This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I am curious where you found the information that lichen sclerosus is connected to thyroid disease. I have lichen sclerosus and my thyroid tests have all been normal and all of my problems are skin and joint related. When I gave up gluten, my lichen sclerosus went into remission over time, I no longer get rashes, and my joints no longer feel stiff when I wake up in the morning. I want to make sure I keep up on my health so I am interested in any relation between lichen sclerosus and thyroid since my thyroid has been tested to be normal. Thanks.
My daughter was diagnosed with celiac through bloodwork at her GI. The celiac panel was done as rule out because she had so many different types of vague symptoms including tremors in her hands. The endoscopy was done before the celiac panel came back (I feel they did not believe she had celiac) and we were told the endoscopy was normal showing no signs of damage. When her celiac panel came back, she was told her numbers were the highest they had seen for a patient. Since the first endoscopy was done before the positive blood test, they asked her to come back for a repeat endoscopy at their own expense and this time they took samples. Once again, the endoscopy came back normal even though her blood test was highly positive. We were told they felt she was a mystery. I guess my point in all this is that just because an endoscopy comes back negative it does not mean a person is not celiac. I have always found it troubling that medical providers find this to be the "gold standard" in diagnosis. Celiac can cause damage in insidious ways other than GI damage and the damage to intestines can be so patchy. I would think the neurologist could accept the positive blood test and positive response to the diet. My daughter could not go back on gluten now even if she tried because now that she has removed it from her diet even the tiniest amount makes her so ill she feels as though she is digesting razor blades. Thank goodness she does not get cc'd very often. I hope your husband stays away from gluten, especially since he is having neurological symptoms. It always bothers me when physicians want someone to intentionally make themselves sick by eating gluten just so they can prove the obvious through their testing. Medicine is not and never will be an exact science
In our house, any kitchen item that is to be used for gluten free only (colander, storage containers, whisk, etc) is red in color. I got the idea on this forum. It has worked out very well in our home. I write gluten free on the lids with marker for peanut butter, jelly, etc. It was a little easier in our home because there are no young children so we all understand how important it is not to cross contaminate/mix things.
I think the overall message conveyed by Dr. Oz is still going to be beneficial to someone out there. I think you are right in that he should have mentioned that getting tested after going gluten free might skew results, but what he did do was perhaps provide a possible path for people to explore to explain their vague symptoms. Before my daughter was diagnosed, I had never even heard of gluten intolerance or celiac disease. I do wish he would have mentioned dermatitis herpetiformis, eczema, and/or rashes when going over possible symptoms because in retrospect all of my daughters problems started with itchy rashes on her knees that were diagnosed as psoriasis. Leading up to her diagnosis she had heart palpitations and hand tremors. She did not start getting GI symptoms until years after the rash appeared and even those GI symptoms were vague. I appreciate his effort to encourage people to explore the possibility of gluten intolerance or celiac disease.
If possible, I would find another dentist if I were you. When my daughter asked the hygienist at our dentist's office, she did not know. She said she would find out. She called every manufacturer regarding anything that would touch my daughter to confirm they were gluten free and made sure to inform my daughter when she went for her appointment and also let me know when I went in that she had checked thoroughly to make sure that none of the products contained gluten. If you cannot find another dentist, I would make sure that you let your present dentist know what your experience was with his hygienists. Their responses were totally unacceptable and he should be aware of how is staff is interacting with his patients.
Perhaps it is nitrates in the cold cuts you are reacting to. My daughter reacts to nitrates in the same way she reacts to gluten. Nitrates are found in most processed meats (cold cuts, bacon, hot dogs, etc.) You may try some nitrate free cold cuts to see if you react. Hormel (pretty sure of brand) has a line called Naturals. Coleman's has nitrate free bacon and hot dogs. Oscar Mayer also has nitrate free hot dogs, but we prefer Colemans.
Wegmans corned beef the last time I purchased it was nitrate free. BJs started carrying nitrate free bacon and cold cuts, but I cannot remember brand--Apple something.
