the endoscopy. I told him all of my concerns about not having enough damage or sporadic and he assured me he would do multiple biopsies. I guess there could have been cross contamintation issues as DH is not gluten-free. I will go back to gluten-free and try to be more careful and see if I can't get to being 100% better. I had been sick for so many years, I was looking for a conclusive answer, but I don't think I'm going to get one Thanks again, Laura
  11. Here's my story First Dr. in August of 2004 did blood work and colonoscopy not sure what he was going to find. His assistant called 1 week later and said b/w showed celiac disease and get on the gluten-free diet, which I did. When I called back 2 months later to discuss my progress he literally laughed at me for going gluten-free because my b/w was only partially marked by celiac disease. Here are my results. Blood work from Dr.'s lab: IgA <20 IgG H39 (moderate to stong positive) Ttg <20 So, I went ahead and did some testing of my own with Kimball and Enterolab to show him. He of course blew those away also because he said I still didn't have enough markers for celiac disease. See test below. Kimball Genetics cheek swab: DQ2 (DQA1*05/DQB1*02) negative DQA1*0501 or *0505 detected DQB1*0201 or *0202 not detected DQ8 (DQB1*0302) positive DQB1*0302 detected EnteroLob stool sample: IgA 39 units (negative <10) Ttg 37 units (negative <10) Fecal Fat 88 units (negative <300) I also tested positive for yeast (21 units) and milk (27 units). I went for a second opinion with another Dr. who has experience with celiac disease. He also mentioned that "normally" the only confirmed diagnosis that a Dr. will accept is an endoscopy. He did agree that I did not have enough of the celiac disease markers as well. So after being gluten-free for 8 months, I went off the diet for 4 weeks, feeling horrible and having my migranes return (which went away after 2 months gluten-free). Well, you guessed it, a negative biopsy. Could it just be that I have an intolerance to wheat and not celiac disease? I just don't know what to do next. I'm thinking of just keeping a food diary for a few months if I have to and mark all symptoms down and take it back to him. I'm just so angry that I can't get a conclusive answer. I've also thought about trying the IBS diet and seeing what results I have with that, but my brain says that the Enterolab results just can't be wrong and I should stay away from the wheat. Any feedback would so greatly be appreciated. Laura
  12. Here's my story First Dr. in August of 2004 did blood work and colonoscopy not sure what he was going to find. His assistant called 1 week later and said b/w showed celiac disease and get on the gluten-free diet, which I did. When I called back 2 months later to discuss my progress he literally laughed at me for going gluten-free because my b/w was only partially marked by celiac disease. Here are my results. Blood work from Dr.'s lab: IgA <20 IgG H39 (moderate to stong positive) Ttg <20 So, I went ahead and did some testing of my own with Kimball and Enterolab to show him. He of course blew those away also because he said I still didn't have enough markers for celiac disease. See test below. Kimball Genetics cheek swab: DQ2 (DQA1*05/DQB1*02) negative DQA1*0501 or *0505 detected DQB1*0201 or *0202 not detected DQ8 (DQB1*0302) positive DQB1*0302 detected EnteroLob stool sample: IgA 39 units (negative <10) Ttg 37 units (negative <10) Fecal Fat 88 units (negative <300) I also tested positive for yeast (21 units) and milk (27 units). I went for a second opinion with another Dr. who has experience with celiac disease. He also mentioned that "normally" the only confirmed diagnosis that a Dr. will accept is an endoscopy. He did agree that I did not have enough of the celiac disease markers as well. So after being gluten-free for 8 months, I went off the diet for 4 weeks, feeling horrible and having my migranes return (which went away after 2 months gluten-free). Well, you guessed it, a negative biopsy. Could it just be that I have an intolerance to wheat and not celiac disease? I just don't know what to do next. I'm thinking of just keeping a food diary for a few months if I have to and mark all symptoms down and take it back to him. I'm just so angry that I can't get a conclusive answer. I've also thought about trying the IBS diet and seeing what results I have with that, but my brain says that the Enterolab results just can't be wrong and I should stay away from the wheat. Any feedback would so greatly be appreciated. Laura
  13. sriddle78, thanks for your response. Maybe I just worded my topic incorrectly. Those that write "could this be celiac" seem to get responses. Oh well. I hope that you also get some confirmation on your issues and start feeling better soon. Laura
  14. I am having the same problem. I have been gluten-free for 4.5 months. I never did have a gas issue until 5 days ago. The heartburn is killing me!!!!! I don't do dairy, and have tried eating more, eating less, nothing is helping. Any suggestions? Laura
  15. I'll start by saying that my Dr. is a quack and I need to find a new one. In the meantime, I've done some testing of my own and would love to hear what your thoughts are on the results. Blood work from Dr.'s lab: IgA <20 IgG H39 (moderate to stong positive) Ttg <20 Kimball Genetics cheek swab: DQ2 (DQA1*05/DQB1*02) negative DQA1*0501 or *0505 detected DQB1*0201 or *0202 not detected DQ8 (DQB1*0302) positive DQB1*0302 detected EnteroLob stool sample: IgA 39 units (negative <10) Ttg 37 units (neative <10) Fecal Fat 88 units (negative <300) I also tested positive for yeast (21 units) and milk (27 units). I had a colonoscopy in August (but not an endoscopy). I have been gluten-free since the blood work done in August of 2004. I do feel somewhat better but still need to cut out yeast and milk from my December results. I'm wonder what your thoughts are on whether I have celiac, or possibly just an intolerance to these items. Regardless I'm going to stay gluten-free, it would just be nice to know that if I do make a mistake, it won't ruin my intestines. Thanks for your feedback. Laura