This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Yes! My son gets DH on his elbows and the back of his neck too. Usually just bumps as well. Sometimes very red, sometimes not. The ones on his elbows are super painful for a day or two. They're itchy, but only mildly. He's 9. At first (several years ago) he would get them on his neck (and those were very itchy), but now it's almost always on his elbows. The last 2 times he accidentally had gluten it took about 24-48 hours and he had the rash. We were 100% positive he had gluten. Once was at school when his teacher gave him an ice cream sandwich and he thought he could just pick off the crust. The other was when I mistakenly mixed up the Applegate chicken nugget boxes at the store and he had 1 bite and said "mom, these taste different!" His one bite and my one bite (while serving them) made us both horribly sick. : (
My children's elementary has about 700 kids. There are a few other gluten-free'ers, but none happen to be their friends. Most oldest two have moved on to middle school. I think that having a friend with ANY food issue can be helpful. We have a friend with a peanut & sesame allergy, one with a cinnamon allergy, one lactose intolerant with a gelatin allergy, one that's vegetarian, one that can't eat pork or beef, and one that can't eat pork. When we have a few of those friends over and throw in my gluten-free/CF/SF kids, it can definitely get crazy, but it's all doable and no one feels left out or strange. They actually laugh about it! So how about looking for a friend with a food allergy or restriction besides gluten?
Also, my kids attend Camp Celiac every year for a week. Everyone there is gluten-free! They have a blast! Do you have any gluten-free camps like that?
Yes! Mouth ulcers (i.e. canker sores) can be from gluten. I got them chronically (3-5 at a time regularly) as a child and I have Celiac. That was before diagnosis. My Celiac daughter also had them chronically before diagnosis. I don't get them anymore if accidentally glutened, but my daughter sure does.
Not sure what's more idiotic - me or the Applegate boxes.
Last night after my daughter's softball game I was rushing to put dinner on the table. I grabbed a box of the Applegate gluten-free Chicken Nuggets (or so I thought) and popped them in the oven & cooked 'em. Then I served the kids and took a bite of one off the pan. My 8 year old (also Celiac) says, "Mom, these taste different." OH NO! I grabbed the box and sure enough they were the regular ones. ^%&&Y**! The boxes are nearly identical!
It took exactly 30 minutes for me to get horribly sick. Stupid bite. And, my poor little guy woke up with 4 canker sores and a headache. : (
Still feel like crap. I'm so frustrated & angry. Angry at Applegate. More angry at myself
So, I found gluten in my thyroid meds -- generic Cytomel (T3)!!!
I have been getting progressively sicker over the last few months. Headaches, severe shortness of breath, zero stamina, stomach issues, etc. I work out regularly on my own plus 2x/week with a trainer. Finally, after embarrassing myself yet again with zero exerise tolerance with my trainer I made an appt with my endo guessing my thyroid was off. My doctor said I may have switched from being hypo to hyperthyroid and may be over medicated. I have been taking T4 and T3 for about 6 years. So, we did the labs for thyroid and a bunch of other stuff.
After he convinced me I must now be hyperthyroid I dropped my dose (37.5 mcg/day) of Cytomel T3. After just a couple of days I started feeling so great! Then after about 4 or 5 days I was freezing cold and sleepy (like I was hypothyroid again), but still oddly felt great otherwise. So, 10 days later I got my labs. Normal! In fact my T3 was borderline between normal and low. So, why did I feel better not taking it??? It didn't make any sense. Was there gluten in the pill? So, I crushed up a couple of weeks worth and ran the Elisa-Tek gluten test--twice. Positive! There was gluten in my pill!!! D*** it! Furious. Absolutely furious.
Turns out my T3 generic was coming from a new lab that I had never used and it was different lab than my T4. The pharmacy had switched it. Taking my thyroid every morning was like taking a dose of cyanide.
Anyway, I confirmed the results with Elisa-Tek then I ran it up the food chain at both the pharmacy and the drug manufacturer. I've switched brands and am feeling great!
I think the all the other posters have great ideas. I just wanted to throw one more into the mix......
My son reacts horribly to artificial food dye, artificial preservatives (like TBHQ and Sodium Benzoate), and some artificial flavor (like cherry). He gets VERY hyper within 20 to 30 minutes of consuming it. It was leading to poor concentration, inability to sit still (literally), poor behavior, poor choices, etc. We figured it out the summer after kindergarten. The same day we removed all traces (even his toothpaste) he was a new child. Without it he's happy-go-lucky, funny, charming and sweet, and smart as a whip. He can sit and play Legos for 3 hours. With it he's an absolute moody wreck, yelling, fussing, snapping and running across the sofas.
He's in 3rd grade now. Doing awesome. BTW he's also gluten and dairy free. He was Gluten-free Casein-free for just under a year when we figured out the other stuff.
As far as the birthday treats.....we've found it easier to keep a gluten-free goody jar at school to cover the birthday/teacher/party treats. There will always be the parent who forgets to tell the teacher they're bringing a treat or the teacher who forgets to tell the parent. It makes it easier for all.
I can't help much on the gluten-free list, but I do know that Play Doh and some finger paints do have gluten. Also, be sure the teacher understands that your little one can't string dry pasta or cereal. One of my kids came home with a fruit loop necklace.
We use the Vitalet's Children's Chewables from Freeda Vitamins (www.freedavitamins.com). They come in raspberry, orange, carob, and unflavored. My kids fav is the raspberry. They're a great, quality vitamin. All their vitamins are gluten-free. I take numerous adult supplements from them. Good stuff!
If you can make room in the car, how about using a cooler filled with dry ice for some favorite foods? That will absolutely keep things cold. We just returned from Maui and I checked a cooler of specialty items on dry ice. Worked beautifully. I purchased the dry ice at my local grocery store. I'm in CA, but all the major stores around here have it. You just have to ask the checker because it's always in a locked case so it's handled properly (with gloves).
Hopefully some others will chime in with some restaurant options too. Have a great trip!
Make sure you don't overlook a possible role of artificial food dye, artificial flavors and artificial preservatives (like sodium benzoate and TBHQ) for hyperactive and "bad" behavior. My son was 6 (he's 8 now) when we figured out that he's a maniac on the stuff. He was a different child the first day I removed all traces. It's in nearly everything, even toothpaste. Now we know within 20 to 30 minutes if he accidentally consumes some. He's literally jumping from sofa to sofa. He can't even look you in the eye. In the past, before we removed it, it led to naughty behavior at school and home and to being overly emotional. Now he's very well behaved, can sit and play Legos for hours, does great in school, etc. Definitely something to check for!
Just a thought.....since your mom is a personal trainer.....do you drink protein shakes? I discovered gluten in a supposedly gluten free rice protein shake although I can't immediately recall the name. I used the EZ gluten home test strips when I couldn't figure out what was getting me. I also tested the supposedly gluten free dog food. Also positive. Have you been to an allergist for testing for other allergens?
I have been burned by a common grill at a restaurant. So darn frustrating when you call ahead, have them leave the chix unmarinated, talk to the manager & server, etc. Lesson well learned. Now I ask that anything "grilled" be made in a separate pan instead. Beware of common fryers as well. The oil will be contaminated. Some restaurants will heat up separate oil in a pan if you ask nice.