Do you have a crockpot? There is a blog crockpot365.blogspot.com. Stephanie O'dea started this site and all of the recipes are gluten free. This way you could put in the ingredients and the meal would be ready when you got home. She critiques each recipe she has tried. Whatever you decide to cook, enjoy your visit!
Do you think a podiatrist might be worth seeing regarding your toes bending the wrong way? It sounds as if this may be related to your other issues, but a podiatrist might offer a different perspective for you and your other specialists to explore and perhaps offer you another piece to the puzzle.
I just noticed the strangest thing. I have been keeping an eye on my iodine burns because they still have not healed completely. I am also watching my original rash because it has been about a month and it is taking such a long time to fade away. The original patch I tested at the end of November that had no reaction when I first did it is now visible. I can see the outline of the gauze part of the bandaid and some red dots in the middle. This is so strange because I did this the end of November and had no itch or burn or anything at that time. This old outline was not there yesterday. It has not been itchy or painful in any way. It just seemed to appear. Very, very strange.
I was diagnosed with this 22 years ago. It was shortly after giving birth to my second child. I am thinking I may have a problem with gluten because I had a DH type rash almost a month ago that has appeared for the 3rd time in the past six months. I am trying not to make things "fit", but it seems to make some sense. In retrospect, when the LS presented our grocery budget was $50 a week and that had to go towards diapers and formula also. We literally lived on pasta. I started out being treated with a testosterone compound which was just awful. I then went to a diprolene ointment. I now use hydrocortisone valerate. I seem to be in remission and only use the cream occasionally if I feel things might be starting to flare.
Over the course of the years, I found that I preferred a "low carb" diet and seemed to feel better. I don't know if this has contributed to the remission, but as of a week ago I have stopped eating gluten. I will be interested to see if I have any LS flares going forward.
I have used rice paper. I put the spinach filling in and then roll them like an egg roll. I like them this way. You can't eat them expecting phyllo dough just to warn you. They have a chewy texture that I actually enjoy. My daughter liked them this way too, but when I made the puff pastry last time she fell in love with it and asked that I do it with puff pastry again. She is coming home tonight so I am going to have her try one of the spinach tarts I made using the Land O Lakes recipe to see if she likes those as much. I hope so The tarts are so easy compared to the puff pastry.
Someone here on the forum had directed me towards this video for phyllo dough last year and I did give it a try. He makes it look so easy and I thought I was doing everything just the way he showed, but the layers melded together and it was nothing like phyllo dough. It was a very time consuming process and I guess I cannot bring myself to try again because the result was so disappointing given the effort I put into it.
On Christmas Eve every year, instead of dinner we have hors d'oeuvres all evening and play games. I was hoping some of you would share some of your recipes. My daughter and her friend are both celiac so I make all of the dishes gluten free. I have attempted to recreate phyllo dough several times, but regrettably I must admit defeat. I did find a good recipe on the Land O Lakes site for a tart pastry. I use the pastry from their cranberry tart recipe (I have never made the cranberry tarts though). I put it in the mini muffin tins and fill it with my spanakopita filling. I did a "test run" a couple of weeks ago. My other daughter who is gluten eating said they were just as good if not better than the ones I make using phyllo dough. This says a lot because she tends to be averse to anything I bake that is gluten free. I made puff pastry last year. It was good, but took so much time. This gives the same flavor as a puff pastry in a fraction of the time.
I would appreciate any other ideas some of you may have. Here is my typical Christmas Eve spread:
Spanakopita tarts (described above)
Jalapeno poppers (I make ahead of time using Schar Breadcrumbs and freeze)
Chicken bites wrapped in bacon (this is similar to the scallops in bacon, but my daughter and I are allergic to scallops)
tortilla chips with salsa and hummus
cheese and pepperoni
If I have time, I will also make some gluten free flour tortillas and make spinach rolls with roasted red pepper dip. I made the flour tortillas about 6 months ago and they were really good. I have not tried making them ahead and freezing yet. This year December somehow got away from me so I may not get to these this year.