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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About sugarsue

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  1. Hi, I found this forum tonight, we've been members of the celiac forum for a year or two now but I didn't know there was a lyme forum too. I am waiting for my daughter's Igenex test to come back and will go this week to get my test and my other daughter's test taken. We are all gluten intolerant and have multiple allergies and food sensitivities. My 9 yr old daughter has multiple problems and so do I and I am becoming convinced it is lyme. We will see a lyme specialist soon. I wonder how celiac and lyme fit together.
  2. Newbie Anorexic With Neural Symptoms

    Do you have a history of strep infection? If so, please check out the possibility of PANDAS. There could be an association between celiac and pandas since both auto-immune conditions. PANDAS can cause anorexia, OCD, Tics, Tourettes and other neurological issues. Hugs to you and I hope you find the answers you are looking for. Susan
  3. The super walmart near us has a gluten free section and sells Annie's gluten free mac and cheese. We love it. Also we think, Mai-Fan Rice Sticks is a really good pasta substitute, also available at super walmart. Easy low carb recipe books could hold a lot of ideas for you too. Good luck and I'm glad you found out what makes you feel better! Susan
  4. Skigirl, I find it very helpful to hear how gluten affects others to try to understand what she is going through. I am allergic to wheat so when I get it I itch. But I don't have the neurological stuff and it's so hard to understand. Do you do anything to help with your anxiety when you get glutened? Susan
  5. Lynn, this does sound very similar to my dd. I also have to worry about whether she is exposed to strep so this makes it so complicated. We have been gluten free for so long but really, probably too much of the little exposure. Thanks for the support.
  6. Jazmine, thank you for your perspective as the child. That really helps. I want to be there for her and help her. It's just so hard to do when she feels bad and there is nothing I can do. I hope as she gets older it will get easier.
  7. For those with neurological symptoms from gluten, how long does it take for them to subside after being glutened? How long did it take to feel better after going gluten free? My 8 yr old daughter is suffering (and in turn me too). I don't know for sure it's the gluten since she has another medical condition too. But I am desperate for information to try to help her. She's been gluten free for 1 1/2 years but I could be better regarding the cross contamination or hidden gluten. I know she's been glutened recently several times from my stupidity. Susan
  8. Thank you both for your responses. I have seen a few other things that could possibly have been a seizure since that day but nothing like the first one I saw last week. Hopefully tightening her diet back up will take care of it. I have noticed her tummy hurting 1-2 days after a glutening. I think I just need to learn her new signs and of course start to be more careful again. Susan
  9. Does this behavior sound familiar to anyone? My 8 yr old dd is diagnosed gluten intolerant but she also is diagnosed with PANDAS (neurological reactions to strep infection). The PANDAS causes OCD and other intense behavior problems. She is undergoing some treatment for that and that, along with the gluten free diet have been what we have been doing to try to help her. This can happen any time during the day but it is much worse at night. She will become worried that I am mad at her. Anything can trigger it. Then she will whine, plead, beg, cry "are you mad? don't be mad? you're mad right? Mommy, Mommy, Mommy, please, don't be mad" etc... and she won't stop. Nothing I do can get her to stop. I am a mess from this. I can't even begin to explain how horrible it is to experience. I can't breathe, I need to get away, but she follows me everywhere with this. The more I try to get away, the worse she gets. She just won't stop. If I react, that's proof to her that I really am mad. If I don't react, she does not believe me that I'm really not mad. I have been assuming all of her behavior issues are related to the PANDAS but recently I am wondering if this one is hidden gluten. I have allowed her to eat oats and other items that could have cross contamination, have not always checked her sauces at restaurants, etc. since she never had the gut reaction and is not diagnosed celiac. But recently she has had an obvious reaction to gluten that has made me wonder. Of course I plan on tightening up her diet right away and see if it helps. I just thought I would come and post to see if this sounds like anything that anyone else experiences. I truly do not know how to handle this. My inability to help her, reason with her or just plain force her to stop is pushing me to the limit and I feel like I am going to lose my mind. Susan
  10. My 7 yr old dd has seizures that we believe are caused by gluten. She's been gluten free for over a year and has not had a seizure since. I used to know within 10 minutes whether she had gluten (very bad BM's) but now things have changed and I can't tell any more. So I got a little lax on checking every ingredient. So she had a seizure this week. I have tracked back and I know where she got some good doses of gluten. So of course I am getting the diet back under tight wraps. But this has me thinking. We don't have a celiac diagnosis but we do have a gluten intolerant diagnosis since the tests have been inconclusive. Does anyone know if seizures caused by gluten implies celiac? Or can non-celiac gluten intolerance cause seizures too. I think it is just splitting hairs since if gluten is causing her seizures, she can't eat any gluten. Thanks. Susan
  11. Hi, my daughter is 7 now. She went gluten free when she was 6. At that time she weighed 39 lbs. In the past 1 1/2 years, she gained 11 lbs!! She grew 2 inches but is still small for her age (I'm not sure how tall she is). I have hope that she will continue growing and maybe she'll catch up. One thing that helped us with the weight was protein drinks like Boost. Susan
  12. Interesting! I still don't know what is going on here, and I can't seem to get my friend to tell me what brand of soup she used. Hopefully Monday when I see her I can ask her face to face. It never did make me itch so I'm leaning towards a gluten free soup. It's nice to know my dd may not get so sick with accidental glutening but I may need to adjust what I look for. The next day, she did get an allergic reaction around her eyes, they were really red and she looked like a raccoon. I don't know if it was related, it was different than anything I've seen on her. Susan
  13. Thanks you two... that makes the most sense, that it was a soup that was gluten free. I didn't know about these two brands. I will ask her and get that clarification. Plus, I'm happy to know about these soups for my own cooking! Susan
  14. Yesterday at thanksgiving dinner, we ate a dish that had undisclosed cream of chicken and (I think) cream of mushroom soup. I assume it was campbells but I don't know. None of us got sick My girls are both seriously gluten intolerant (possible celiac but we don't know) and I am allergic to wheat. If I eat any small amount of wheat, my armpits wake me up in the middle of the night with the most intolerable itch. My 7 yr old gets diarrhea within 10 minutes after eating gluten. But she has not been sick for a while now. This has me completely confused. Do you know of a brand of cream soups that don't have gluten? Is it possible to be gluten intolerant and "get better" if they don't have celiac? My girls have been gluten free for 1 year and it has changed our lives. I have no intention of adding back gluten but this really has me confused. Susan
  15. Bumps Are Back What Do You Think?

    That does look very smiliar! Does it itch? My dd's woke her up this morning it itched so bad. I just wish I could track it back to some gluten exposure. I hope g-ma will be more careful now! Have you had him tested for celiac? Why is the doc refusing a biopsy? He thinks it's unrelated?